This Is MS Multiple Sclerosis Knowledge & Support Community

ThisIsMA wrote:What I want to know is if they did a separate analysis of improvements for the 53% of participants who achieved increased blood flow?

I believe they did not. They looked at the whole group as "treated" whether or not the blood flow improved.

Here's his Emmy acceptance speech from last fall. You can watch him run up on stage. That's me smiling. http://www.emmys.com/video/2017-creative-arts-emmys-music-composition-series-original-dramatic-score Ohhh I had not seen that. Yes, he had a very healthy stride up there! Congrats to him on the E...

So this is not dead because I went from a 4.5 on the edss scale to a 0.5 eight months after angioplasty? Buggs, that's wonderful. Am trying to be a better human online, like Cece and Jimmylegs I have had my moments. I guess that leaves Jimmylegs as the role model. Really really grateful for the who...

Yeah that's depressing.
The trial was designed for 400 but only 100 enrolled, which means it was underpowered, for what that's worth.
My personal experience remains as positive as ever. I feel really lucky to have gone for it when I did.

http://www.ctvnews.ca/health/jama-neurology-study-delivers-verdict-on-novel-ms-treatment-1.3684387 That research that could potentially explain cases like Tammy Lynn Tremblay. She was diagnosed with MS in 2006, and began losing strength, balance and vision. "I would end up in a wheelchair. It w...

More information on the damage to astronaut eyes during long term spaceflight. It was on CNN's website so probably fake news. Just kidding. Thought this was interesting, the idea that eyes act like a pressure release valve to a brain that has too much cerebrospinal fluid pressure. http://www.cnn.com...

From the introduction: We and others recently proposed that microglia activation, production of reactive oxygen species and oxidative damage are key mechanisms driving demyelination and neurodegeneration, particularly in the progressive disease stage (Haider et al., 2011; Fischer et al., 2013). In a...

Best wishes, violin! Dr. Sclafani once shared with us images of the jugular vein valves of a Lymes patient. IIRC, the valves were bumpy and stuck in place, blocking flow, as opposed to smooth (but also stuck in place, blocking flow) like the valves of MS patients. This was suggestive that the blocke...

All you guys out there, please tell me, is all I see here true? Including Dr S being a good safe doctor? I beg anyone to answer me. For me I had real and lasting results (but I had no mobility issues so nothing to change there). I was treated by Dr. Sclafani, I consider him a very good and safe doc...

This is coming soon! "It is understood that the trial outcomes will be released at the 2017 Veith Symposium in November 2017 and also highlighted in February 2018 at the Australian College of Phlebology's annual Conference in Melbourne."

"Lack of standardization" and "dearth of large-scale prospective studies" can both be blamed firmly on those neurologists who love media coverage more than science, and have gone out of their way to suppress the suggestion that there might be venous problems associated with MS, ...

I don't think so. CCSVI means that the blood flow drains more slowly from your head. By inverting, it would drain even slower yet, which would be the opposite of what's wanted. Even after angioplasty, if the area of the valves has been ballooned, the valve may have been destroyed and therefore would...

http://www.medlink.com/scripts/mpdf/print_friendly.php?title=chronic_cerebrospinal_venous_insufficiency&action=print&channel=public_content&entryid=19127 A report from ISNVD? It's a detailed 11 page overview of CCSVI, with pages of citations, by Dr. Zivadinov and Dr. Jakimovski of the Un...

Rogan wrote:Everyone looking into this discusses how varied we all are when it comes to brain flow dynamics.

Yes! All the variations, with the similarity being slowed blood flow, whether it's from a valve blockage, an external compression, a hypoplastic jugular, etc, etc.

To change the subject: Cece, Cheerleader, Rogan, others? I had been hoping there would be new information about Dr. Zamboni's Brave Dreams trial presented at the ISNVD 2017 Conference, and that we would learn about it here on ThisIsMS. Any news on this? Will a summary or more highlights of the conf...