Search found 93 matches

by smokey
Mon Jun 07, 2010 10:58 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The road to recovery.....
Replies: 30
Views: 6569

Great to hear from you......sounds like you're making good progress! :lol:
by smokey
Sat Jun 05, 2010 9:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Association between site of vein narrowing and MS symptoms?
Replies: 3
Views: 2025

Association between site of vein narrowing and MS symptoms?

Are there any research findings about the site of vein narrowing, that is, which vein and where in the vein, and particular MS symptoms?
by smokey
Wed Jun 02, 2010 9:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Heat intolerance and angioplasty
Replies: 26
Views: 5233

if not for the internet dr. zambonni i feel would not even gotten as far as he has Is "the internet" Cheerleader's new nickname? :wink: One of Jeff's most profound changes was the immediate relief of his heat intolerence. Before his stenting, he was unable to spend any time outside of air condition...
by smokey
Wed Jun 02, 2010 5:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Heat intolerance and angioplasty
Replies: 26
Views: 5233

Thanks

Thanks everyone. Looks like I need to be more patient, it might be that I'm expecting too much too soon. It's only a week after procedure. Also, I'll investigate a change of diet.
by smokey
Wed Jun 02, 2010 5:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: blood thinner after angioplasty
Replies: 4
Views: 1526

Re: blood thinner after angioplasty

Hi there, Just wondering.....was anyone told to take any kind of blood thinner (other than the 7 days of injections) after angioplasty? IF not, is anyone taking aspirin to keep the blood a bit thinner to stop the veins closing up again? There was no real advice given after my guy had his procedure ...
by smokey
Tue Jun 01, 2010 9:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Heat intolerance and angioplasty
Replies: 26
Views: 5233

Heat intolerance and angioplasty

Could anyone who had heat intolerace as a symptom and has had an angioplasty please comment about whether the symptom improved. If there was an improvement, was this an immediate effect or did it take a few days or weeks? Thanks look forward to hearing from you.
by smokey
Fri May 28, 2010 3:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Optic Neuritis and CCSVI
Replies: 28
Views: 7516

My first symptoms was ON in the left eye. I was found to have a narrowed jugular vein, in two places, on the left side.
by smokey
Thu May 27, 2010 11:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI tracking project-POST PER P.1 FORMAT ONLY
Replies: 163
Views: 286165

Angioplasty 26th May 2010

MS HISTORY Name: Smokey Male/Female: F Age: 55 Diagnosis August 2009 Date(s) & type of neurological diagnosis: CIS/RRMS? Lesion locations: number: 5 MS treatments: Avonex, Lexapro MS symptoms before stenosis intervention: ON in LEFT eye/dizziness/heat intolerance/LEFT side of face feels slightly odd...
by smokey
Mon May 24, 2010 11:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: RE:CCSVI PROCEDURE IN SYDNEY
Replies: 8
Views: 2050

:-)

Wonderful news Seeva. Couldn't be more pleased for you. :D
by smokey
Fri May 21, 2010 3:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 161345

Thanks

To Kerri, Naomi, Leanne and Louise. Well done you! :D
by smokey
Tue May 18, 2010 11:01 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: deleted
Replies: 14
Views: 2740

Re: CCSVI treatment in Western Australia

[quote="Ned"]On May 17th I had a venogram and angioplasty in Perth. All went well, and have had improvements already.



Great to hear, Ned. Look forward to hearing about your improvements.
by smokey
Thu May 13, 2010 6:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Survey Wish lists for treatment outcomes of CCSVI
Replies: 23
Views: 3793

heat intolerance
visual effects
fatigue
clumsiness
stop progression (1)
by smokey
Sun May 09, 2010 11:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ginger's blog
Replies: 2
Views: 1667

Thanks

Many thanks....
by smokey
Sun May 09, 2010 9:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ginger's blog
Replies: 2
Views: 1667

Ginger's blog

Hi, does anyone have a link to Ginger's blog...it says on FB CCSVI a cure, that there are some updates.....Thanks.....Smokey
by smokey
Tue Apr 27, 2010 10:42 pm
Forum: Avonex
Topic: Anybody take Interferon and has no side effects?
Replies: 24
Views: 14109

Avonex side-effects

I wish!

I experience general yuckiness for about 12 hours.