Search found 82 matches

by TeresaL
Fri Nov 14, 2014 12:29 pm
Forum: Drug Pipeline
Topic: IVIG
Replies: 0
Views: 1641

IVIG

Lyme disease triggered my MS about 25 yrs ago. There was a time when I took ivig50 g per month and it was helping. Thus January cigna denied coverage. Had to go to HR, got it covered again. Getting port on Tuesday. I have tried Copaxone, calcium EAP, Prokarin, B1/liver extract shots but I am hoping ...
by TeresaL
Thu Oct 30, 2014 9:58 am
Forum: Drug Pipeline
Topic: ccsvi
Replies: 4
Views: 2837

Re: ccsvi

I saw Dr Siskin for CCSVI. Helped right after but it didn't last. Stent got clotted, went back twice but no luck.
Helped but didn't last.
by TeresaL
Thu Oct 30, 2014 9:54 am
Forum: Drug Pipeline
Topic: Stem Cell
Replies: 7
Views: 4026

Re: Stem Cell

I had a SCT 5 mos ago. Hasn't helped. Went to StemGenex in CA
by TeresaL
Sun Jul 06, 2014 8:08 pm
Forum: General Discussion
Topic: about to stop tecfiera after 8 wks? any silver lining here?
Replies: 4
Views: 1435

Re: about to stop tecfiera after 8 wks? any silver lining he

I had been on copaxone for about 5yrs then tried tecfidera the beginning of 2014, took it for 4 mos and kept getting worse. Now I am back on copaxon, seems to work better for me.
I had SCT on June 2014 at StemGenex in CA. Have had small improvements so far.
by TeresaL
Mon May 05, 2014 1:10 pm
Forum: Drug Pipeline
Topic: Tecfidera
Replies: 3
Views: 2746

Tecfidera

I stopped Copaxone for 4 mos to try Tecifedera but got worse, now back on Copaxone.
by TeresaL
Mon May 05, 2014 1:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: It worked for 3 mos then....
Replies: 0
Views: 1258

It worked for 3 mos then....

Then my vein got clogged again. Went 2 times to open it up again. Had pain, discomfort for 3 yrs with stents blocked. Got new vein ( from leg) last yr. No better, no worse.
Now going to StemGene for SCT in 2 Wks!
by TeresaL
Thu Nov 21, 2013 3:36 pm
Forum: Regimens
Topic: Anyone currently using the Cal EAP protocol? In the USA?
Replies: 21
Views: 24150

Re: Anyone currently using the Cal EAP protocol? In the USA

I use the Cal EAP suppositories from College pharm. in Boulder CO. 400 mg. my veins are terrible This works well for me

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