Search found 46 matches

by Sweetyhide
Tue Jul 08, 2008 1:21 am
Forum: Tcelna (Tovaxin)
Topic: Who's next for the 100 Day (+) Club?
Replies: 50
Views: 10294

My first injection is July 22nd.
So I am only 7 days behind you.
Which is weird since I was about a month ahead of you in the first part.
I don't know why I keep dwelling on being behind, I guess I am just tired of waiting!
by Sweetyhide
Fri Jun 27, 2008 4:01 am
Forum: Tcelna (Tovaxin)
Topic: Questions and responses to the 100 plus days club members
Replies: 72
Views: 13806

I have my first shot scheduled!
July 22nd.
Took long enough.
I am way off schedule and thought I would be coming up to enter the 100 day club by now. But all the WAITING, for whatever reason, has put me back a little.

I updated my blog and will continue to write there as best I can.
by Sweetyhide
Mon May 05, 2008 6:37 am
Forum: Tcelna (Tovaxin)
Topic: If you already had your big blood draw
Replies: 10
Views: 3373

I hope you had a big breakfest also! I didn't have any issues, but I am not 107lbs anymore either. Everyone always gasps at the large amount, it doesn't bother me at all. I actually was waiting for some drama to happen (dizzy, faint) but nadda. I didn't remember hardly anything from the last blood d...
by Sweetyhide
Tue Apr 22, 2008 2:56 am
Forum: Tcelna (Tovaxin)
Topic: RESULTS WILL VARY!
Replies: 144
Views: 30733

Av8rgirl, I must have missed your post about not producing the MRTC's. Did they tell you that they will test again in 3 months? (or was it 4?) Although I didn't have any severe relapses, I did have times where I actually wanted to try steroids because I felt so bad. I had swore I would never go back...
by Sweetyhide
Tue Apr 22, 2008 2:48 am
Forum: Tcelna (Tovaxin)
Topic: Extension blood draw rescheduled!
Replies: 136
Views: 23821

Was wondering where I should stick this bit of news. Looks like an approprate thread! I am scheduled for the big blood draw Wed. 30th. Which puts me around June (or begining of July) for my first treatment. Dont get me wrong, I am happy things are moving forward, but I am WAY off schedule. 3 months,...
by Sweetyhide
Tue Apr 15, 2008 1:47 am
Forum: Tcelna (Tovaxin)
Topic: First extension dose today
Replies: 71
Views: 13721

I would call if I were you also. I figured that I would get in to lifebloods schedule this month, but now I am not so sure. April 2nd the lifeblood lady called me with all the questions. She said they were still scheduling for April so it would probably get in this month. 2 weeks and I haven't heard...
by Sweetyhide
Sun Apr 13, 2008 2:12 pm
Forum: Tcelna (Tovaxin)
Topic: TOVAXIN ROLE CALL
Replies: 339
Views: 51384

Hi Deege,

What a blow! I feel for ya.
I am so sorry about what happened.
From your description it makes a mind wonder what happened exactly.
The thing is we wont know for some time.

I also would like to know what state, if you care to share.
by Sweetyhide
Tue Apr 08, 2008 10:07 am
Forum: Tcelna (Tovaxin)
Topic: TOVAXIN ROLE CALL
Replies: 339
Views: 51384

Hi Av8rgirl!
Image
Good to see ya over here and glad to see you made it through the year!
by Sweetyhide
Fri Apr 04, 2008 2:40 am
Forum: Tcelna (Tovaxin)
Topic: First extension dose today
Replies: 71
Views: 13721

Put the phone down and enjoy your vacation! I gave blood to test for the MRTC's on Feb 7th. Called my coordinator because it was taking too long to hear back. She emailed them and they faxed her back with the go ahead on March 28th. I just got the LifeBlood call (with questions) on April 2nd. Waitin...
by Sweetyhide
Thu Apr 03, 2008 2:58 pm
Forum: Tcelna (Tovaxin)
Topic: First extension dose today
Replies: 71
Views: 13721

I'm awaiting the phone call from LifeBlood for the blood draw OR a phone call from my neuro's office telling my I didn't make MRTC's. Marcia, It was my understanding from AIN that Opexa would call you directly concerning whether or not they detected MRTC's. So after 3 weeks you still have not heard...
by Sweetyhide
Thu Apr 03, 2008 2:08 am
Forum: Tcelna (Tovaxin)
Topic: First extension dose today
Replies: 71
Views: 13721

http://members.aol.com/sweetyhide2/smileys/toohappy.gif yeah Lew! Good to hear someone has started and also how it went. I believe you are the first person to report on the web. Some of your info is very informative! :wink: I am waiting for the blood draw schedule. They just called me with all the ...
by Sweetyhide
Fri Mar 28, 2008 4:39 pm
Forum: Tcelna (Tovaxin)
Topic: Opexa News
Replies: 61
Views: 16433

Holy Cow! I hope it's just a misunderstanding. Wasn't even aware that you could get "booted" out of this trial. Wonder why he deleted his posts? Was he REALLY pissed? could be why. But I just went to his blog and it's gone too! ???? 8O ???? He sends me messages sometimes. Maybe he will again. Honest...
by Sweetyhide
Fri Mar 28, 2008 4:17 pm
Forum: Tcelna (Tovaxin)
Topic: Opexa News
Replies: 61
Views: 16433

yeah! WTF?
I didn't get to read his original posts so I am wiggin' out a little here.
What is going on??
by Sweetyhide
Mon Jan 28, 2008 12:19 pm
Forum: Tcelna (Tovaxin)
Topic: Extension blood draw rescheduled!
Replies: 136
Views: 23821

Speaking of rescheduled appts.
My first appt. for the rollover was just rescheduled.
Instead of tomorrow I have to wait another week.
Coordinator said something about paperwork delay.
HELLO!!! Ever heard of a fax?!? geez

Still hanging in though.
by Sweetyhide
Tue Jan 08, 2008 12:59 am
Forum: Tcelna (Tovaxin)
Topic: Extension blood draw rescheduled!
Replies: 136
Views: 23821

*snipped for space* The first couple of times that I got my injections the vaccine caused a painful feeling in my arms. It basically hurt when the vaccine was going in (NOT when the needle went in), it didn't exactly sting but it hurt. After that the injections never hurt again. It could have been t...