Search found 374 matches

by Jugular
Thu Oct 13, 2011 7:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: WHY WE NEED VALVES
Replies: 58
Views: 6823

Re: WHY WE NEED VALVES

PwCCSVI may also have protective hypoxic conditioning, which would reduce damage if a stroke or TGA occurs. I think this is a point worth considering. Let's run with the idea that improving neck vein drainage lowers venous hypertension and thereby produces a de-hypoxic effect that in turn allows be...
by Jugular
Thu Oct 13, 2011 5:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: WHY WE NEED VALVES
Replies: 58
Views: 6823

Re: WHY WE NEED VALVES

I think there is definitely need for long term study to see if venoplasty ends up causing the same problems associated with insufficient valves. Conversely, I don't see the need to sound the alarm in the absence of a single reported case of TGA following valve angioplasty. We should be hearing of mu...
by Jugular
Thu Oct 13, 2011 3:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: WHY WE NEED VALVES
Replies: 58
Views: 6823

Re: WHY WE NEED VALVES

This type of internet rumor about restenosis rates is what got people going to Bulgaria to get LARGER Balloons ....they thought it lead to lower restenosis rates, and now they have NO FLOW. People with valvupasty have just as many restenoses...here's a guy in Las Vegas who went to Arata's clinic NI...
by Jugular
Thu Oct 13, 2011 9:32 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: WHY WE NEED VALVES
Replies: 58
Views: 6823

Re: WHY WE NEED VALVES

Based upon what I learned in the other thread :), it would seem that valves with truncular malformations (stuck closed) are associated with CCSVI and MS, whereas valves that are insufficient (stuck open) are associated with TGA. I'm still not sure that it is a "pick your poison" dichotomy. Firstly, ...
by Jugular
Wed Oct 12, 2011 8:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Daflon 500mg tracking thread
Replies: 176
Views: 23174

Re: Daflon 500mg tracking thread

Date started:Oct 4th Dosage:2 pills a day with food Description of MS:RRMS transitioned to SPMS in 2009, walking with cane and an arm or two. CCSVI diagnosis:u/s both jugulars between 50% to 75% stenosis CCSVI treatment (type, date(s), clinic(s): 1st procedure Venoplasty of both IJV's, March/11 Dr....
by Jugular
Wed Oct 12, 2011 8:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Daflon 500mg tracking thread
Replies: 176
Views: 23174

Re: Daflon 500mg tracking thread

After talking to the pharmacist; she told me that Daflon wasn't sold anymore here and that the Pycnogenol I took before is the closest she can find. After thought we decided to restart Pycnogenol and try to increase the dosage... 2 capsules a day instead of 1 and let's see what will come out of tha...
by Jugular
Wed Oct 12, 2011 7:51 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: OPINIONS DR ARATA & DR HEWITT
Replies: 99
Views: 12762

Re: OPINIONS DR ARATA & DR HEWITT

Thanks for the education cheer. I must have been standing on my head when reading that stuff. Temporary Global Brainfart I guess. I am still perplexed by this though. I do not believe that Synergy are providing any warnings against valsalva maneuvers - which are impossible to avoid anyway. When lyin...
by Jugular
Wed Oct 12, 2011 6:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: OPINIONS DR ARATA & DR HEWITT
Replies: 99
Views: 12762

Re: OPINIONS DR ARATA & DR HEWITT

The other thing to keep in mind is that during the valsalva maneuver, the valves are supposed to be wide open, not closed. Indeed, even though the IJV's are normally collapsed when standing, they open during the valsalva maneuver due to increased venous pressure. Here is a great article on the IJV's...
by Jugular
Wed Oct 12, 2011 6:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: OPINIONS DR ARATA & DR HEWITT
Replies: 99
Views: 12762

Re: OPINIONS DR ARATA & DR HEWITT

Jugular, I am not selling anything, nor am I alone in ringing the alarm bell. It is being rung by doctors. I feel compelled to give information that has been discussed by Dr. Schelling, Dr. Zamboni (who is currently working on mechanical venous valve replacements) and the other doctors of the Inter...
by Jugular
Wed Oct 12, 2011 4:27 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: OPINIONS DR ARATA & DR HEWITT
Replies: 99
Views: 12762

Re: OPINIONS DR ARATA & DR HEWITT

When we started discussing CCSVI on here in '08, none of us envisioned medical tourism. Jeff saw a local doctor at Stanford University, was covered by insurance and has had follow-up exams covered by insurance. He remains MS progression free, with major symptom relief, now almost three years later....
by Jugular
Mon Oct 10, 2011 8:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: the venous system in the brain is forgiving...up to a point
Replies: 3
Views: 1286

Re: the venous system in the brain is forgiving...up to a po

I think this is an excellent point to explain why CCSVI isn't an acute condition, but causes chronic long term problems years in the making. When I saw my stenosed RIJV and all those collaterals, I thought to myself - there's my body, adapting and improvising. It did its best with a bad situation, b...
by Jugular
Sun Oct 09, 2011 10:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Daflon 500mg tracking thread
Replies: 176
Views: 23174

Re: Daflon 500mg tracking thread

Perhaps if we PwMS have one valvular issue in one area, we are more likely to have them in another? Even if the CVI is limited to the brain drainage veins, clinically, only the patently bad ones get angioed. In my case, my LIJV was left completely alone as it seemed to be working "fine". But does i...
by Jugular
Sat Oct 08, 2011 10:31 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Yawn stretch
Replies: 20
Views: 2338

Re: Yawn stretch

The nerves are an electrical circuit and I think it's a momentary boosted signal that powers its way through damaged nerves. If you're like me, it's a one directional thing where you can lift and curl your leg and foot but not tap your foot up and down.
by Jugular
Fri Oct 07, 2011 2:21 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Major Diagnostic Breakthrough in Multiple Sclerosis Achieved
Replies: 50
Views: 7087

Re: Major Diagnostic Breakthrough in Multiple Sclerosis Achi

That's just the sort of thing someone from Hawaii would say.
by Jugular
Fri Oct 07, 2011 9:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Major Diagnostic Breakthrough in Multiple Sclerosis Achieved
Replies: 50
Views: 7087

Re: Major Diagnostic Breakthrough in Multiple Sclerosis Achi

Are people in northern climates more accident prone? Perhaps, with less sunlight to guide them. I read about a new oral MS drug today - terflunomide - which has shown promise in a Phase 3 clinical trial. It works on the premise that MS is caused by an autoimmune disorder. Of course I'm posting this ...