Search found 66 matches

by hargarah
Mon Apr 02, 2012 2:51 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Long time lurker...my journey begins Tuesday
Replies: 68
Views: 6192

Re: Long time lurker...my journey begins Tuesday

Please remember that the ultrasound is just a starting point, and as I learned at Synergy - there are a lot of False Positives. Our veins are 'like a box of chocolates'...you never know what you are going to find..until you actually go inside and look.

Best of Luck!!
by hargarah
Mon Mar 12, 2012 9:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: QUESTION: No Change One Week Post-Op- Did anyone get better?
Replies: 8
Views: 1336

Re: QUESTION: No Change One Week Post-Op- Did anyone get bet

I had my Azygos and both Jugulars. So it has been 10 days? So there is a 50% chance that they may have re-stenosed already?
by hargarah
Sat Mar 10, 2012 10:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: QUESTION: No Change One Week Post-Op- Did anyone get better?
Replies: 8
Views: 1336

QUESTION: No Change One Week Post-Op- Did anyone get better?

Hello, I had my procedure done in California exactly one week ago. I felt minor changes in standing and walking, but nothing major. Did anyone feel very little in the beginning, but saw significant improvement after some time? I have RRMS and can still walk, but have problems with Gait, Balance and ...
by hargarah
Fri Feb 17, 2012 7:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: TAKING MATTERS INTO OUR OWN HANDS: What would you do?
Replies: 6
Views: 1209

Re: TAKING MATTERS INTO OUR OWN HANDS: What would you do?

To me my health is priceless.

This "scheme" can be done by every MS patient...by themselves. It will take them a few months, but they will have the full amount to pay for their procedure!
by hargarah
Thu Feb 16, 2012 9:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: TAKING MATTERS INTO OUR OWN HANDS: What would you do?
Replies: 6
Views: 1209

TAKING MATTERS INTO OUR OWN HANDS: What would you do?

I am writing this post, after a lot of thought and consideration. I have been on this site for over 2 years....and read some amazing posts and shared great information. I have seen the Canadian Government make a lot of promises, but at the end of the day...they have done **** all!! Essentially, our ...
by hargarah
Thu Jan 26, 2012 5:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Charity Skydive for MS
Replies: 3
Views: 913

Re: Charity Skydive for MS

Let's get Dr. Freedman to jump! And render his parachute inactive...oops :)
by hargarah
Mon Jan 16, 2012 6:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New York Albany clinical trial - when?
Replies: 7
Views: 1375

Re: New York Albany clinical trial - when?

These are really not studies - they are just a vehicle for Mehta and company to make $. A realy study does not charge 6k+ to participants. Very clever disguise, I must admit. As for Saskatchewan's decision - this is the stupidest thing that a Canadian province can do! It sends a message that we Canu...
by hargarah
Wed Jan 11, 2012 6:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MS clinic's practices stir alarm
Replies: 4
Views: 2350

Re: MS clinic's practices stir alarm

Leave it in the Government's hands....they will fix the problem! Bunch of incompetent retards!
by hargarah
Thu Dec 29, 2011 7:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: J.K. Rowling
Replies: 28
Views: 3686

J.K. Rowling

I was listening to Dr. Hubbard's latest YouTube video, where he explained why a few million dollars would do the trick for MS Patients.

So I remembered that the Harry Potter Billionairess gave 10 million pounds ($15,500,000) for MS Research.

Simple question: Where did that money go?
by hargarah
Tue Dec 06, 2011 7:24 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadian TV Documentary about CCSVI - Urgent Request!
Replies: 19
Views: 3459

Re: Canadian TV Documentary about CCSVI - Urgent Request!

Loreena, This is great. Please make sure you speak to Dr. Mark Freedman, of the Ottawa General Hospital MS/Neurology Unit. He is such a driving force in the CCSVI endeavour. He may make you sick and want to puke because of his arrogance and "God" complex...but look past that! After all, he being one...
by hargarah
Tue Nov 29, 2011 8:46 am
Forum: General Discussion
Topic: fear for my daughter
Replies: 10
Views: 1985

Re: fear for my daughter

When she stands upright and bends her neck down, does she feel electricity in her back?

That was the red flag for me - Lhermitte's sign - that gave up the jig for me!
by hargarah
Fri Nov 18, 2011 7:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Mehta's clinical trial prelim. results announced-
Replies: 33
Views: 5243

Re: Dr. Mehta's clinical trial prelim. results announced-

My neuro said that this study is a means to an end - the end being $$$$. A clinical study does not charge each patient $6K, with a 66% chance of having it done - if not, your $6K gets flushed down the toilet into Dr. Mehta's pocket! Interesting disguise...I can't wait to see what other's will come u...
by hargarah
Thu Nov 03, 2011 9:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Everytime I leave my Neurologist's Office...
Replies: 16
Views: 2891

Everytime I leave my Neurologist's Office...

Dear TIMS, I just want to vent a bit and perhaps get your individual feedback, if you share the same 'type' of experience as me. I switched neurologists from Dr. F* (for very obvious reasons, as I was unable to deal with his 'God Complex'). The neurologist I have now is much more personable and unde...
by hargarah
Mon Aug 15, 2011 5:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MYELIN REPAIR
Replies: 21
Views: 3074

So what does that mean for us? Is the problem that we cannot get this catalyst close to the areas where there is demylenation?