Search found 125 matches

by NotFound
Thu Dec 09, 2010 9:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 4 week update post CCSVI procedure
Replies: 12
Views: 2841

Congratulations Diva!

Hello, Doctor! Love reading your posts :)
by NotFound
Sat Dec 04, 2010 6:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Does your Neurologist know about CCSVI?
Replies: 11
Views: 2602

I have no idea :lol:

Never crossed my mind to talk to her about it. I am not being nasty- I just never "used" my neurologist to treat my MS, only go get the paperwork for Disability, placards for my car, etc.,

You might have guessed in, I don't believe in CRAB's :lol:
by NotFound
Sat Dec 04, 2010 6:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: If you are planning to avoid stents...
Replies: 22
Views: 3328

I think the point of Bruce123's post is being missed: The problem is that there is the chance that they could damage the wall of the vein while doing the procedure and would need a stent to repair it. Sometimes during ballooning of a vein, it can rupture. And sometimes a stent is needed for repair ...
by NotFound
Sat Dec 04, 2010 6:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Stitch stent to vein to prevent migration?
Replies: 12
Views: 2045

I thought blood clots can happen with venoplasty as well as with stents. ~HP Absolutely. Any sheer stress to the epithelial cells will activate the clotting factors. So this is just a matter of a degree - venoplasty (in my understanding) will in general impose relatively lesser degree of such stres...
by NotFound
Fri Dec 03, 2010 9:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Stitch stent to vein to prevent migration?
Replies: 12
Views: 2045

There are two (at least the two that stood out for me, there are probably more) issues with stents: Yes, migration - I've read about what, 2-3 cases? Also - clot formation in / around the stent. I've seen this mentioned way more than migration. (No, I can not provide the links to where I read about ...
by NotFound
Fri Dec 03, 2010 9:21 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: November 30, 2010-my new birthday!
Replies: 16
Views: 3555

I am crying too. So happy for you!

May you keep on improving!
by NotFound
Tue Nov 30, 2010 8:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Bill Code is treated for CCSVI
Replies: 13
Views: 3151

Yay! Go Pacific Interventionists! Congratulations Dr. Bill!
by NotFound
Tue Nov 23, 2010 11:43 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Have I missed something
Replies: 5
Views: 1456

Are we all Lactose intolerant Adults of all mammals should be. Gordon, I don't know why you are raising this question, but as I understand it, YES. Children under 5 years are okay. Then we outgrow our ability to digest lactose. Yes. Most of us at least. If forced, body still can produce lactase (th...
by NotFound
Mon Nov 22, 2010 11:11 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: JCB's Liberation Journey PPMS
Replies: 54
Views: 11214

Good luck JCB!
by NotFound
Mon Nov 22, 2010 10:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Lyme Disease and CCSVI
Replies: 40
Views: 10625

Re: No Correlation Between Lyme and CCSVI

. However, MS and Lyme are not correlated and must be diagnosed and treated as two diseases. I disagree. MS is not a disease per say. MS is a compilation of symptoms (scattered CNS lesions affecting various body functions). The causes of those symptoms can be Lyme, can be CCSVI, can be mercury pois...
by NotFound
Mon Nov 22, 2010 10:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Are some of us being under-treated?
Replies: 36
Views: 6038

Re: Under diagnosis is likely

I think that early adoptors could be under diagnosed rather than under treated. Well, they were IN my veins. It's not like I only had Doppler, I had full protocol, including the catheter venography. I did see that perfect flow through my jugulars on the venography CD. However catheter venography im...
by NotFound
Mon Nov 22, 2010 1:00 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Lyme Disease and CCSVI
Replies: 40
Views: 10625

Thank you.
by NotFound
Sun Nov 21, 2010 9:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Are some of us being under-treated?
Replies: 36
Views: 6038

My concern when choosing a European doctor was that the azygous vein was being undertreated, judging by patient testimonials on German and Dutch web sites. This is what happened to me. I was dismissed in Poland as having a "perfect flow", however when a certain (well know here. at TIMS) doctor look...
by NotFound
Sun Nov 14, 2010 10:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: smoking and ccsvi
Replies: 58
Views: 9382

Well, go figure.

My MS showed itself full blast a few month after I quit smoking (smoked for 17 years)
by NotFound
Sun Nov 14, 2010 10:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Stent 3 months post procedure
Replies: 4
Views: 1949

Image

Happy for you, Gordon :)