Search found 128 matches

by hannakat
Sun Apr 25, 2010 5:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1841613

Dr. S., Thank you so much for hanging in there for/with us. I hope you get back to plumbing ASAP!!!!!! Question: Are the other doctors in NY learning from your experiences? Is there a sharing of information between those who hope to start/continue testing/treating for CCSVI in the NY and surrounding...
by hannakat
Tue Apr 20, 2010 7:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Another doc doing the procedure!
Replies: 8
Views: 2424

I agree with cheer and msh ... If things were clear sailing that would be one thing but until the kinks are worked out, that doctor isn't going to stand any more of a chance in keeping it going.

Some descretion needs to be used...please..
by hannakat
Fri Feb 19, 2010 9:28 pm
Forum: Low Dose Naltrexone
Topic: FAQ: How long before bedtime to take LDN?
Replies: 5
Views: 3477

Wow... never know what I'm going to learn! I've been on LDN for quite a while now and I was told to take it right before I went to bed, so that's what I do regardless of what time it is. I read somewhere that if you take it too early you might experience problems falling to sleep. Well, this just sh...
by hannakat
Fri Feb 19, 2010 9:13 pm
Forum: Stem Cells
Topic: best new ms treatment?
Replies: 6
Views: 2691

Ikulo .... I have had some positive changes but they have not all 'stuck' if that makes sense. Things seem to fluctuate quite a bit. I had improvement in fatigue for a while but it changes constantly now. The foot drop improved for a while but has returned (I sure hope it goes again!!!) I've had MS ...
by hannakat
Fri Feb 19, 2010 8:50 pm
Forum: Stem Cells
Topic: Got it done - Dr. Slavin's Protocol
Replies: 56
Views: 19895

Greetings all! I also had bone marrow aspiration then stem cell infusion by CTCI. So glad to hear of your good progress Ariehs! In one of your posts you mentioned relapses stopping for 3-5 years and I would like to get more information about this since I've not heard it mentioned before. I've re-rea...
by hannakat
Sat Jan 30, 2010 7:26 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Wheelchair Kamikaze-Some Shameless Self-Promotion
Replies: 46
Views: 6391

You are the run away fav Mark.... go get 'em!

Trish
by hannakat
Fri Jan 29, 2010 4:59 pm
Forum: Stem Cells
Topic: best new ms treatment?
Replies: 6
Views: 2691

I've had stem cell treatment and am now looking for a vascular surgeon or interventional radiologist who is looking at CCSVI. I also have my name on more than one list for clinical trials... I think CCSVI is the way to go. After that, if there is still a level of disability I would consider more ste...
by hannakat
Sun Jan 17, 2010 8:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I'm going to poland january 2011
Replies: 6
Views: 2747

Congrats!

That's the kind of news that can keep you from sleeping! Seems like a long time but it'll go fast.

I'm new and want to ask if you have to send any specific information to Dr. Simka in order to be considered for the treatment. Thanks and GOOD LUCK!

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