Search found 93 matches

by smokey
Fri Apr 16, 2010 12:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 165194

Next video

Sorry, the quote thing didn't work!

Kerri said......

Will do another video next week but just to say I am going from strength to strength as the weeks go by :D

Smokey said!

Really looking forward to the next video. Go Kerri! :) :)
by smokey
Sun Apr 11, 2010 1:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 165194

Re: Clinical Trial in Melbourne

Prof. T intends to consult with neurologists at the end of the pilot clinical trial.....could take quite a while to put together a joint research proposal - and very challenging to structure it!! I can't imagine many people would be stepping up to be controls! I can appreciate fully why further tri...
by smokey
Fri Apr 09, 2010 10:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 165194

From a CTV W5 report on CCSVI treatment in Kuwait. Sinan is an interventional radiologist: 'Sinan says all of the patients saw improvements in their MS symptoms, with some noticing "dramatic" results. "On one day, on March 3, we did three patients. Two had dramatic improvements on the table and star...
by smokey
Fri Apr 09, 2010 3:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 165194

Re: CCSVI positive

Hi, just to clarify.....I was scheduled for a consultation with Prof. T, not an angioplasty. I'm glad I had the consultation. I'm clearer about the/my condition, if not what it might mean for MS! I guess we're still all in the dark on this one. My understanding is that those whose ultrasound results...
by smokey
Fri Apr 09, 2010 1:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 165194

Re: Clinical Trial in Melbourne

Smokey, The initial (pilot) clinical trial @ the Alfred has already begun (first 20-30 angioplasties) and an evaluation of these patients' clinical outcomes in May-June will determine an expanded clinical trial's framework. Evaluations will probably continue over at least 18 months. This process wi...
by smokey
Thu Apr 08, 2010 10:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 165194

Clinical trials

Mind you, clinical trials take forever to set up. Not happy Jan! :-(
by smokey
Thu Apr 08, 2010 9:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 165194

CCSVI positive

Hi everyone - well, saw Prof. T today and here are the results. 'The superior right internal jugular has a stenosis of greater than 50%. There is also a mid-vein stenosis present measuring greater than 50%. Left jugular vein all normal'. And yes, it's true that Prof.T is not accepting any new patien...
by smokey
Mon Apr 05, 2010 5:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 165194

Media exposure

Hey Kerri, I wouldn't have known about CCSVI, ultrasounds or Prof T without you! I'm sure the medico's who are exploring CCSVI are serious and passionate about what they are doing, have a good understanding of the media and also the politics within the medical profession! Boundaries of understanding...
by smokey
Sun Apr 04, 2010 12:36 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 165194

Thursday

Have my ultrasound on Thursday morning in Melbourne....here's hoping. See Prof T on Friday.....here's hoping even more!
by smokey
Sat Apr 03, 2010 11:45 pm
Forum: MS in the Golden Years
Topic: flash of light in right eye
Replies: 10
Views: 34001

See below for optic neuritis symptoms....

Signs and Symptoms All of the following symptoms may not occur in all cases; however, they are the most common problems associated with Optic Neuritis. •Pain with eye movement (more the 90% of patients) •Tender, sore eye •Mild to servere decrease in central vision •Dull, dim vision •Reduced color pe...
by smokey
Wed Mar 31, 2010 4:01 pm
Forum: Avonex
Topic: Avonex, Betaferon or Rebif?
Replies: 19
Views: 12446

Panadol

I've found that Panadol has worked well - once I sorted out the stomach ache from Avonex! You mightn't have stomach aches. It's not easy accepting the diagnosis, and I struggled with this too. I've been doing fine with Avonex, and I'm very interested in CCSVI...this website has been wonderful for fi...
by smokey
Wed Mar 31, 2010 12:19 am
Forum: Avonex
Topic: Avonex, Betaferon or Rebif?
Replies: 19
Views: 12446

Avonex

Hi - I had an 'isolated incident' about 8 months ago, with optic neuritis - and I've been injecting with Avonex since. I have a severe needle phobia so it took me about 6 months to desensitise, but I'm injecting independently now. It's better (for me - others might be different) to inject at about 1...
by smokey
Wed Mar 31, 2010 12:08 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Mehta in Albany, NY - Thank you, Kacey!
Replies: 315
Views: 71382

Australia

wish I lived in Albany! Sigh.
Do you know of any clinical trials in Australia?
by smokey
Wed Mar 24, 2010 12:58 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Thanks Helen
Replies: 0
Views: 966

Thanks Helen

Hi - just found the CCSVI Aussie Action forum - great idea. I'm booked in for an ultrasound on 8th April, then to see Prof T on 9th April. I'm watching all of your news with interest. Smokey.
by smokey
Tue Mar 23, 2010 6:22 pm
Forum: Introductions
Topic: Diagnosed 8 months ago....
Replies: 2
Views: 1898

Thanks for your welcome NHE, this is a terrific forum. Very helpful.....supportive.

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