This Is MS Multiple Sclerosis Knowledge & Support Community

griff, You've started several threads which indicate you don't believe in CCSVI and the Liberation procedure to treat it. You said here in TIMS that you have had the procedure done. Does that mean you were diagnosed with MS and also CCSVI? Would you mind sharing where and what doctor did your proce...

Dr Sclafani, I would be interested in your opinion on CCSVI in general. We had some debates in a different thread where some arguments were raised by vascular specialists who are not convinced about the existence of CCSVI. I also quote here a statement from the Cardiovascular and Interventional Radi...

The big business of MS is a huge burden in the progress of CCSVI as a condition, its testing and associated corrective procedure. There needs to be more Tim Amato's out there doing the right thing and bringing to light the underhanded changing of money between pharma companies and doctors who are c...

I am just wondering what happened to those threads that I saw here a few hours ago about discussing the pros and cons on CCSVI. ...I guess this is not the Big Pharma conspiracy... http://www.cirse.org/files/File/CIRSE_CCSVI_final.pdf There are currently several centres actively promoting and perform...

Last May 2010 she could have been a healthy control. Last may, did she have laesios in her brain and spinal cord? Did she have negative results from lumbar punctrure? Did she have negative neurological results? As for MS, just because someone has no symptoms at a certain point of time it does not m...

I think we got lots of very valuable posts here that I would like to thank all of you. I can see many of you put lots of work in it that I really appreciate it. This is what an 'opposing article' can result in.

@happypoet Thanks for your comment. :) I found the article on the net and not in tims. I did not know dr Rose before, but I respect his opinion just like I do yours I think dr Rose's comments induced so many valuable answers from all of you that I must say it was already worth coming out with this i...

My purpose with posting this article was to get opinions from both sides. I appreciate any opinions that try to give us scientific information on CCSVI, regardless of its nature whether it is supportive or not. Lets face it the cause of MS and the role of CCSVI to it is still unknown. Different scie...

It's quite easy to see how CCSVI would affect the oxygenation of the brain over time. Eventually the severe brain damage would occur but some symptoms are simply the low level hypoxia. It's quite eay to understand really. The bottom line is many patients are better. Way better! And in many cases th...

@colros Thank you for your posts. I think you raised some valid points here. Personally, I would be interested in seeing what some one from dr Z's circle says about it. I think we can get answers to our questions only if we listen to each other and we base our arguments on scientific facts. As I do ...

and your CCSVI Alliance could easily be VERY helpful in this area (despite your "mission"). While flying around the country talking about CCSVI, couldn't at least some of your paid employees (and volunteers) start working on a webpage that would contain information to help people appeal their denia...

frodo wrote:

griff wrote: Why “CCSVI” is Surreal

Exactly in which paragraph of this text is justify that “CCSVI” is surreal? All I have read here is the opinion of a person, and with a very biased vocabulary.

Sorry for that, I just used the title of the article, I did not want to add anything to it.

bluesky63 wrote:Hi griff. I am not sure you had a chance to see my question on your other thread, but I had a sincere question. Where in Europe do you live? What is your native language? Thank you.

I live in Croatia. So, I can not speak Italian and also forgive me that my English is not perfect either.

@MegansMom I think many of the arguments are still repeated many times by doctors, IRs, vascular specialists, neuros, neuro surgeons. Just to name a few whom I talked to in the last couple months. Also, many of us have not been here in tims a year ago and not spent too much time dwelling into MS the...

This is not a legal case. Except that of course, it is a legal case in a Human Rights Court in Canada. It should be a legal case if people start getting denied insurance coverage in large numbers because of their expedient diagnosis as 'MS' patients, which does not do so much for *them* but which c...