Search found 67 matches

by patticake66
Tue May 10, 2011 10:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: What was your MS "Trigger"
Replies: 37
Views: 5440

If someone can, please explain to me how an "event", which supposedly triggers MS, is anyway related to the theory of CCSVI. If CCSVI is based on the notion of iron deposition and the immune system "cleaning it up", how is a hurt leg, viral infection, etc. a trigger? Please clarify.
Thanks!!!!
by patticake66
Wed Apr 20, 2011 3:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How many of us are smokers/ex-smokers?
Replies: 33
Views: 4334

You can spend the rest of your life trying to figure what triggered your MS. I never smoked (second hand smoke all the time), I never did any drugs of any kind, exercised daily my entire adult life and took excellent care of myself. I still got MS. When I was 41, I got the rabies vaccination and abo...
by patticake66
Mon Apr 18, 2011 3:47 pm
Forum: Copaxone
Topic: Copaxone Users. Need some info fast. Thanks
Replies: 6
Views: 3015

I also take copaxone. I was once told that if you stop taking it and then go back on it, you may become allergic to it. You might want to google this info. What you are saying is not surprising. This is one of the reasons I will not stop taking it to see if I notice a difference in how I feel. I am ...
by patticake66
Sat Mar 12, 2011 12:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Celebrities?
Replies: 34
Views: 7285

It doesn't matter how much money you have....I am not rich but I see one of the best neurologists NYC/the country has to offer. As a matter of fact, many celebrities see this doctor. Celebrities such as Janice Dean, the meteorologist for FOX news. Speaking of FOX, has anyone reached out to Neil Cavu...
by patticake66
Fri Nov 19, 2010 7:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadian media reporting on death from CCSVI complications
Replies: 109
Views: 15364

ms meds kill also

This makes news but when people die from tysabri it doesn't make the news. The media is a joke.
by patticake66
Sat Nov 06, 2010 6:31 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Thyroid Poll
Replies: 10
Views: 3428

98.6 is perfect body temperture for a human. It is not low.
by patticake66
Tue Oct 26, 2010 9:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Who are the BIG names in CCSVI ?
Replies: 138
Views: 117877

Dr. Coyle is my neurologist. She is not only well-respected but is on top of her game. If you knew Dr. Coyle the way I do, you would understand that she will not advise you to do anything, take anything or try anything that is not scientifically proven. I understand that MS doesn't wait for science ...
by patticake66
Thu Oct 14, 2010 3:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Vancouver Sun.....Read this
Replies: 2
Views: 1552

Vancouver Sun.....Read this

Councillor willing to leave country to seek treatment for daughter's MS

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by patticake66
Mon Oct 04, 2010 9:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: autoimmune theory
Replies: 1
Views: 1507

I always understood that the inflammation is constant. It doesn't stop. It is when certain triggers speed up (for better lack of a word) the inflammation such as a virus or the flu etc.
by patticake66
Sat Oct 02, 2010 7:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 2 months after second procedure and still improving!
Replies: 13
Views: 2637

I don't get it, it is stories like this that should make any doctor allow any pwms to get this procedure regardless of any scientific proof....how inspiring...you give me hope!!!!
by patticake66
Thu Sep 30, 2010 3:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Close-minded Negativity by MS Doctors
Replies: 15
Views: 3177

Cheer, Thanks for the information. But see what I just found out from another site, which has this info posted one year ago, is that Dr. Coyle is very excited about ccsvi and is trying to get the ir' s at Stonybrook University to do the testing. This woman spoke the the Dr. herself. See how confusin...
by patticake66
Thu Sep 30, 2010 12:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Close-minded Negativity by MS Doctors
Replies: 15
Views: 3177

Can someone help me out here....Dr. Coyle is my neurologist. I changed dr. last year when my NYC top expert poo-pooed CCSVI. When I researched CCSVI, I came to find that she is part of the study with other dr's. I haven't had the ccsvi discussion with her yet, but am I reading this right, she doesn'...
by patticake66
Wed Sep 29, 2010 3:46 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MS & Iron in brain
Replies: 71
Views: 11352

Donnachadh Lets not forget the vaccines we are all given. To say that you don't have the EBV might be so, but what vaccines were given to you as a child and as an adult? It is not too off track to still consider a virus as the culprit of MS. After all, many people were diagnosed with MS directly aft...
by patticake66
Wed Sep 22, 2010 3:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hard to believe CCSVI and not immune
Replies: 27
Views: 3908

Thank You.....but MS is not brought on by vaccines....it is brought on by occluded veins....I wish, I wish, I wish.