This Is MS Multiple Sclerosis Knowledge & Support Community

Dear doc, I have one question and I need your experience with this. After the initial post CCsvi period of 5 months which was very good, I am down with relapses again. My normal blood pressure is 110/70. If it goes up to 120/80 i have a shortness of breath, if it goes below, e.g. 100/60 I feel dizzy...

Good call. Well spent money. Even if the results are short-lived, using it every day or at your convenience is good. I already spent 25k roughly for the CCSVI so far, and again with relapses now. Maybe it is better to invest in something like that.

I also suspected restenosis, but there was none. It is important to check this out.

I don't know where you get the info about the no of patients treated in bg, but on the 5th june, when I was released, I was marked as the 159 patient. Up to now, my guess is that they've had at least 500 patients.

My experience was ok, but I presume one shouldn't trust too much any doctor!!! No matter how much or how little, any doc is materialistically driven.
Both of the docs were good to me, especially doc. Petrov. If only it were up to them about my MS... I guess each experience is different.

So how much does it cost to get a chamber like that? In my lil country there is only one, used by the recovery patients of plastic surgeries. So I will need to pull a lot of strings to get in...

Saunas are too humid, I'd go to hot rooms (kind of dry saunas, i dont know the name exactly). I have problems in cold, not so much in hot.

no, I have RRMS, for 10 years now, am quite OK unless I'm in a relapse, had a liberation procedure in june (6 cm stent in right jug, ballooning of the left jug and azygos), relapsed in Nov, veins wide wide open :) I suggest you also read the posts of people who had relapses after the treatment P.s. ...

I've had relapses with nausea and vomiting, continuous, for 5-7 days. Since I can not take Eglonyl (something for the stomach) orally at those times, I take them through injections twoce a day. I found that was the only way to calm my stomach and vomiting. I hope this helps.

1. yes
2. no
3. no

This is due to the blood thinners. If it is not too much of a problem for you, keep taking them. You can also consult with your doc. The periods have been heavy for me also. Now, after 7 mos, I think that the blood thinner's effects are almost gone, I even think that my blood is as thick as it was b...

Dear Liberation, everything that you suspect of might be the reason for your decline. Also, you must accept that this procedure is not fully explored so far, as well as its effects on MS. They are two different conditions. I remember just before the procedure, lying in the hospital bed and reading h...

Thanks for this, Asher. I think I've been trying to find excuses for CCSVI all over this site so as to approve the existence of my b**** stent in the neck which hurts like hell at times... The same story with me, now I relapse every 2 weeks, I haven't been worse before. I even think that maybe I did...

I elevated my bed somewhat before the liberation procedure and I slept on that for 3-4 months. No changes. But it definitely has sth do do with the blood in the veins. Though the findings are quite contrary: in a sitting position, the veins collapse, they are at their fullest while lying horizontall...

Very, very true. That's what I've been trying to ask, but didn't have the strength nor will to research, you people are brilliant. Dr. Grozdindki knows this, he always says to me that I should exercise and move, not be static. Not climb a mountain though... One more thing that I notice now and I've ...