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by flora68
Fri Mar 04, 2005 10:34 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Tysabri & the Immune System
Replies: 42
Views: 12932

Great article! Thanks Harry :) .
by flora68
Fri Mar 04, 2005 11:10 am
Forum: General Discussion
Topic: Attn: Odd Duck... Kim42 told me you can help me. Please!!!
Replies: 11
Views: 3547

msucantsmokeme wrote:I didn't even think of that.

I believe I will report it to The Port Authority police right now. Thanks!
Go get 'em!
by flora68
Fri Mar 04, 2005 11:05 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: Biogen Idec, Elan Suspend Use of Tysabri
Replies: 83
Views: 25685

....Please look back at my original post, I was not venting. My goodness, I didn't realize how personal some folks take things here. BTW, there have not been 2 deaths.....there has been one. It's statements like that, that upset me. Also, Harry didn't "figure" it out. He was merely repeat...
by flora68
Fri Mar 04, 2005 8:59 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: Biogen Idec, Elan Suspend Use of Tysabri
Replies: 83
Views: 25685

coolycat wrote:....Also, did you see that the second person with PML, has NOT died? That story was retracted.
What specifically is your source for this information?

Below is my source for info on the 2nd death.

http://www.forbes.com/work/feeds/ap/200 ... 62899.html
by flora68
Fri Mar 04, 2005 8:34 am
Forum: Low Dose Naltrexone
Topic: How we all doing on LDN?
Replies: 31
Views: 19473

Is it the LDN?

Guys, I've been thinking.....I've been feeling and walking so much better lately that I'm beginning to suspect that it really is the LDN, and not just the placebo effect. (Although my respect for the placebo effect remains undiminished..... :wink: )
by flora68
Thu Mar 03, 2005 12:22 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Biogen Idec, Elan Suspend Use of Tysabri
Replies: 83
Views: 25685

coolycat, if you're still around... I know a lot of other people feel the same way you do about Tysabri looking so promising, and then being taken away as suddenly as it was released. Angry, frustrated, despondent, suspicious, in denial, whatever ; there are a lot of bad feelings. Regardless, they'r...
by flora68
Wed Mar 02, 2005 6:18 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Biogen Idec, Elan Suspend Use of Tysabri
Replies: 83
Views: 25685

Flora, What newspaper was it from anyway? I saw "Times", but don't know which "Times". To tell you the truth, I don't know. I picked up the article on the net and posted it here. The story originated in Washington but that's all that was there. Harry That's OK, Harry. I found it...
by flora68
Wed Mar 02, 2005 5:12 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Biogen Idec, Elan Suspend Use of Tysabri
Replies: 83
Views: 25685

Harry~

Thanks for pasting that last article. It was terrific; very clearly and intelligently writen, really right on-the-money (pun intended :wink: ).

What newspaper was it from anyway? I saw "Times", but don't know which "Times".
by flora68
Wed Mar 02, 2005 8:37 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: Tysabri Suspension - after shocks will be?
Replies: 60
Views: 18561

R Bless your heart! I know what you mean about some doctors. And we have to have one, don't we? So we do our best to ride out their storms of ego and indifference. As surely as power corrupts, I think some docs just get carried away on a power trip, thinking that we're supposed to perceive them as g...
by flora68
Wed Mar 02, 2005 6:59 am
Forum: Tysabri (Antegren, Natalizumab)
Topic: Tysabri Suspension - after shocks will be?
Replies: 60
Views: 18561

Its always worth remembering to proceed with caution with off label drugs. Their safety profile will have been established with healthy volunteers as well as the group of people the drug was originally targetted for (which will probably not include people with MS) I suppose doctors are nervous of a...
by flora68
Mon Feb 28, 2005 9:19 pm
Forum: Low Dose Naltrexone
Topic: Doctors that Prescribe LDN
Replies: 103
Views: 161704

nana

Welcome, nana! :) I'm especially glad to hear how well you're doing on LDN, both for your sake, and for mine, because I just started LDN too, on February the 10th. And I'm doing fine too.

Best wishes from Texas on a very pleasant evening. And good luck to both of us!
by flora68
Mon Feb 28, 2005 7:45 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Biogen Idec, Elan Suspend Use of Tysabri
Replies: 83
Views: 25685

-- is there a way we can be tested to find out if we're in the 30 percent who never contracted JC virus (probably because of natural immunity)? lurker, I'm clearly no scientist, but until one pops up to answer your question.... I don't know whether there is one, but I don't really see how a test fo...
by flora68
Mon Feb 28, 2005 6:33 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Biogen Idec, Elan Suspend Use of Tysabri
Replies: 83
Views: 25685

:cry: It is a very, very sad day for me and my husband. Why did I have hope in Tysabri? I watch my husband die a little more each day. I watch him fight, and I feel him take my life down with him. I always try to keep up a "happy" face and move on. BUT it is hard to do day in and day out....
by flora68
Mon Feb 28, 2005 1:15 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Biogen Idec, Elan Suspend Use of Tysabri
Replies: 83
Views: 25685

Flora, Interesting info you posted on PML and the response by Elan. I don't know how many times I commented on the mistrust I had about Biogen/Elan and the poor reputation Biogen in particular had within the medical community when it came to honest data reporting.... Harry Harry, do you know of any...
by flora68
Mon Feb 28, 2005 12:02 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Biogen Idec, Elan Suspend Use of Tysabri
Replies: 83
Views: 25685

.......I've noticed one important bit of misinformation about this situation that's popped up more than once today in news articles and in posts....regarding PML, the condition that caused the sudden halt in Tysabri use. Hopefully this error was totally inadvertant, but my cynical side won't rule o...

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