This Is MS Multiple Sclerosis Knowledge & Support Community

Sorry, the quote thing didn't work!

Kerri said......

Will do another video next week but just to say I am going from strength to strength as the weeks go by

Smokey said!

Really looking forward to the next video. Go Kerri!

Prof. T intends to consult with neurologists at the end of the pilot clinical trial.....could take quite a while to put together a joint research proposal - and very challenging to structure it!! I can't imagine many people would be stepping up to be controls! I can appreciate fully why further tri...

From a CTV W5 report on CCSVI treatment in Kuwait. Sinan is an interventional radiologist: 'Sinan says all of the patients saw improvements in their MS symptoms, with some noticing "dramatic" results. "On one day, on March 3, we did three patients. Two had dramatic improvements on the...

Hi, just to clarify.....I was scheduled for a consultation with Prof. T, not an angioplasty. I'm glad I had the consultation. I'm clearer about the/my condition, if not what it might mean for MS! I guess we're still all in the dark on this one. My understanding is that those whose ultrasound results...

Smokey, The initial (pilot) clinical trial @ the Alfred has already begun (first 20-30 angioplasties) and an evaluation of these patients' clinical outcomes in May-June will determine an expanded clinical trial's framework. Evaluations will probably continue over at least 18 months. This process wi...

Mind you, clinical trials take forever to set up. Not happy Jan!

Hi everyone - well, saw Prof. T today and here are the results. 'The superior right internal jugular has a stenosis of greater than 50%. There is also a mid-vein stenosis present measuring greater than 50%. Left jugular vein all normal'. And yes, it's true that Prof.T is not accepting any new patien...

Hey Kerri, I wouldn't have known about CCSVI, ultrasounds or Prof T without you! I'm sure the medico's who are exploring CCSVI are serious and passionate about what they are doing, have a good understanding of the media and also the politics within the medical profession! Boundaries of understanding...

Have my ultrasound on Thursday morning in Melbourne....here's hoping. See Prof T on Friday.....here's hoping even more!

Signs and Symptoms All of the following symptoms may not occur in all cases; however, they are the most common problems associated with Optic Neuritis. •Pain with eye movement (more the 90% of patients) •Tender, sore eye •Mild to servere decrease in central vision •Dull, dim vision •Reduced color pe...

I've found that Panadol has worked well - once I sorted out the stomach ache from Avonex! You mightn't have stomach aches. It's not easy accepting the diagnosis, and I struggled with this too. I've been doing fine with Avonex, and I'm very interested in CCSVI...this website has been wonderful for fi...

Hi - I had an 'isolated incident' about 8 months ago, with optic neuritis - and I've been injecting with Avonex since. I have a severe needle phobia so it took me about 6 months to desensitise, but I'm injecting independently now. It's better (for me - others might be different) to inject at about 1...

wish I lived in Albany! Sigh.
Do you know of any clinical trials in Australia?

Hi - just found the CCSVI Aussie Action forum - great idea. I'm booked in for an ultrasound on 8th April, then to see Prof T on 9th April. I'm watching all of your news with interest. Smokey.

Thanks for your welcome NHE, this is a terrific forum. Very helpful.....supportive.