All the best as you continue to recover.
tilt
Search found 122 matches
- Mon May 21, 2012 6:10 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: May-Thurner diagnosis during CCSVI procedure
- Replies: 6
- Views: 1924
- Mon May 21, 2012 9:53 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Dr. Rubin's conflict of interest, explained by Kirsty Duncan
- Replies: 26
- Views: 4033
Re: Dr. Rubin's conflict of interest, explained by Kirsty Du
Un-fucking-believable.
tilt
tilt
- Fri May 18, 2012 2:19 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Dr. Rubin's conflict of interest, explained by Kirsty Duncan
- Replies: 26
- Views: 4033
Re: Dr. Rubin's conflict of interest, explained by Kirsty Du
I fear there is more douche-baggery on the horizon before this all settles down.
tilt
tilt
- Wed May 16, 2012 8:29 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: latest BNAC research
- Replies: 7
- Views: 1785
Re: latest BNAC research
And I had almost the opposite experience. My US done by Barrie Vascular noted 3 criteria for CCSVI. Then my US done in Brooklyn noted 4 of 5 criteria for CCSVI. Of course the rest is history. I guess what I am saying in a round about way is that I agree that it is only a bell weather test, if in fac...
- Sat May 12, 2012 10:59 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani answers some questions
- Replies: 8342
- Views: 2350375
Re: DrSclafani answers some questions
Further on the comments by Magoo and Cece, aggressive anti-CCSVI literature has arisen, which openly questions the existence of CCSVI as a pathological entity (CCSVI and MS: no meaning, no fact, Claudio Baracchini - Matteo Atzori - Paolo Gallo): "CCSVI appears to be a rather alien condition an...
- Sat May 12, 2012 10:57 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani answers some questions
- Replies: 8342
- Views: 2350375
Re: DrSclafani answers some questions
I went into the treatment as an atheist and skeptic. My friends and family rallied around me to look into this procedure since there was nothing left in the treatment box that was relevent; which led me here. I was certainly not looking for the kind of outcome I got, but just the reduction of some ...
- Sat May 12, 2012 11:40 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: FDA Issues Warning on CCSVI
- Replies: 70
- Views: 10978
Re: FDA Issues Warning on CCSVI
1eye wrote:Doesn't sound worth $30 to me.
That put me off too.
tilt
- Fri May 11, 2012 12:38 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: A worry
- Replies: 6
- Views: 1792
Re: A worry
A week or two ago, I got my husband out of the house on a bike ride, and I got my kids out to the back yard, and it was briefly relaxing. Then my son calls up from the back yard that Dad's back, and he crashed his bike. Really? He's walking around, so I'm not too worried, but yeah, his leg had a ga...
- Fri May 11, 2012 12:34 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: FDA Issues Warning on CCSVI
- Replies: 70
- Views: 10978
Re: FDA Issues Warning on CCSVI
Multi-level funny. Nice.1eye wrote:Weeeellll.....sniff....I ain't a-gonna let no eff-de-aye scare me. I already had my tonsils out. I din't need no stimps, neither.
tilt
- Thu May 10, 2012 11:30 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: I was interviewed on CBC News regarding CCSVI and FDA
- Replies: 18
- Views: 4091
Re: I was interviewed on CBC News regarding CCSVI and FDA
I was surprised to be invited to appear as a guest on the "Connect with Mark Kenney" show Thursday night. Upon returning home from a pain management Dr. appointment, I received a note from one of the show's producers on my blog, and two hours later I was sitting in a small studio staring ...
- Thu May 10, 2012 2:14 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: FDA Issues Warning on CCSVI
- Replies: 70
- Views: 10978
Re: FDA Shutting Down CCSVI Research
Here's the actual communication from FDA. I don't like it. http://www.fda.gov/MedicalDevices/Safety/AlertsandNotices/ucm303318.htm Among their recommendations: Before considering CCSVI treatment, discuss the potential risks and benefits with a neurologist or other health care provider who is famili...
- Thu May 10, 2012 8:03 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: FDA Issues Warning on CCSVI
- Replies: 70
- Views: 10978
Re: FDA Shutting Down CCSVI Research
Imagine my shock!MarkW wrote:Is there any evidence that pharma is behind this move ?? In the UK the anti CCSVI lobby is a neuro led group.MarkW
tilt
- Wed May 09, 2012 11:17 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani answers some questions
- Replies: 8342
- Views: 2350375
Re: DrSclafani answers some questions
Dr.S I have just read up on others that have been treated and it seems to me to still be a guessing game from my prospective. And that must go for many others. Cece's comments have reminded me of the learning curve and the unknowns for each individual. Long distance, high cost packages for someone ...
- Tue May 08, 2012 2:14 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI in two days
- Replies: 47
- Views: 8499
Re: CCSVI in two days
Well, I wasn't going to post a 9 week report, but things have improved a bit so here I am. While I was numby all over last week, things suddenly got better last Thursday. Most of the numbness is gone, though some remains in my hands, but it is not constant. No leg heaviness or significant cog fog a...
- Mon May 07, 2012 10:58 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI without MS diagnosis?
- Replies: 30
- Views: 5468
Re: CCSVI without MS diagnosis?
Congrats!
All the best as you recover.
tilt
All the best as you recover.
tilt