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by mrhodes40
Sat Jul 10, 2010 1:48 pm
Forum: Regimens
Topic: Gibbledygook's stents
Replies: 125
Views: 38661

Wow Alex, all I can say is God bless you and your little baby. I hope the C section is done easily and you both recover very well from the procedure. I am excited to hear what Dr. Simka sees in your venous system and hope it is something that is repairable... I will be thinking of you and wishing yo...
by mrhodes40
Fri Jul 02, 2010 11:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 353
Views: 82346

Mark that is awesome! well done thank you so much for taking the time to do this video. It makes the whole thing far less mysterious. I love how you showed the collaterals and it gave the watcher enough time to digest what they were seeing. Other things I have seen move along so fast the watcher can...
by mrhodes40
Thu Jun 24, 2010 2:51 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Barochamber to faster free brain from iron
Replies: 17
Views: 4121

http://www2.cochrane.org/reviews/en/ab003057.html

notice the bias in the review.....

THere were studies that showed benefit but the reviewer didn't think the venous hypothesis made sense..... :roll:
by mrhodes40
Thu Jun 24, 2010 2:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Lumbar veins and left vs right femoral
Replies: 12
Views: 3408

So not being able to repair something means pretending it can't be a cause or contributing factor? All I am saying is that Dr Simka told me that as of this time they do not check the lumbar veins. Dr Zamboni thinks patients would want to know repairable or not. From my perspective the much larger i...
by mrhodes40
Tue Jun 22, 2010 11:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Lumbar veins and left vs right femoral
Replies: 12
Views: 3408

most terrible things that happened is this demand for double blinded trials when people still don't know what they're looking for in all the different possible presentations. I should clarify that what I mean by that is that observational trials should be undertaken so that doctors can see what the...
by mrhodes40
Tue Jun 22, 2010 11:11 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Lumbar veins and left vs right femoral
Replies: 12
Views: 3408

I interviewed Dr. Simka several weeks ago and asked him if he checks the lumbar veins the answer is no he does not. The lumbar veins are usually showing agenesis meaning they simply didn't develop correctly according to Dr. Zamboni's papers this is not something that can be repaired. The problem wit...
by mrhodes40
Tue Jun 22, 2010 10:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1842966

Dr Sclafani,
I am so sorry. I am so so sorry. Please take some time and breathe something will open up... It is unbelievable.
by mrhodes40
Tue Jun 22, 2010 9:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1842966

wonder if Dr Simka uses the left femoral I asked Dr Simka directly in an interview for a book I am writing if they image the lumbar veins and he said no they do not. It is exciting to see the development of skill in this area. MY own repair was partial (Dake-stents) I am certain a lower valve was m...
by mrhodes40
Tue Jun 22, 2010 8:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A blow to revolutionary MS therapy
Replies: 88
Views: 12748

Nevertheless, there is NO PROOF of an autoimmune connection to MS. So as soon as a doctor shows me that, I will shut up. _________________ fact there is no proof that MS is autoimmune. There are myelin active T cells................ but there are myelin active T cells in any kind of trauma to the b...
by mrhodes40
Sat Jun 19, 2010 8:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Fabulous Festa Fundraiser for CCSVI in Seattle June 27th
Replies: 19
Views: 5090

I'm going..........
:D
marie
by mrhodes40
Wed Jun 16, 2010 9:05 am
Forum: Regimens
Topic: Marie's Stents CCSVI
Replies: 180
Views: 42010

Definitely the right. thanks for the link CUre!
by mrhodes40
Tue Jun 15, 2010 1:38 pm
Forum: Regimens
Topic: Marie's Stents CCSVI
Replies: 180
Views: 42010

CureOrBust wrote: I think it will be MANY MANY years before any one of us receives the fully "correct" treatment. How many years have they been doing heart transplants? have they got that "right" yet? Lets not event mention how many years they have been "treating" MS..... right on. On average peopl...
by mrhodes40
Mon Jun 14, 2010 5:17 am
Forum: Regimens
Topic: Marie's Stents CCSVI
Replies: 180
Views: 42010

LOL!! yes it is the blood clots in the leg that get me... 8O probably end up with some in my small cerebral veins too... :evil: yes I am down with the model no question. The problem is good treatment. Mine is obviously NOT correctly done with all due respect to Dr Dake who is learning...and full ack...
by mrhodes40
Sun Jun 13, 2010 7:09 pm
Forum: Regimens
Topic: Marie's Stents CCSVI
Replies: 180
Views: 42010

I went for my one-year follow-up at Stanford last week. My right jugular is wide-open no problems. The stent is fine with no thickening and excellent blood flow. The left is a different story. The stent itself is absolutely fine. However, the rest of the vein has collapsed/stenosed and is not carryi...
by mrhodes40
Fri Jun 04, 2010 12:21 pm
Forum: General Discussion
Topic: Multiple sclerosis risk sharing scheme: a costly failure
Replies: 32
Views: 6580

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