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I've probably gotten their staff 10-15 times. Still no luck. Dr. Arata emailed me back and said that the reason they couldn't give me a detailed bill was that they were dedicated to high ethical standards and that breaking it down like that, when it was not billed like that in the first place might ...

I am having the exact same problem with PI!!! I have been working on it for over 2 months!!! I finally got them to send bme a bill instead of an invoice, they only put one code down and " bundled" The bill. My insurance company is paying, but only if I give them a detailed bill. I keep get...

Yeah, yo0u'r right it is probably not clotting (thrombosis) just restenosis.

Quote: (Dr. Sclafani, does a clot becomes permanent in three months? I'm not actually sure about that.) "clots become permanent fairly early. they can partially dissolve and contract leaving an irregular lumen where blood can flow, we call this recanalization.but many times the vessel just shri...

I really think that this iw what hapened to me. So far I have not been able to get follow-u (since end Sept) so not sure.

Does anyone klnow if a clotted vessel then scars closed, i.e. is it worse than it was before treatment? It seems that is what happed here if there were collaterals developing.

Sorry about your experience. I had a similar one when I was looking for a new neuro (I had moved) and mentioned CCSVI. He had never heard of it but then went on to tell me what a charletan idea it was, for no other reswon that it talked about MS patients improving!! His attitude was so clearly that ...

I was told that the doctor "has a tremendous amount of experience with angioplasty" and would be able to perform the Liberation for CCSVI with no problem. After a lengthy conversation, I believe that doctor will be looking into it a bit himself. They had no idea that the local neuros woul...

OK, so I am most definitely NOT a dr., but I am trying to interpret the "difficult catheterization" images. Where is the distal end of the catheter (i.e. where the dye is being injected) and what direction is the dye flowing? I am confused since the vein seems to be getting les and less co...

I personally believe that the level of follow-up to monitor anticipated problems, occuring for whatever the reason, be it elastic recoil, clotting or anything else, is generally quite inadequate . As time goes on, there might be more and more patients who are initially quite exhilerated by the posi...

I am not sure how I would be able to tell. From what I understood there is no "follow up" as we know it, unless we choose to undergo venography again. Unless one can estimate by disappearance / reappearance of symptoms, but that is if one HAD change in symptoms (I didn't. Yet?) I agree wi...

Very important...never ever tell a pwMS that they aren't experiencing a symptom they have described, or that they are imagining it. We have become very sensitive to that. When I was being diagnosed, (a two year process back before MRI's), I was once told by the head MS neurologist at the Mayo Clinic...

one I have used is that "my legs are shot" because I wear them out in about 15 minutes of exercise or walking up a hill, etc. and it takes a day to get them back. Also neuropathic pain..generall in afternoon and pm. (tegretol works for me) bladder distrurbance.. exactly like serious prosta...

Neurologists keep on stressing that also people without MS have venous strictures in the neck. I am sure this is true, Zivadinov and others found this as well, although percentages largely differ.. But this is confusing the issue. Isn't the right question: what happens to those who do have MS (and ...

Dr. S, I have a question at the confluence of neurology and vascular medicine. How does a stenosis at the jugular level, sometimes well down the vein, cause a focal lesions deep in the brain? Reflux could break down the blood brain barrier, but that would release cells into the CSF in general, but ...

Thanks for the reply, AMcG. All of what you say makes sense, so maybe the focal plaque formation is a bit random. The weakness in the vessel wall appens most significantly farther upstream, and that is where the breakdown of the BBB leads to formation of a plaque. I have not really incorporated the ...