Search found 308 matches

by Daisy3
Sat Jul 09, 2011 1:03 pm
Forum: Stem Cells
Topic: My CtrlAltDel - Status
Replies: 292
Views: 69261

Are you UK based Asher?

My husband recently attended a talk for newly diagnosed ms people and was told that stem cells were about ten years off. What would you say to that?
Bear in mind that the other half suffers from progressive ms..
by Daisy3
Sat Jul 09, 2011 12:25 pm
Forum: Stem Cells
Topic: a first
Replies: 5
Views: 1938

Where sci fi goes real science catches up...one day:-)
by Daisy3
Fri Jul 08, 2011 9:38 am
Forum: Stem Cells
Topic: a first
Replies: 5
Views: 1938

wow. Can they replace spinal cords? :-/
by Daisy3
Tue Jul 05, 2011 12:37 pm
Forum: Stem Cells
Topic: 18 month post-HSCT and still going strong
Replies: 16
Views: 7217

Did you have RRMS? Does stem cells do the same for people with progressive ms? My MS started out as RRMS and continued that way for 11 years until I went SPMS for the last 4 years of my disease progression at the time of my HSCT. Bottom line, HSCT works on the majority of all types of MS (including...
by Daisy3
Mon Jul 04, 2011 12:33 pm
Forum: Stem Cells
Topic: 18 month post-HSCT and still going strong
Replies: 16
Views: 7217

Did you have RRMS? Does stem cells do the same for people with progressive ms?
by Daisy3
Sat Jul 02, 2011 12:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Autoimmune The Real Hoax: Dr. Hubbard
Replies: 14
Views: 3431

More research is needed though. The results so far are a real mixed bag with most people not doing as well as they thought they would. I don't want the MS community to be bogged down with another theory that sounds great but does not actually work in practice. Finding out what causes MS would be a g...
by Daisy3
Wed Jun 29, 2011 5:26 am
Forum: Antibiotics
Topic: Old questions
Replies: 30
Views: 9327

Sarah, We emailed back and forth a while ago. My husband has PRMS. We tried the N-acetyl test (think thats how its spelt) for the time it was recommended. The only thing he got was a slight runny nose,but he wasn't sure if that as due to the rain he got caught in or not. I think we were expecting a ...
by Daisy3
Wed Jun 29, 2011 5:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Internet considered harmful
Replies: 17
Views: 4546

Neurology is a complete waste of time for MS. Neurologists don't like being challenged by patients they cannot help. I sometimes wonder how it must feel to be a useless dr in a made up profession where nearly every patient you meet gets worse. I guess neurologists develop thick hides to deal with th...
by Daisy3
Tue Jun 28, 2011 11:23 pm
Forum: General Discussion
Topic: Breakthrough in the search for new treatments for MS
Replies: 24
Views: 5615

I feel very despondent today. My husband has had some sort of relapse which has made his walking even harder then it was and his nystagmus so bad that watching TV or using the computer has become an even bigger challenge. Researchers have spent so long searching for what the hell MS is and they hav...
by Daisy3
Tue Jun 28, 2011 11:20 pm
Forum: General Discussion
Topic: MS docs in NYC?
Replies: 3
Views: 1450

Katecw,

How is the treatment working out for you?
by Daisy3
Mon Jun 27, 2011 11:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Zamboni: 'To not give false hopes, you have to do studies'
Replies: 1
Views: 1635

We were going to do this but have changed our minds now.

Studies are the way forward. I would like to know why not all people respond to CCSVI and why those who do cannot always maintain their new changes.
by Daisy3
Mon Jun 27, 2011 11:29 pm
Forum: General Discussion
Topic: Breakthrough in the search for new treatments for MS
Replies: 24
Views: 5615

I feel very despondent today. My husband has had some sort of relapse which has made his walking even harder then it was and his nystagmus so bad that watching TV or using the computer has become an even bigger challenge. Researchers have spent so long searching for what the hell MS is and they have...
by Daisy3
Mon Apr 18, 2011 11:53 pm
Forum: Medical Devices
Topic: Terry Wahls and using a neuromusular Aide: The 300 PV EMP
Replies: 23
Views: 30420

woud participation depend on how bad you were to begin with? My other half has tried the bioness. It does nothing for him mainly cos he walks better then what the machine deals with. However, when he tires and stumbles,the machine is still unable to offer any sort of aid. Were beginning to think his...
by Daisy3
Fri Apr 15, 2011 7:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A request
Replies: 56
Views: 10822

Thinking of you and wishing you well..
by Daisy3
Fri Apr 15, 2011 7:45 am
Forum: General Discussion
Topic: Critical MS data presented by Mount Sinai researchers
Replies: 1
Views: 1602

There is never any good news is there..

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