Search found 180 matches

by lovebug
Tue Jun 11, 2013 8:45 pm
Forum: General Discussion
Topic: MS vs. blood pressure
Replies: 12
Views: 9899

Re: MS vs. blood pressure

Have any of you heard of `WHITE COAT HYPERTENSION` ? It can be a very real problem with people who take their BP continuously throughout the day! Perhaps this may actually be the underlying problem of having High Blood Pressure when in fact it may not exist. If you read up on this syndrome you becom...
by lovebug
Mon Jun 03, 2013 8:12 pm
Forum: General Discussion
Topic: Inosine
Replies: 28
Views: 3826

Re: Inosine

Sorry PN but I have both confirmed! MS and Gout !
by lovebug
Thu May 16, 2013 6:42 pm
Forum: Avonex
Topic: New Blood Test Predicts Who Will Benefit From Interferons
Replies: 8
Views: 10992

Re: New Blood Test Predicts Who Will Benefit From Interferon

Does anybody have any new information to add here on this topic?
by lovebug
Sun May 12, 2013 7:25 pm
Forum: General Discussion
Topic: High protein diet and Uric acid - just a shot in the dark?
Replies: 17
Views: 3292

Re: High protein diet and Uric acid - just a shot in the dar

My drs. idea was for me to take Colchicine and Methacine and than Uloric to keep things under control. I have to admit that I was not very smart about keeping the Gout in check for myself. I will be the first to admit I was dead wrong on that one. Diet should have been better controlled. But my Gout...
by lovebug
Sun May 12, 2013 6:09 am
Forum: General Discussion
Topic: High protein diet and Uric acid - just a shot in the dark?
Replies: 17
Views: 3292

Re: High protein diet and Uric acid - just a shot in the dar

My Gout started 4 yrs. before my diagnosis of MS. The MS came on sharp and fiercely all in one day. I found myself riding my horse one day to being wheeled into have an MRI done in under one week. My symptoms of numbness and pins and needles feeling was getting worse as the hours and days went by. I...
by lovebug
Fri May 10, 2013 6:38 pm
Forum: General Discussion
Topic: High protein diet and Uric acid - just a shot in the dark?
Replies: 17
Views: 3292

Re: High protein diet and Uric acid - just a shot in the dar

Well folks I definately have both problems. MS and Gout!
by lovebug
Mon Apr 15, 2013 2:45 pm
Forum: General Discussion
Topic: MS Hug information - updated 4/2/13
Replies: 44
Views: 12005

Re: MS Hug information - updated 4/2/13

It is truly amazing the information you can find from total strangers on this website. I have been fortunate to even have been able to personally meet one of my `internet` friends `MUSIC` through this website. We both had the CCSVI surgery done by the same dr., one week apart in california and live ...
by lovebug
Thu Apr 04, 2013 9:30 am
Forum: General Discussion
Topic: MS Hug information - updated 4/2/13
Replies: 44
Views: 12005

Re: MS Hug information - updated 4/2/13

`HAPPYPOET` Why on earth would you leave this post? ?????? You have done everything to help me/us out with more information each day to help deal with our pain. If it wasn`t for you I would not be going down this road to help with my nerve pain which is EXTREMELY painful to deal with not only physic...
by lovebug
Wed Apr 03, 2013 8:22 pm
Forum: General Discussion
Topic: MS Hug information - updated 4/2/13
Replies: 44
Views: 12005

Re: MS Hug information - updated 4/2/13

I have not had my B levels tested for awhile now but about 1 year ago I did have B-12 inj. done every 2 weeks for about 10 months. My next appt. for TPI. is monday so I will ask the Naturopath if he can do these inj. including steroids. If not I am going to contact a dr. at the pain clinic who is an...
by lovebug
Wed Apr 03, 2013 7:28 pm
Forum: General Discussion
Topic: MS Hug information - updated 4/2/13
Replies: 44
Views: 12005

Re: MS Hug information - updated 4/2/13

Well `HAPPYPOET` I went for my first trigger point injections today. The injections have lidocaine and B-12 in them. I cannot say that I noticed any improvement in the MS Hug. But than again I stopped believing in miracles a long, long time ago. I am going to continue with this line of treatment and...
by lovebug
Tue Apr 02, 2013 4:34 pm
Forum: General Discussion
Topic: MS Hug information - updated 4/2/13
Replies: 44
Views: 12005

Re: MS Hug information - updated 4/2/13

Happypoet-I thought I should tell you what happened to me today. I saw my Neurologist for my yearly visit. He keeps me on my DMD. I wanted his opinions on trigger point injections and intercostal block injections for nerve pain for the MS HUG. He didn`t really seem to know much about either procedur...
by lovebug
Sun Mar 31, 2013 10:45 am
Forum: General Discussion
Topic: MS Hug information - updated 4/2/13
Replies: 44
Views: 12005

Re: MS Hug information - updated 3/29/13

Thank You `HappyPoet` for taking the time to help me out!!!! It is extremely appreciated more than you will ever no!! I am currently enrolled in various classes at a Pain Clinic. I have been through the relaxation classes and yes it does help to some extent. Some of the things that you have mentione...
by lovebug
Wed Mar 27, 2013 3:41 pm
Forum: General Discussion
Topic: MS Hug information - updated 4/2/13
Replies: 44
Views: 12005

Re: MS Hug information

HAPPYPOET I have tried almost ever one of those drugs besides Methadone with nooooooooo help for nerve pain. I am beginning to feel like I am some kind of `freak` when it comes to these drugs. I feel like there is something in me that prevents pain relief from nerve paIn. Now does that sound nutty!!...
by lovebug
Wed Mar 27, 2013 6:22 am
Forum: General Discussion
Topic: MS Hug information - updated 4/2/13
Replies: 44
Views: 12005

Re: MS Hug information - updated 3/25/13

Hey HAPPYPOET Thank you so much for your e-mail about the injections. I am photocopying your e-mail and taking it with me when I see the Anaestiologist in May. Any idea about what can be done for numbness, pins and needles feeling in my arms to my hands. Maybe I have HOPE here..............
by lovebug
Tue Mar 26, 2013 6:00 pm
Forum: General Discussion
Topic: MS Hug information - updated 4/2/13
Replies: 44
Views: 12005

Re: MS Hug information - updated 3/25/13

Has anybody here ever tried a block injection (Intercostal Nerve Block) for the MS Hug (Intercostal Neuralgia) or Lidocaine I.V. ? I have had the MS Hug for about 4 years now and no drugs are helping with the pain. I am desperate for some type of pain relief so I have been researching the nerve bloc...

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