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by mrhodes40
Tue Dec 15, 2009 2:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Zamboni papers
Replies: 4
Views: 2127

I believe they are the same group. Sometimes when something is published they ask you to change things at the peer review. One example was that in Dr Simka's small study he had 3 probable MS persons who had reflux, but he was asked to eliminate that group from the final paper due to lack of diagnost...
by mrhodes40
Tue Dec 15, 2009 11:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How to give to Buffalo study so they can complete research
Replies: 6
Views: 2558

Thanks for making it easy to be part of it. If Obama can raise how many million we should be able to get somewhere with this....
by mrhodes40
Tue Dec 15, 2009 10:34 am
Forum: General Discussion
Topic: Raynaud's Phenomenon & MS
Replies: 51
Views: 21359

I have Raynaud's and I get 1000mg of Ca and about 1000 of Mg and 22.5 of zinc daily in my milti.
by mrhodes40
Mon Dec 14, 2009 7:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Iron Related Changes in Clinically Isolated Syndrome (CIS)
Replies: 4
Views: 1788

suggesting iron related changes occur early What I find interesting about that quote is the implied acceptance of the fact that iron related changes are simply a part of the picture we all know about. HERE'S A PAPER FROM '02 Conclusions Gray matter T2 hypointensity in MS is associated with brain at...
by mrhodes40
Sat Dec 12, 2009 5:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Convergence of new thinking about MS!!
Replies: 6
Views: 2036

The paper you reference "Pathology of a newly forming lesion" by Barnett and Prineas came out in '04 . It is important work for us and has been referenced several times because it does show that the AI model is probably not as sure as they seem to. It is one of my favorite papers and I own a copy. Y...
by mrhodes40
Sat Dec 12, 2009 4:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI, Hypoperfusion and MS
Replies: 81
Views: 24566

We have had some good discussion on our threads and this thread is one of the better ones, but I have kept the research thread pretty much focused on the actual Zamboni and related research rather than our speculations. I could link this thread perhaps.......
by mrhodes40
Mon Dec 07, 2009 6:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Happy Birthday, Marie-
Replies: 20
Views: 4076

gosh thanks hoodyup! :oops: :D
by mrhodes40
Sun Dec 06, 2009 8:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Happy Birthday, Marie-
Replies: 20
Views: 4076

Well Sam THANKS and you are welcome. Thanks for all you ahve done for the MS community too!! :D
by mrhodes40
Sun Dec 06, 2009 8:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Akaheather's Turn
Replies: 45
Views: 8289

Heather great news. Re the collar bone hurting my shoulder has that feeling too. Notice perhaps that if you lay on one side and breathe and think "relax" while moving the arm nearest the ceiling in a gentle windmill circle rolling from back toward the front if it will release a bit...it does on me. ...
by mrhodes40
Sun Dec 06, 2009 8:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Update on my neighbor D.
Replies: 15
Views: 4388

Wow that is a great report thanks!! I love this Her bladder, spasms, energy and stiffness have all improved This is great I am so happy for D! :D :D Like D I too have spasm reduction that is remarkable and it has made a difference in physical therapy possibilities. We'll see where it goes, but more ...
by mrhodes40
Sun Dec 06, 2009 7:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Associaiton of MS/CCSVI with previuos radiotherapy/surgery
Replies: 10
Views: 2633

My goodness North, I am so sorry you have had such a medical history. But forgive my intense interest and curiosity because I have speculated that there had to be post surgical persons who developed MS if CCSVI is the cause of MS. The reason is that it is not uncommon if a person has cancer in the n...
by mrhodes40
Sun Dec 06, 2009 6:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Medscape article
Replies: 9
Views: 2119

I agree with all of this....... We are lucky. If I remember right the big thread was started by Joan last Dec sbout the 16th. In under one year LOOK at where this is. I am delighted that this is going to be well reviewed. I wake up every day feeling a sense of trust and hope about where this is goin...
by mrhodes40
Sun Dec 06, 2009 6:27 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Happy Birthday, Marie-
Replies: 20
Views: 4076

Gosh I am just bowled over :oops: , thank you so much guys I appreciate the kind wishes! You are all the best!
:D :D :D :D :D :D :wink:
by mrhodes40
Sun Dec 06, 2009 7:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Medscape article
Replies: 9
Views: 2119

It is free registration and I think anyone can register...they know it is me when I log in automatically on my computer it has been years since I registered but let me know if this is not right.
by mrhodes40
Sun Dec 06, 2009 7:32 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: SammyJo goes to Stanford
Replies: 47
Views: 12409

Goodness Sam, what an ordeal!

I am glad you posted to keep it real. This is real surgery. for more disabled people especially the recovery is not uneventful. I am a 6, I did not need to be lifted out of bed at all, but I sure knew I was in healing mode, not on holiday.

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