Search found 197 matches

by zjac020
Wed Mar 11, 2015 1:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is the CCSVI procedure no longer available in Poland?
Replies: 15
Views: 6076

Re: Is the CCSVI procedure no longer available in Poland?

I see. Well its good to know that they wont apply the procedure if they see thats not the issue.

Have you checkes other possible causes of MS such as heavy metal?

Regards,
Carlos
by zjac020
Fri Mar 06, 2015 12:43 pm
Forum: General Discussion
Topic: Patients want full disclosure
Replies: 2
Views: 1063

Re: Patients want full disclosure

Im amazed we need a study to validate what is common sense,but I guess that's the only way doctors and big pharma listens.

If doctors were plainly honest about their relationship to big pharma, I have a feeling the drug landscape would be considerably different....
by zjac020
Fri Feb 27, 2015 12:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is TVAM the new kid on the CCSVI block?
Replies: 7
Views: 1763

Re: Is TVAM the new kid on the CCSVI block?

As far as ive seen, Dr Arata has found some kind of correlation between some slight heart issue and MS (im repeating what ive seen on a fafacebook MS related page, no on scientific literature). I guess my real question is...is it a better treatment than the standard CCSVI treatments in poland or Ita...
by zjac020
Thu Feb 26, 2015 2:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is TVAM the new kid on the CCSVI block?
Replies: 7
Views: 1763

Is TVAM the new kid on the CCSVI block?

Hi all, How many of you have heard of TVAM? IT seems to be very similar to CCSVI, but from a marketing perspective its been cleverly dissaciated from MS, so that neuros turn a blind eye to it. There seems to be one very well know Dr Arata performing the procedure in the states, with good results. An...
by zjac020
Thu Feb 26, 2015 2:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is the CCSVI procedure no longer available in Poland?
Replies: 15
Views: 6076

Re: Is the CCSVI procedure no longer available in Poland?

Thanks Frodo. Ive been able to contact euromedia/Silesiamed in Poland, and a clinic in Rome.

Do you know which clinics have the most experience? Im asking them for this info, but its not proving easy to obtain.

Thanks!
by zjac020
Tue Feb 24, 2015 2:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is the CCSVI procedure no longer available in Poland?
Replies: 15
Views: 6076

Re: Is the CCSVI procedure no longer available in Poland?

Hi, Im not interested in attending a clinic here in Spain as Id prefer clinics with more experience. Here in Spain patipatiients are still far too much into the standard neuro bable about CRABS etc (remember the social security system pays for them). Euromedic gave me a price on the operation just o...
by zjac020
Mon Feb 23, 2015 8:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is the CCSVI procedure no longer available in Poland?
Replies: 15
Views: 6076

Is the CCSVI procedure no longer available in Poland?

Hi all, Sorry to create a new thread for this but things really are getting more complicated for some unknown reason. As stated in a previous thread, im trying to contact clinics in Poland and Italy for the CCSVI procedure. I am CIS for MS and a doctor here in spain familiar with CTOS (very closely ...
by zjac020
Tue Feb 17, 2015 1:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Looking Dr. Marian Simka's information
Replies: 12
Views: 2268

Re: Looking Dr. Marian Simka's information

1eye...you are going to have to forgive me for this, but what email? Maybe Ive over looked a reply of yours on this thread or elsewhere on the forum? Ive reviewed my private messages but cant see anything there..maybe I deleted it by accident? Cheerleader - ive emailed that address, lets see if ther...
by zjac020
Mon Feb 16, 2015 8:19 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Who are the BIG names in CCSVI ?
Replies: 138
Views: 149829

Re: Who are the BIG names in CCSVI ?

Im still hopeful someone will help me locate Dr Marian Symca in Poland? Anyone? Please?
by zjac020
Mon Feb 16, 2015 8:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Looking Dr. Marian Simka's information
Replies: 12
Views: 2268

Re: Looking Dr. Marian Simka's information

Id like to push this up. Im still very interested in CCSVI in Poland but am finding it impossible to locate Dr Simka.

Can anyone help?

Thanks,
Zjac
by zjac020
Thu Jan 01, 2015 1:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Looking Dr. Marian Simka's information
Replies: 12
Views: 2268

Re: Looking Dr. Marian Simka's information

Im based in Spain. Ive been recommended Poland and though I assume its to see Dr Simka, I often wonder if Italy would be a better option. Can anyone recommend the best Italian institutions?
by zjac020
Thu Jan 01, 2015 1:40 pm
Forum: General Discussion
Topic: Rayminder vitamin d lamp?
Replies: 16
Views: 4329

Re: Rayminder vitamin d lamp?

Ive wondered about lamps too. Im reading Hollicks vitamin D book, i believe it has recommendations on this type of thing. Vitamin D is definately linked to MS no doubt about it and I too believe that supplemental form of vitamin D is not exactly the same for the body as natural sunlight. Where that ...
by zjac020
Thu Dec 25, 2014 2:18 pm
Forum: General Discussion
Topic: New study suggests Hepatitis B vaccine sparked rise in MS
Replies: 2
Views: 1313

Re: New study suggests Hepatitis B vaccine sparked rise in M

I had he hepatitis B vaccine (3 shots, last one 18 months before my first relapse). I often think it was involved, but then again I "tick" several other boxes...very low vitamin D levels upon diagnosis, issues with heavy metals, borderline positive in one of the lyme tests, issue with bloo...

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