This Is MS Multiple Sclerosis Knowledge & Support Community

The depression is probably a side effect of Avonex. This can be treated using anti-depressant medication. I have found that it helps to create a comfortable environment in which to self inject, somewhere relaxing - and I keep my routine similar every week. I usually sit on the floor (!) because my l...

Hi Kelly, I have exactly the same problem. Very very occasionally I change the day, but I prefer to keep to routine. Also the neurologist is pretty keen that I stick to routine as far as possible. Maybe ask your neurologist for an opinion? Smokey.

Hi Garyak, thanks for your comments. Do you think a change from 6/75 to 6/6 post procedure would be due to the effect of the procedure? My vision was a steady 6/75 in the left eye post onset of ON. When my vision deteriorated again after a couple of weeks post procedure I wondered if I had been 'see...

My ON improved from 6/75 to 6/6 after angioplasty. Unfortunately this improvement was not maintained. I estimate it lasted a couple of weeks. I have had a minimal ongoing improvement. Hopefully the next angioplasty will lead to a lasting effect.

Hmm. 'Awakenings' although fascinating is also very challenging and reminds us that 'cures' are not always cures. The 'cure' was temporary.

Yep, intensity of exercise for the upper body/neck after angioplasty concerned me too. Guess this one has still to be resolved.

I am experiencing anxiety within a couple of hours of injecting. I can function, but I am miserable for several hours with the anxiety, fever, chills, and pain. I have been on Avonex 1 year--since diagnosis in Aug. 2009. The side effects are still quite severe for the first 24-36 hours after inject...

Hi, I don't use ice either. I find if I plunge the needle into my thigh quite quickly then it doesn't hurt so much. I rotate the sites on either thigh..towards the outside of the thigh. I use either panadol or nurofen. I inject at about 11am and then start feeling 'off' from about 7pm and into the n...

Without stents, allow for a couple of days. The first day is pretty ordinary, but by the third, you will feel more normal, with, hopefully, some improvements. I dont know about the length of time for recovery following stenting.

I stopped being (so) afraid once I had discovered CCSVI. It is not a miracle cure, but it gave such hope. Hope is so important. It is also really beneficial to develop a group of others to communicate with. Not that I don't continue to feel afraid now and again, but far less so, and far less often.

Thanks guys....

Hi....any thoughts about exercise, type of, and frequency of, following liberation? What to do, what not to do? I do Pilates, but have been a little worried about any negative effect of the upper body exercises. This is all uncharted territory, so suggestions welcome.

nico, the Nightmare was before CCSVI was identified. You know, I've had two procedures now - each with its share of success and failure. I can tell you the second procedure I had was so improved upon the first, and there was only 3 months in between. Wait another month or two, and I believe the dia...

Too true!

May Occam and Zamboni be eternally cited!

It's a privilege to be at the cutting edge.

Awwww, thought I might have been original.....never mind. Still a damn fine principle.