This Is MS Multiple Sclerosis Knowledge & Support Community

BooBear, I heard two days ago about a very very prestigous university (USA) that is about to make an announcement that will absolutely be the game changer. I don't want to jinx anything by saying anything more just know that it is very real and very exciting. Now that is unfair, mangio! No more alm...

Dr. Siskin trained under Dr. Sclafani (not for CCSVI). His bio is quite impressive: http://www.communitycare.com/MedicalServices/Interventional_Radiology/Gary_Siskin_Bio.asp . When I spoke with him on May 16th he had already performed procedures on 15 MS patients. By the time they get to me, that nu...

BooBear wrote:Still absolutely no call. I am starting to lose heart.

ARGH!!!!!

Don't lose heart. The trickle will become a stream and the stream will become a river and the river will become a flood and the flood will drown a few neurologists, pharmaceutical companies and MS Societies. Your turn will come.

Follow the link on the very first post of this thread. Their phone numbers are on the left side of the page.

Thought the following from Dr. Siskin might help calm everyone's nerves. He did not get to where he is at by being disorganized. He clearly understands our anxiety and everyone at his clinic is working hard for us. Have faith. I have to tell you that we are very compulsive about keeping a list in th...

MS_mama wrote:awesome, Flash... lucky you got those frequent flier miles! Are you scheduled for hospital or surgery center?

Don't know and don't care!

Seriously though, I will let you know when I get my follow-up email which should cover that.

Just got the second call. I have been scheduled for July 12th!!

For those who were wondering about how bmk1234 got such an early date (June 16th) I believe it was due to a cancellation.

Now please excuse me while I go cash in my frequent flier miles...

What!? That's my neuro and he told me I could be subject #1. Guess I need to drop him a line!

Cece wrote:So the concise question is: what effect does the slowed perfusion in MS have on the temperature of that blood and, if there is an effect, how does it affect the central thermoregulatory function in the hypothalamus?

For us hot-heads, that is a question to which we already know the answer!

No, but sarcasm obviously is!

Zamboni did a good job of classifying the stuff he saw in his first study. Table III breaks down the different issues he found in his 65 MS patients. About 46% had valve issues. Click on the link to see the table:
http://db.tt/OmXJE8

Uh, that's what I was doing...raising awareness....

Email From Buffalo: Dear _______: Thank you for your application to the CTEVD research study being conducted by the Buffalo Neuroimaging Analysis Center and the Jacobs Neurological Institute in Buffalo, NY. At this time, we have completed enrollment of MS patients who are male, aged 40-49, with a di...

...or inverted

Of the 65 patients in Zamboni's seminal paper 30 had a septum/valve malformation on the right IJV and 28 had one on the left IJV.