Search found 66 matches

by hargarah
Wed Jul 06, 2016 7:56 am
Forum: General Discussion
Topic: Male Cath Question....
Replies: 7
Views: 1858

Re: Male Cath Question....

1) You probably have a UTI. If you have neuro pain and it has increase, this is also a sign. I would get on CIPRO as quick as possible 2) I cath 4 times a day, and haven't had a UTI in 5 years (seems incredible). I found the key is to have immaculately clean hands. I use a 70% alcohol-based hand san...
by hargarah
Thu Apr 07, 2016 7:09 am
Forum: General Discussion
Topic: Steroid pulse on SPMS (no relapse), reason for improvements?
Replies: 19
Views: 1625

Re: Steroid pulse on SPMS (no relapse), reason for improveme

The correlaton of the MRI to actual MS Symptoms is about 30%. Otherwise stated, the MRI and related plaques/lesions only help to tell 30% of the story. There are so many other things going on in the brain that are unknown and that is why you can be PPMS/SPMS and have no worsening lesions...but have ...
by hargarah
Thu Jan 07, 2016 12:23 pm
Forum: General Discussion
Topic: MS Pain
Replies: 6
Views: 806

Re: MS Pain

Nerve pain is one of the toughest things to treat. In most cases, a lot of the common meds (Ibuprofen, Opiates) do not work. Typically, Nerve Pain is best treated with Anti-Tremors/Spasm medications. The BEST one is Elavil. Also, I found Gabapentin did nothing, but Lyrica worked best. Talk to your n...
by hargarah
Mon Mar 30, 2015 6:30 am
Forum: General Discussion
Topic: pain
Replies: 20
Views: 1773

Re: pain

I have the same pain, a burning sensation. #1: Take Amitryptalene (Elavil) - Cheap Drug, but the BEST. It hits ALL the neurotransmitters. #2: Take Lyrica, if possible. It is for diabetic nerve pain, but works just as well for MS. As we have damaged nerve pathways.l Other options: - Tegretol - Gabape...
by hargarah
Tue Jan 27, 2015 7:47 am
Forum: General Discussion
Topic: Dr. Michael Arata;Autonomic Specialists
Replies: 6
Views: 1190

Re: Dr. Michael Arata;Autonomic Specialists

It lasted for about 2 months. I would not do it again. But it depends on the person...you may have better results if you have RRMS.
by hargarah
Mon Jan 26, 2015 9:03 am
Forum: General Discussion
Topic: Dr. Michael Arata;Autonomic Specialists
Replies: 6
Views: 1190

Re: Dr. Michael Arata;Autonomic Specialists

I went there for CCSVI - to unblock veins. It gave me short-term relief, better balance and more energy. Dr. Arata is very thorough and his methodology for treating CCSVI is quite extensive. If you are considering going there - they have packages and even deals with Hotels. They will provide transpo...
by hargarah
Fri Jan 23, 2015 9:47 am
Forum: General Discussion
Topic: Dr. Michael Arata;Autonomic Specialists
Replies: 6
Views: 1190

Re: Dr. Michael Arata;Autonomic Specialists

He is excellent and Synergy is one of the best places. I went there.
by hargarah
Mon Dec 22, 2014 7:36 am
Forum: General Discussion
Topic: I need urgent help. I am considering suicide.
Replies: 18
Views: 3916

Re: I need urgent help. I am considering suicide.

Grow some BALLS. I have had MS for 20 Years + and I fight everyday. Be a MAN...not going to give you some stupid "loving and kind" reply!!!!
by hargarah
Fri May 23, 2014 9:14 am
Forum: General Discussion
Topic: the question I have been afraid to ask
Replies: 19
Views: 2670

Re: the question I have been afraid to ask

I had many of the same things as you. Diagnosed at 19 with Optic Neuritis.

Don't worry about the lesions/plaques. There is only a 30% correlation between plaques and symptoms.

Avoid stress...studying was the worst for me.

GL
by hargarah
Wed Jan 08, 2014 7:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inconsistencies between the current definitions of MS
Replies: 5
Views: 1050

Re: Inconsistencies between the current definitions of MS

I finally got something interesting out of my Neurologist's mouth... My Aunt, who is a Doctor in the U.S., told me of a woman who passed away many years ago. When they did the autopsy for the cause of death, they found the she had "plaques" all over her brain...but she didn't have M.S. My neuro said...
by hargarah
Tue Nov 19, 2013 7:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MS specialist accused of defaming heart surgeon in email abo
Replies: 17
Views: 2796

Re: MS specialist accused of defaming heart surgeon in email

I was SOOOO THRILLED when I saw this article. Finally Dr. Freedman and his ego got him into trouble. It is the best Christmas gift I could ever get...having his BIG STUPID MOUTH being "quashed" is a benefit to all PWMS. Besides him calling CCSVI a "hoax", Dr. Freedman called me a guinea pig, the fir...
by hargarah
Tue Sep 10, 2013 8:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ALBANY RESEARCHERS CANCEL MS CLINICAL TRIAL
Replies: 18
Views: 2704

Re: ALBANY RESEARCHERS CANCEL MS CLINICAL TRIAL

This is truly unbelievable. Dr. Mehta saying NO to $$$$$.

I am very surprised. After all, he marketed the "price per vein" special treatment.
by hargarah
Thu Dec 13, 2012 9:37 am
Forum: Stem Cells
Topic: The Real PROBLEM
Replies: 2
Views: 1846

The Real PROBLEM

I have been very fascinated with Stem Cells and their potential to help MS Patients. Thus, I asked my neurologist the following question, "There is so much promise in Stem Cells to help treat MS Patients...so why the long wait?" His answer, "$$$$$$". The Drug Companies don't want to put any resource...
by hargarah
Tue Dec 11, 2012 9:33 am
Forum: Low Dose Naltrexone
Topic: Doctor is Ottawa & Place to Fill
Replies: 1
Views: 3073

Doctor is Ottawa & Place to Fill

I was just wondering if anyone knew a Doctor/Neuro in Ottawa that would be willing to prescribe LDN and if there was a place in Ottawa, Ontario that would fill it?

Thanks.

H.