Search found 92 matches

by griff
Fri Apr 29, 2011 4:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: For many patients, angioplasty is NOT in their best interest
Replies: 24
Views: 5331

For many patients, angioplasty is NOT in their best interest

I have just come across this news on angioplasty (NOT for IJV or azygos): For many patients, angioplasty is NOT in their best interest By Jenny Thompson on 11/19/2010 "The landscape of medical history is littered with procedures not in the patient's best interest." That's not just me saying that. It...
by griff
Sun Apr 24, 2011 12:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Not all Neurologists opposed to CCSVI !!!
Replies: 13
Views: 2513

A neurointerventional radiologist would be a good choice for blood vessel blockages actually in the brain. For god's sake, can we really weigh what we are saying sometimes? We talk about intervention in veins in our brain, when the whole CCSVI hypothesis is not proven yet. Why not a brain surgery r...
by griff
Sun Apr 24, 2011 11:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Not all Neurologists opposed to CCSVI !!!
Replies: 13
Views: 2513

Re: Cause of MS

Saying that the lower jugular is "close to the brain" and so "we should heed the neuros" concerning problems in those veins is just plain wrong on both fronts. My teeth are even closer to my brain, but I'm not going to ask my neuros advice about a toothache. ...Ted The hell with it. :) And where do...
by griff
Sun Apr 24, 2011 6:54 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Not all Neurologists opposed to CCSVI !!!
Replies: 13
Views: 2513

in the brain region typically the CCSVI procedure is performed on malformed jugular valves at the base of the neck, near the collar bones The upper part of the jugular seems to me quite close to the brain. My neurologist told me that there were several patients who had gone through the procedure ab...
by griff
Sun Apr 24, 2011 2:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I have Lyme, not MS, yet I have CCSVI. My Video pics Inside
Replies: 33
Views: 7410

Re: I have Lyme, not MS, yet I have CCSVI. My Video pics Ins

Please spread the word on this folks... This is not just MS. I now know 5 Lyme patients with this and have all underwent successful CCSVI treatment. A few have restenosed, but they did not go after the Valves from what I hear. Test anyone with Acquired Neuro Problems labels with whatever the Neuro ...
by griff
Sun Apr 24, 2011 2:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Not all Neurologists opposed to CCSVI !!!
Replies: 13
Views: 2513

Re: Not all Neurologists opposed to CCSVI !!!

Shall we say this Neurologist was `open minded` on CCSVI.... Maybe folks the tied is turning here slightly in Canada???? We can only hope, right................... What do we expect from neurologists? I think most of them are on the fence. They only prescribe approved treatments just like other doc...
by griff
Sun Apr 24, 2011 2:20 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Buffalo Researchers Display anti-CCSVI Bias
Replies: 28
Views: 5650

You do not know your body any better than a doctor or a scientist does, rather in a different way. I am a CCSVI procedure veteran and it has done NOTHING to stop a slow but crippling progression of the disease. So who’s right, you or me, huh??? someone??? Errrrhhhh... Lookup ‘cognitive dissonance’ ...
by griff
Sun Apr 24, 2011 2:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Buffalo Researchers Display anti-CCSVI Bias
Replies: 28
Views: 5650

Re: hey...

NOW...I will sit and wait for IR's to figure out how to safely keep the vein's open . I agree. I think it will take a lot of time until we find out whether CCSVI relates to MS in any way or not, but the key is to have a safe procedure that can be done until that happens. Unfortunatelly, there is no...
by griff
Sun Apr 24, 2011 1:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Are patients distorting the science?~Marie Rhodes
Replies: 32
Views: 7561

Re: Are patients distorting the science?~Marie Rhodes

PCakes wrote:
We are insisting that the commercial forces shall not take over the debate to quietly put CCSVI aside. We demand that this new model be evaluated fairly and with all urgency now.
Well said. :)
by griff
Thu Apr 21, 2011 11:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Baylor College of Medicine treating CCSVI
Replies: 13
Views: 3249

There is a huge lack of understanding statistical data - especially for risk factors. There are millions of healthy smokers, so lung cancer is an alleged consequence of smoking. That is EXACTLY THE SAME situation as with the data for smoking and lung cancer. Thinking CCSVI is an ON/OFF switch for M...
by griff
Wed Apr 20, 2011 8:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How many of us are smokers/ex-smokers?
Replies: 33
Views: 4894

Re: How many of us are smokers/ex-smokers?

I was reading some research papers about BBB and neurovascular issues, and this paragraph really stuck out to me: "In addition to hypoxic/ischemic and inflammatory insults, the BBB can also be compromised by drugs of abuse. For example, cocaine can accelerate the progression of HIV-associated demen...
by griff
Wed Apr 20, 2011 8:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 'The Rorschach test of CCSVI research'
Replies: 25
Views: 3968

[quote="Cece"]griff, that is just one study, other studies have contradictory numbers. I am looking forward to when a consensus begins to emerge across many studies. Thanks, Cece. I would be happy if you were right. As far as I know dr Zivadinov is among the first ones who started examining CCSVI an...
by griff
Wed Apr 20, 2011 4:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 'The Rorschach test of CCSVI research'
Replies: 25
Views: 3968

It is hard to explain how CCSVI is related to MS symptoms when there are many with MS who apparently don't have CCSVI and many without neurological symptoms that do have CCSVI. It is a question what we consider safe. It is true that CCSVI operations have not resulted in any deaths so far, but we se...
by griff
Tue Apr 19, 2011 10:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Baylor College of Medicine treating CCSVI
Replies: 13
Views: 3249

Re: Baylor College of Medicine treating CCSVI

What are the symptoms or consequences of CCSVI? Proposed consequences of CCSVI syndrome include intracranial hypoxia, delayed perfusion, reduced drainage of catabolites, increased transmural pressure, and iron deposits around the cerebral veins. Iron deposition as a cause of MS received support whe...
by griff
Tue Apr 19, 2011 10:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 'The Rorschach test of CCSVI research'
Replies: 25
Views: 3968

If this is the case, then they are missing are unwilling to say the obvious implication - Dr. Zamboni's original studies on CCSVI were flawed. It is hard to explain how CCSVI is related to MS symptoms when there are many with MS who apparently don't have CCSVI and many without neurological symptoms...

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