This Is MS Multiple Sclerosis Knowledge & Support Community

I am advised to try the colustrum/stemcell products first and then after seeing how that goes go to Germany. I am off to another seminar on Thursday to hear this woman talk who has has MS and been on the product with a lot of success. She was not granted the stem cell procedure due to having had can...

Sorry, I haven't posted earlier - been so tired. They suggest trying colustrum products first and then the stemcell treatment. Aooarently there is an Australian women - they played a video who has it - she has done well. I have tried so many vitamins and crap that I think the stemcell treatment is t...

You may have said what type of MS you have but do you know if it works for primary progressive? Such a horrendous disease I hope you continue to improve!

My husband is going to a seminar tomorrow night about stem cells which is carried out in Germany. I just hope it isn't all hype. I am primary progressive - I can still walk short distances but my balance amongst other things is compromised. I hope you continue to improve - it sounds as though it is ...

My husband is going to a seminar tomorrow night on stem cells used in parkinsons and ms so I will let you know what happens.

They fortunately take the stemcells from your own body so you know what you are getting I guess!

Yes I have herpes unfortunately which has affected the same side I have lost most of my balance and movement. My husband has also had menieres disease and has therefore had himself deafened in one ear - he has also had herpes. No I am not a dirty puss but just unlucky - real unlucky. I do think ther...

What about Zanaflex everyone, gosh I can't even remember where the question mark key is so do pardon me.

I am keen for some thing!


JAM

Thank you for responding, I am always amazed at your willingness to help! My doctor and pharmacy have provided a schedule outlining the best way to take it so I will give it a go. As they say, nothing ventured nothing gained. I have to agree about the incompetency of neurologists with the illness. I...

Thank you for taking the time to respond. It was not what I wanted to hear but what I had expected!

Does anyone think trying a low dose of Baclofen would be useful?


Thanks


Jam

Just wondering if anyone has found the best spasticity medication as I need some thing to do my Xmas shopping with and to be able to move about the house for any length of time would be good.

Many thanks

Thanks for the response guys. I forgot to say she let the alarms off on my son's car just trying to get in it! I did not feel like I was, I will try to let it go now and move on as you said.

Thanks a lot for responding.


Jam

I need your opinion pse. Nothing is clear with ms. I invited two people around yesterday because they had been harping to get here. I was goind through an exasberation which I don't normally get being progressive. Anyway the women proceeds to roam through rooms of may house saying what do you have n...

I am not sure if I have the name right but can anyone help on this? My doctor said there was something available to some (just coming in). Does anyone no about this please?

Jam

Thanks for the response. I have gone off the diet - too depressing. I am a vego anyway, have been for over 40 years so I am not sure how relevant the diet is. I should have said that he does advocate fish oil and you can eat fish but no poultry. Do you honestly believe diet could change ms - he has ...

Just curious - the Jelinek diet is a more radical version of the Swank.

No meat, no fats including dairy - does your head in really. Anyone on this?

I am below 40kgs (female) and I don't think wise - any comments?

Thanks Jam