Search found 69 matches

by Hockeydad
Fri Jul 30, 2010 7:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ontario Will NOT Fund Clinical Trials
Replies: 14
Views: 3443

I do believe that you can get any follow-up done by BVI. Angela can still scan you to see if you have re-stenosed.
by Hockeydad
Thu Jul 29, 2010 9:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cost of Liberation in Albany?
Replies: 14
Views: 4304

I think it's on their website. I seem to remember their admin person saying that it "started at 3k". What that means and where it ends , I don't know.
by Hockeydad
Thu Jul 29, 2010 4:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ontario Will NOT Fund Clinical Trials
Replies: 14
Views: 3443

That"s true Blaze. I spoke to the Barrie Clinic yesterday. They are waiting on their approval to begin. They already have their team of doctors and support staff trained and ready to go. It just sucks that we have to sit and wait on some bureaucrats. BTW, who is this head of the CMA; Paul Heber...
by Hockeydad
Wed Jul 28, 2010 5:44 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ontario Will NOT Fund Clinical Trials
Replies: 14
Views: 3443

I saw in an interview that he's sympathetic to the cause as his uncle was an MS'er. There's a Premier's conference coming up in August and the Saskatchewan Premier has said that he'll bring it up then. Dalton's on his way out and you can bet the opposition will smell an opportunity to nail him in th...
by Hockeydad
Tue Jul 27, 2010 4:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 204209

Gee I hope all is ok in Albany, I'm supposed to go in November!
by Hockeydad
Tue Jul 27, 2010 3:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is weight training bad if you have CCSVI?
Replies: 10
Views: 2939

I'm not a doctor but I am an gym rat. My trainer (who was a medical doctor in Russia) has insisted that I keep my leg and cardio exercises going. He was worried about some atrophy setting in. I have not raised the weight that I use, but I don't do weight training and cardio in the same session, like...
by Hockeydad
Mon Jul 26, 2010 7:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI Alliance
Replies: 38
Views: 9067

Is it just me or is anyone else getting a Windows error message when trying to access the site. Maybe my office internet protection is on steroids today :roll:
by Hockeydad
Sat Jul 24, 2010 1:05 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2371602

Redfern, I was tested by Angela as well. I'm hoping Dr Mac gets his trials going soon, that's ultimately where I'd like to go. Good luck to us all!!
by Hockeydad
Sat Jul 24, 2010 10:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2371602

Thanks Cece. Not sure if I'm happy or scared :oops: I'm on 2 waiting lists now. 1 in Albany and in Arizona. Any opinion on which is "better"? Not sure if there is a "better", but Albany is much closer to get to.
by Hockeydad
Sat Jul 24, 2010 6:19 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2371602

Hi Dr S and everyone, I got my report for my CCSVI test. Out of the Zamboni 5 marker citeria, I have 4. Other than that I don't understand anything that was written. Can anyone put this in english? For the right and left; there is no thrombosis, There is venous insufficency with reflux in the IJV at...
by Hockeydad
Fri Jul 23, 2010 10:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Newbe & ? about CCSVI
Replies: 11
Views: 2533

I'm finally on some lists too. Albany and Arizona. Hoping for Dr MacDonald in Toronto to start.
by Hockeydad
Tue Jun 08, 2010 9:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: LANDMARK CASE ???? A link ???
Replies: 11
Views: 3446

Wow, me too. After a real tough workout, I had a a tingle in my left arm. Within a week it spread to my feet. Hmm.
by Hockeydad
Mon Jun 07, 2010 6:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: ***URGENT MESSAGE RE: MSSC BOARD ELECTIONS***
Replies: 15
Views: 4994

I was informed of Janet Heisey's mission this morning. Coincidentally I was going to post about this as well. I have sent her my proxy.Good luck to us all. Thank-you Janet.
by Hockeydad
Thu Jun 03, 2010 9:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Barrie Vascular Imaging
Replies: 9
Views: 3828

Good luck, maybe you'll beat my 4 :lol: , hopefully,by the time you go, they'll be performing the procedure as well. I wouldn't be surprised if they call you and move the date up as they are training more techs this month.
by Hockeydad
Wed Jun 02, 2010 9:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Barrie Vascular Imaging
Replies: 9
Views: 3828

I got no hints, as I wrote; she's a good poker player. You should get results within a week. They fax the results to the referring doctor, so you have to get the results from him/her.

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