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I had my CCSVI surgery done by Dr.Arata at Pacific Interventionalists in Sept. 2010. The valve at the collar bone of the RJV was closed 70% and the valve of the LJV was closed 50%. I was given Fentanyl and Versed during the surgery. I had no pain during or after the surgery what so ever. I felt like...

How many hours do you think I should separate taking the vitamin D from the magnesium? Interesting concept here! Even opiods don`t work for me. I just took` Filmakers` idea and tried some Benadry. No relief yet.

Thanks Filmaker for the tip! I have heard about pwMS taking Benadry for nerve pain. What dosage? I am willing to try anything now.

I think I have become a walking pharmacutical company with all the pills and vitamins I take to try and get rid of the nerve pain and MS bear hug! Well this is my regiment each day... Morning--- 150mg.Lyrica, after breakfast----4000 mg. Vitamin D, 1 pill B-100 complex, 1 baby aspirin, 2 capsules ome...

`Jimmylegs` You got me into taking Magnesium. I am taking 500mg./day along with other vitamins as well. But noooooooooo relief from this `MS Bear Hug yet`! I have had it for over one year. I am losing hope already that this symptom will ever go away. I think mine is permanent. Any other suggestions?...

I have the same problem! If you find something that offers relief from the MS Hug let us all know please..............

Is this really true!!! You mean if I can survive through the first 5 years than I am just coasting through life. Doubt it folks!! But its always `Good to Dream`..............

`Fogdweller` I am opposite in symptoms from you. In the morning my nerve pain (numbness with pins and needles feeling) is not so bad but by 3:00-5:00 p.m. extreme pain sets in. Everyday is the same. I had the CCSVI surgery, like yourself, in California 2010. I did not actually have any stenosis but ...

I went to see my neurologist this week at the MS Clinic in Calgary, Alberta for my yearly visit and to get the results of my latest MRI. All looked good on my MRI and no new lesions or inflammatory action going on. What a relief that was!!! Than I decided to tell my neurologist about the CCSVI surge...

Has anybody heard how Barb is doing these days?

Filmaker what is ` carchoal `??

Has anybody tried Prokarin? What have been your results?

Wow I am impressed `Jimmylegs` that you have done so well after being diagnosed with MS! Your own diet is a real credit to yourself! Thanks for always sharing your knowledge with us. You are a real asset to TIMS. Keep up the fine work.

I am on Avonex. I don`t know if Interferon could make our problem worse!! Any ideas out there. I to have tried drugs, vitamins, diet. No relief from the pain of numbness and pins and needles.........

Thank you so much for taking the time to respond to my problem. I had the surgery done Sept.2010 in California and I had a followup doppler ultrasound done in Nov. 2010 in Calgary and the blood was flowing and all looked good. Perhaps I will get in contact with the doctor who did my surgery and see ...