Search found 173 matches

by elyse_peace
Tue Nov 09, 2010 1:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Albany - Mehta
Replies: 42
Views: 6894

hi all, i just spoke with Dr. Mehta's secretary this morning. His practice definitely does just one side at a time, to be safe. And the ultrasound is a separate visit. I live two hours south of Albany. That is a long drive and I do not travel well, so I am disappointed. But... it sounded like I coul...
by elyse_peace
Sun Nov 07, 2010 11:35 pm
Forum: General Discussion
Topic: Do you have memory problems?
Replies: 8
Views: 2045

yup, quite definitely. long-term memory does not seem too bad, but...
when i say i forget things, folks tell me to "write it down.' only trouble is, by the time i get a writing implement in hand, i've already forgotten why i want it!
by elyse_peace
Sun Nov 07, 2010 10:42 pm
Forum: General Discussion
Topic: What was your first MS symptom?
Replies: 47
Views: 38019

hello cardiactec, welcome. lots of info and support here. i've been asked this question many times. now 12 yrs after diagnosis, i can finally come up with some answers: double vision, fatigue, weakness, balance difficulties, lhermitte's sign, reynaud's. diagnosed when i finally went to doctor after ...
by elyse_peace
Wed Nov 03, 2010 6:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: FYI - 3 month post check
Replies: 4
Views: 1567

Gordon,
Congratulations. :) Great news. Glad you feel so well. I was diagosed in '98, but have been ill since '83. Things progressed slowly until '08. Don't have much function left. I'm so glad to learn that one can feel fantastic after this length of time.
by elyse_peace
Fri Oct 29, 2010 11:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: But Doc, I still can't play the piano.
Replies: 13
Views: 3593

1eye,
congratulations! :)
i'm so glad to hear of your small (read HUGE) improvements/changes. your report (thanks for taking the time) helps lift my spirits. I think your good attitude goes a long way toward improving things for you. Keep on smiling. Keep getting better! :lol:
elyse
by elyse_peace
Mon Oct 18, 2010 10:11 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Barb Farrell update
Replies: 110
Views: 30999

cheer, thank you for bringing us this thrilling news. :D patrick, thank you for taking the time at this busy time to let us know. all you other forum friends who have had recent intervention, best wishes for your journey back to yourself. :) rose2, thank you for your update. all this is so good to h...
by elyse_peace
Mon Sep 27, 2010 7:43 pm
Forum: General Discussion
Topic: back again and very confused please please help
Replies: 5
Views: 1472

jules-'
just sending a virtual back-pat and hugs to encourage you to keep on keepin' on. you don't get a choice. they make it quite difficult. so, i wish you strength and patience, and humor so you can laugh at it when it all gets too absurd. :)
by elyse_peace
Sun Sep 26, 2010 9:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Welcome to Open Stand Up MRI!
Replies: 11
Views: 4792

i fail to understand why folks who have issues with claustrophobia do not simply close their eyes to avoid the discomfort of feeling closed in.
by elyse_peace
Sat Sep 25, 2010 8:49 pm
Forum: General Discussion
Topic: A Rant !
Replies: 19
Views: 3503

hi wifehasms - i certainly agree about the ms societies. sincere, but ??? what the heck. they sure do concentrate on spending the funds on print to get more $$$. and they bombard you. MSWalk??? I can barely make it to the bathroom! and the gov't...i don't make enough SS$$ to do much of anything, but...
by elyse_peace
Wed Sep 15, 2010 9:14 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Shoes, CCSVI and MS
Replies: 12
Views: 2446

i do recall AndrewKFletcher speaking to posture and onset on his inclined bed therapy thread.
by elyse_peace
Wed Sep 15, 2010 8:50 pm
Forum: Natural Approach
Topic: What I hear...
Replies: 12
Views: 2263

jimmylegs, thank you again, :) although I'm afraid we've really hijacked tealover's post now. which makes me ask: tealover, how are things feeling today? I hope this conversation has at least made you feel like there is some company out there/here. that is what I find great at this site. all sorts o...
by elyse_peace
Wed Sep 15, 2010 2:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: What is your opinion?
Replies: 7
Views: 2606

I am 60 years old with chronic progression, getting increasingly worse over the past 5 years.
If I do nothing, things will absolutely continue to deteriorate. If I do something (Liberation treatment), problems should at least stop accruing, and I may even realize some relief.
by elyse_peace
Wed Sep 15, 2010 2:04 pm
Forum: Natural Approach
Topic: What I hear...
Replies: 12
Views: 2263

Algis & JL - Thanks :) My friend suggested crushing the pills from the beginning, but I countered with my usual exclamation of YUCK!! :D I've had pills get stuck in my gullet, and when they began to dissolve, I found the taste unpleasant. But I have learned now that unpleasant is relative. As in, "W...
by elyse_peace
Tue Sep 14, 2010 6:40 pm
Forum: Site Support
Topic: regarding this forum, how to follow topics?
Replies: 6
Views: 2306

maybe keep track of subject and location from browser window on a pad?
by elyse_peace
Mon Sep 13, 2010 9:06 pm
Forum: Natural Approach
Topic: What I hear...
Replies: 12
Views: 2263

tealover (me too! the tea, i mean!) i was lucky. the neuro who diagnosed my ms advised me against the drugs, saying the side effects are terrible. it was '98 and the ms society hadn't started pushing dmds yet. On the advice of a naturopathic doc, i started taking supplements. I was doing pretty well...

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