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by mrhodes40
Thu Aug 11, 2005 9:20 am
Forum: General Discussion
Topic: Hysterical Conversion with MS?
Replies: 4
Views: 2606

HI My right leg is my wierd one and it collapses when I laugh hard, when I'm stressed, when something scary happens like I pull out int he car when I shouldn't have. Earier in my disese I had spasticity that got bad. I'll never forget how when I was new we went to a party and I had to walk down a lo...
by mrhodes40
Thu Aug 11, 2005 9:13 am
Forum: General Discussion
Topic: Swank
Replies: 3
Views: 2393

Hello Wow is a cool word! Welcome I have had MS for about 20 years daignosed since '93. Last year I started to use a cane outside of the house. I could still jog over a mile at 6 years after diagnosis. I use copaxone since it came out and soon am going to use antibiotics. I was not impressed with th...
by mrhodes40
Wed Aug 10, 2005 4:28 pm
Forum: Low Dose Naltrexone
Topic: Exacerbations while on LDN treatment
Replies: 12
Views: 21133

I am 44 years old I've been on LDN for 1 year I am SPMS I continue to slowly lose function in my right leg. I use a cane and did not when I started LDN I take 4.5 mg per night I get it from SKips I still take it - it improves my sleep and my sense of wellbeing. It is worth it just for this for me
by mrhodes40
Wed Aug 10, 2005 3:47 pm
Forum: Antibiotics
Topic: Second anniversary since starting treatment
Replies: 21
Views: 6293

Sarah, Thank you for taking time to post. thank you for sharing your story. I honestly would have only gone along with the new doc I am seeing, her approach being minocycline alone, if it had not been for your story and your husband's website detailing his regimen. I can clearly see that the CPn lif...
by mrhodes40
Thu Aug 04, 2005 4:44 pm
Forum: Antibiotics
Topic: Personal Data collection
Replies: 9
Views: 3785

HI Thanks! Does everyone who has been on it for 6 months KNOW they are better by then? I must have been mistaken I thought somwhere I read that one needs wait a year to get past the herx and know for sure you are on the improvemd list.. Sarah, you're off the hook. David already has yours on the prog...
by mrhodes40
Thu Aug 04, 2005 10:29 am
Forum: Antibiotics
Topic: Personal Data collection
Replies: 9
Views: 3785

Personal Data collection

This is a call to all abx users to begin to collect data. This will give more objective feedback as to how people are doing on the regimen and will provide the incentive to fund more trials. I have kept personal data on my own ability to perform activity at the gym on the crossrobics or the elipse f...
by mrhodes40
Wed Aug 03, 2005 4:17 pm
Forum: Antibiotics
Topic: WHere is the best info
Replies: 10
Views: 3496

Quote, Daunted"Since stratton is doing it every single day it would be interesting to hear his take on this"end How do you get the little quotes on there the right way? this would be interesting to know his thought. He must have a biological reason for hitting it without rest, I bet to do with the b...
by mrhodes40
Wed Aug 03, 2005 7:12 am
Forum: Antibiotics
Topic: WHere is the best info
Replies: 10
Views: 3496

Thank you guys. Wow, I actually had a lump in my throat when reading your replies. I forgot what hope feels like. How can I thank you for that? I am ready to be as brave as I have to be. Sarah thank you for the kind offer to recieve pm. Here's a question for the site logistics. When shall I make an ...
by mrhodes40
Tue Aug 02, 2005 3:36 pm
Forum: Antibiotics
Topic: WHere is the best info
Replies: 10
Views: 3496

Hi Sarah and Jim! Thank you very much. I read the page linked and am now up to speed on the lifecycle. I do appreciate this. It makes it easier to be clear on hwat's up with the treatment. I appreciate your kindness to answer a person you don't even know or anything.Sometimes the world feels a cold ...
by mrhodes40
Mon Aug 01, 2005 6:01 pm
Forum: Antibiotics
Topic: WHere is the best info
Replies: 10
Views: 3496

WHere is the best info

HI! It's me Marie. I have another question. I have been reading this forum until I'm bleary -eyed the last few days and have a tablet full of notes to compile into something coherent that I can present to the doc who treats MS with minocycline. What fabulous information from everyone who generously ...
by mrhodes40
Sun Jul 31, 2005 8:44 am
Forum: Antibiotics
Topic: Hello new to board
Replies: 7
Views: 2964

Gosh! Thank you Sarah and Life on the ice. Lifeontheice I apprecite you comment that I have a right to figure out my own health care regimen. My neuro made me feel like an idiot for not taking advantage fo modern medicine, but I think novantrone is poison as you quoted Katman. Also as to the comment...
by mrhodes40
Sat Jul 30, 2005 7:46 am
Forum: Antibiotics
Topic: Hello new to board
Replies: 7
Views: 2964

:D Thank you Life on the ice! What a great resource. I will keep the LDN then. I am so anxious and excited to start that I feel like hurryingup the appointment. On the 16th I meet with the antibiotic doctor. She beleives that all autoimmune diseases are caused by polymorphic bacteria of some kind th...
by mrhodes40
Fri Jul 29, 2005 2:56 pm
Forum: Antibiotics
Topic: Hello new to board
Replies: 7
Views: 2964

Hello new to board

8O Gosh, Hi! My name is Marie. I am a nurse and I've had MS for about 15 years. I am about an edss 4. I read pubmed all the time and am into the non autoimmune model for MS (big believer) and am also into antioxidants and other supplements. I also use LDN. It makes me have a sense of well being and ...

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