This Is MS Multiple Sclerosis Knowledge & Support Community

Hi Sofia,

So sorry that you don’t feel at all well. I Just wanted to wish you all the very best of luck with your trip to Bulgaria. Keep us all posted.

Best wishes.

Just to wish you all Mutley, Sunlounger. Mags, Fiddler et al, all the very very best for your procedures. I'm about 20 days after mine now, a little disappointed with the result so far, but things are changing, so I am still optimistic. I feel much better in myself now - I use to feel sick and flu ...

mags4short wrote: Let me know if you will be around on Tuesday or Wednesday eve. You are going back on the Friday I think?
Mags

Hi Mags,

I should be out of Euromedic by Wednesday afternoon so as long as I'm not feeling too sorry for myself then I'm sure I can manage a trip to the Sky Bar.

Not long now....

LR1234 wrote:Yes I feel worse since having my neck manipulated by chiro:( I didn't have vertigo before I had the manipulation.

Ouch!

Have you tried IBT or anything like that?

mags4short wrote: Let me know which bar you will be in and I will get the beer in

Hi Mags,

Plans are unravelling for a rendezvous in the Sky Bar - Top floor of the Qubus Hotel

Will this be your first trip?

how about meeting up in the sky bar Thurs evening ? Sound slike a good plan to me. I enjoyed exploring their vodka options last time :D the balloon angioplasty I had in Jan on my left jugular has re-stenosis so back for a stent this time,and will ask them to check azygos again, Sorry to hear about ...

sunlounger wrote:Hi Mutley,

Good luck on the 4th,
I will be arriving at quebus on the 6th,
Hope we can meet up ?

Hi Sunlounger,

Sounds like a plan. I don't fly back until Friday 7th so we should be able to sort something out.

Any idea what they will do for you when you are out there?

Nowhere near as good as I had been sadly. The first few weeks were great but the improvements didn’t last long. I really really believe in CCSVI and I can’t wait for further research and for testing/corrective procedures to be refined. It’s a very exciting time if you’re affected by MS isn’t it. Any...

Hi LR, I'd definately send them an email and see if you can get over. Send it to Marta as well as she seems to be really on the ball. Best of luck, and hopefully see you there

Anyone going?

I'm scheduled for Tuesday 4th. Would be good to meet up and put some faces to names maybe.

...........if a venous solution is found there would be some scrambling for those with extremely lucrative careers consisting of "managing" dozens or even hundreds of MS patients by doing brief bi-annual meaningless check-ups and MRIs and prescribing worthless immunomodulating drugs ... W...

Mutley, any progress in your MS improvement? and any other MRV or doppler for your other veins? i think a full body MRV WOULD BE A GOOD IDEA FOR EVERYONE AND THAT INCLUDES ME. Hey Alby, how are you? Sadly, my liberation improvements all vanished within a few weeks of coming home. I was supposed to ...

That’s just what I needed to read, thanks for posting!

I’m due to fly back on Thursday (Volcano permitting) and maybe have a stent or something, so Dr Simka’s words have helped ease my nerves about stents.

Glad to hear you are doing well Erika, you take care!

I’m so glad that we have people like Dr. Z rolling their sleeves up for MS. Thank god he has such determination and passion to spread the word on his remarkable discovery and I just hope that he stays strong while there are so many people trying to trip him or flick peas at him. You can’t argue with...

Just a hunch, but as the different causes of CCSVI are uncovered, I would not be surprised if one of them were related to genetic defects that caused veins to form incorrectly. Perhaps including veins that are too soft. In which case, I can certainly imagine vein problems that aren’t just associated...