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I would sent your scans to Dr. Dake ASAP.

This is truly terrifying. When was the last time your stents were looked at? I didn't think stents could move after endothelial tissue grew over it.

I'm going on 5 years of improvement. I have had three procedures. I believe it takes more than one in most. My symptoms started coming back and I went in. If you had improvement and it goes away, you need to get back in.

Thanks for the reply! I had stents with my CCSVI treatment and they are all in good working order. They have cured my POTS and have really helped me improve. My doctor is suspicious of the more uncommon types of EDS. He is trying to find a geneticist for me. Then, I think I may have to go to Marylan...

I have started taking Diamox for the intracranial pressure headaches I have. I've noticed some benefit in the intensity of my headaches.

Will do!

Hey Blossom! Thanks for the reply. I am really pleased I fixed my venous blockages because at least I fixed one of my problems! Now, to keep moving forward to fight and fix the rest where I can. I guess there aren't too many people with EDS around here! I thought I might find a few.

I've been diagnosed with MS, CCSVI, POTS, IBS, Fibromyalgia, Chiari, Degenerative Disc Disease, RA, Hashimoto's Thyroiditis, Endometriosis, and Scoliosis. I've been treated for CCSVI successfully and I receive Atlas Orthogonal adjustments on a regular basis. Both of these have resolved the hypo perf...

I've had great results with my procedures since 2009. I've had three. Best decision I've ever made. I've also had no progression.

Even though I had much success with my CCSVI treatments, I recently began AO treatment for continued headaches and neck pain. It has been very successful in relieving my pain. My Atlas and Axis (C-1and C-2) were very off and after even the first adjustment I was impressed with how good I felt. The t...

I'm here and still doing pretty great overall. I pop over every now and then.

My CCSVI treatments continue to improve the effects MS had on me. The benefits of restoring proper blood flow are nothing short of amazing. It's been 3+ years since my first treatment and I am so thankful for finding this board and the wonderful people on it who helped me find the doctors who treate...

I am very interested in your opinions about Dr. Rosa's study too. Any information or observations would be greatly appreciated.

That was very nice Marc! You answered the questions perfectly. And, you looked fine!!
I hope the new direction gives you some answers. Good luck with the chiropractor.

Dr. Sclafani, Are you aware of the FDA letter sent to Dr. Mehta? If so, does this have any bearing on you treating CCSVI? Do you see any additional challenges because of this, such as insurance or liability? I ask because I'm concerned that treating physicians may back off. I'd love to know your opi...