Search found 177 matches

by lovebug
Thu Jul 22, 2010 12:40 pm
Forum: General Discussion
Topic: Gout and MS
Replies: 37
Views: 8586

Gout and MS

I too have gout and MS. So it can happen together. I have had gout for about 3 years and RRMS for 16 months..........
by lovebug
Mon Jul 12, 2010 4:36 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Surgeries in Italy??????
Replies: 4
Views: 3016

Surgeries in Italy??????

Has anybody heard about the Liberation treatment being done in Italy now? Apparently there is a long waiting list. How could we find out who to get in contact with at the hospitals or doctors in Italy who might be doing the surgeries now?
by lovebug
Fri Jul 09, 2010 7:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Understanding Dr. Haacke`s report of my MRV ???
Replies: 3
Views: 1776

Dr. Haacke has been doing some specialized type of testing on MS patients to help to prove or disprove Dr.Zamboni`s theory for CCSVI. He does a much more detailed analysis of the MRV`s of MS patients. He has been on the W5 shows and on the news talking about his testing that he has devised for MS pa...
by lovebug
Thu Jul 08, 2010 7:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Understanding Dr. Haacke`s report of my MRV ???
Replies: 3
Views: 1776

Understanding Dr. Haacke`s report of my MRV ???

While I was having my MRV and ultrasound done at False Creek in May I decided to pay the extra $400.00 to have these results sent to Dr. Haacke for further analysis. Well the final report that I was given can be very difficult to understand. Has anybody else encountered this problem as well. There a...
by lovebug
Wed Jul 07, 2010 9:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 162516

I first e-mailed Dr.Siskin on June 5. I spoke to a lady from the clinic on June 8 and gave her my `demographics`. I am still waiting for a doctor to call back. Everytime the phone rings I pray that it is the doctor calling from this clinic. Does anybody know what the wait time is these days from the...
by lovebug
Thu Jun 10, 2010 5:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Conflicting results from tests for CCSVI
Replies: 1
Views: 1935

Conflicting results from tests for CCSVI

I hope I am posting in the correct place. I am new to this. I have been diagnosed with RRMS for just over one year. I went to Seton Imaging in Buffalo Dec.2009. The results of my MRV show a 2 cm. stenosis of the LJV. The doppler is o.k. I had there radiologist look at this twice to confirm the diagn...
by lovebug
Thu Jun 10, 2010 12:03 pm
Forum: General Discussion
Topic: Conflicts in my test results for CCSVI Now what can I do..
Replies: 3
Views: 1795

Conflicts in my test results for CCSVI Now what can I do..

I have been officially diagnosed with MS since Mar. 2009. In Dec.2009 I went to Seton Imaging in Buffalo and had an MRV and Doppler Ultrasound. My results were that I had a 2 cm. stenosis of the LJV. The radiologist confirmed the results twice for me. I had a Interventional NeuroRadiologist in a Tor...
by lovebug
Fri Jun 04, 2010 8:52 am
Forum: General Discussion
Topic: McLeans Magazine article on new testing sites in Canada
Replies: 1
Views: 1315

McLeans Magazine article on new testing sites in Canada

I read with interest the article in McLeans magazine that Dr. Haacke says that by the end of June CCSVI imaging will be available in 5 sites in Canada. Has anybody heard yet where they will be located? Other than Dr. S. McDonalds clinic in Barrie, Ontario and False Creek Clinic in Vancouver I have n...
by lovebug
Fri May 28, 2010 5:59 am
Forum: General Discussion
Topic: Allodynia--Any possibility for pain relief???
Replies: 4
Views: 3297

Allodynia--Any possibility for pain relief???

I have had allodynia in my both entire arms for one year now after my first MS symptoms began. I have tried Lyrica, Neurontin, Amytriptyline, Oxycontin with no relief at all. Any suggestions from others in the same position! No where to turn anymore...........
by lovebug
Thu May 27, 2010 5:46 pm
Forum: Daily Life
Topic: Allodynia-Does anybody have any suggestions for pain relief?
Replies: 1
Views: 1927

Allodynia-Does anybody have any suggestions for pain relief?

My first major attack of MS approx. one year ago has left me with my both hands to my shoulders with allodynia. I have been on gabapentin, pregabelin, amatriptyline, all kinds of other narcotis like oxycontin with no relief in sight. Help!! Does anybody have any other suggestions. Desperate for any ...
by lovebug
Mon May 24, 2010 11:57 am
Forum: General Discussion
Topic: `Reflux` or `Turbulance` showing in my veins.........
Replies: 4
Views: 1555

`Reflux` or `Turbulance` showing in my veins.........

Has anybody had a doppler ultrasound or MRV that shows a `reflux` problem or `turbulance` in the veins with no actual stenosis? If so what are they and can the liberation treatment by angioplasty help this problem? Confused and no where to turn!
by lovebug
Mon May 17, 2010 12:12 pm
Forum: General Discussion
Topic: RRMS with stenosis that might come and go??????
Replies: 1
Views: 1418

RRMS with stenosis that might come and go??????

Has anybody heard about the possibility that stenosis for patients with RRMS might actualy come and go. Sorry if I am in the wrong area of this site. I am new to posting. I think I did read something about this subject but cannot find it anywhere here now. Could this possibly mean a blood clotting p...