Search found 125 matches

by NotFound
Fri Jan 14, 2011 10:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Euromedic Poland and the Azygous vein - please help!
Replies: 17
Views: 4729

My azygous was completely missed in Poland, though not Euromedics, but Dr. Kostecki. I got a second opinion upon arrival back to USA. Interestingly, the assessment of the stenosed azygous was made from the MRV done in Poland, but I had another Dr. (in USA) analyse it and clearly point out the place ...
by NotFound
Sat Jan 01, 2011 9:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Can we help Prof. Haacke?
Replies: 16
Views: 3924

Yes!

He was the one who re-evaluated my MRV after I was pronounced "just fine" in Poland.

Whatever I have in my PayPal is going to the posted address!
by NotFound
Fri Dec 31, 2010 4:14 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani ASKS a question
Replies: 109
Views: 20969

I somewhat agree with the accelerated aging notion. I do feel like I aged about 30+ years since the onset of MS (3 years ago) - shortness of breath when performing even the slight activity, bad memory, bad sleep, incontinence, aches and pains - lots of this comes when you get older. But not when you...
by NotFound
Thu Dec 30, 2010 7:21 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ccsvi tomorrow
Replies: 25
Views: 4518

Congratulations on having it done!

I know we all expect immediate results, but I did not get them either. Will join you in patiently waiting.

Open veins are good no matter what :)
by NotFound
Wed Dec 29, 2010 8:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani ASKS a question
Replies: 109
Views: 20969

Inability to list those symptoms util reading the posts of others and exclaiming "Oh yes! I have THAT!" :oops:
by NotFound
Tue Dec 28, 2010 8:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New thread for L
Replies: 67
Views: 9737

I do not think Lyon's job is relevant to any discussion at any time here on this board. I have said this before too, I find it strangely upsetting, it comes across as an attempt to cut him down to size. If it is ok to use "Lyon is a gardener" as a way to make a point, then it would be ok to use "Ce...
by NotFound
Tue Dec 28, 2010 6:05 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New thread for L
Replies: 67
Views: 9737

Re: New thread for L

Why do you repeat yourself over and over? Why not post in the Stem Cells forum and watch as no one disagrees? Why post, what purpose does it serve to repeat your opinion over and over that the CCSVI theory may have no basis? I was wondering the same thing, Lyon. You said that you yourself do not ha...
by NotFound
Mon Dec 27, 2010 3:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ccsvi tomorrow
Replies: 25
Views: 4518

Image
by NotFound
Mon Dec 27, 2010 3:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New thread for L
Replies: 67
Views: 9737

Re: New thread for L

Why do you repeat yourself over and over? Why not post in the Stem Cells forum and watch as no one disagrees? Why post, what purpose does it serve to repeat your opinion over and over that the CCSVI theory may have no basis? I was wondering the same thing, Lyon. You said that you yourself do not ha...
by NotFound
Sun Dec 26, 2010 1:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: cheaper options than $25,000
Replies: 19
Views: 4905

Pacific Internationalists (Costa Mesa, CA):

$8,000 - venoplasty

plus

$2,000 if stenting is required (not per stent, $2,000 for any number of stents)

$250 initial consultation

Require $1,000 deposit (which then is deducted from the cost of the procedure)
by NotFound
Sun Dec 26, 2010 12:58 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cost of Liberation procedure
Replies: 30
Views: 12670

Re: Cost of CCSVI surgery

CCSVI surgery in California------- Day 1-- $250.00 consultation fee Day 2-- Venogram/Angioplasty/Stents $8,000.00 Day 3--Consultation -no charge MRV can be scheduled on Day 1 if needed at extra cost or Doctor will review patients MRV and DU done somewhere else first. Plus $2000 if stenting is requi...
by NotFound
Sat Dec 25, 2010 11:01 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: blood pressure
Replies: 2
Views: 1447

My BP was always (as in - way before Dx with MS, after Dx with MS, recently before Liberation, after liberation, what-have-you) been within the textbook 120/80 (+/- 2 or 3 either way)
by NotFound
Sat Dec 25, 2010 1:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Can venous blood clots dissolve?
Replies: 11
Views: 5618

Whoa Merlyn, thank you!

Let me read up if it can be taking in conjunction with pharmaceutical blood thinners (like Coumadin for example)
by NotFound
Fri Dec 24, 2010 10:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Mags is off to Poland... round 2 :)
Replies: 32
Views: 5704

mags4short wrote:
Here is wishing each and every one of you a Merry Christmas and a Healthier New Year.
Merry Christmas to you too, Mags. Wonderful news about the doctor! After-care is very important.
by NotFound
Wed Dec 22, 2010 3:46 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 6days on Heperin and last night had heavy bleeding nose ...
Replies: 6
Views: 1806

Re: Talk to your surgeon/radiologist

Please talk to the person who prescribed the heparin as soon as possible. This is not a matter for a chatroom discussion, rather a medical one. MarkW I agree with Mark. Internal bleeding can just as bad as a clot. I am not talking little under skin bleeding = bigger bruises. There is a possibility ...