Search found 82 matches
- Fri Nov 14, 2014 12:29 pm
- Forum: Drug Pipeline
- Topic: IVIG
- Replies: 0
- Views: 1641
IVIG
Lyme disease triggered my MS about 25 yrs ago. There was a time when I took ivig50 g per month and it was helping. Thus January cigna denied coverage. Had to go to HR, got it covered again. Getting port on Tuesday. I have tried Copaxone, calcium EAP, Prokarin, B1/liver extract shots but I am hoping ...
- Thu Oct 30, 2014 9:58 am
- Forum: Drug Pipeline
- Topic: ccsvi
- Replies: 4
- Views: 2837
Re: ccsvi
I saw Dr Siskin for CCSVI. Helped right after but it didn't last. Stent got clotted, went back twice but no luck.
Helped but didn't last.
Helped but didn't last.
- Thu Oct 30, 2014 9:54 am
- Forum: Drug Pipeline
- Topic: Stem Cell
- Replies: 7
- Views: 4026
Re: Stem Cell
I had a SCT 5 mos ago. Hasn't helped. Went to StemGenex in CA
- Sun Jul 06, 2014 8:08 pm
- Forum: General Discussion
- Topic: about to stop tecfiera after 8 wks? any silver lining here?
- Replies: 4
- Views: 1435
Re: about to stop tecfiera after 8 wks? any silver lining he
I had been on copaxone for about 5yrs then tried tecfidera the beginning of 2014, took it for 4 mos and kept getting worse. Now I am back on copaxon, seems to work better for me.
I had SCT on June 2014 at StemGenex in CA. Have had small improvements so far.
I had SCT on June 2014 at StemGenex in CA. Have had small improvements so far.
- Mon May 05, 2014 1:10 pm
- Forum: Drug Pipeline
- Topic: Tecfidera
- Replies: 3
- Views: 2746
Tecfidera
I stopped Copaxone for 4 mos to try Tecifedera but got worse, now back on Copaxone.
- Mon May 05, 2014 1:08 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: It worked for 3 mos then....
- Replies: 0
- Views: 1258
It worked for 3 mos then....
Then my vein got clogged again. Went 2 times to open it up again. Had pain, discomfort for 3 yrs with stents blocked. Got new vein ( from leg) last yr. No better, no worse.
Now going to StemGene for SCT in 2 Wks!
Now going to StemGene for SCT in 2 Wks!
- Thu Nov 21, 2013 3:36 pm
- Forum: Regimens
- Topic: Anyone currently using the Cal EAP protocol? In the USA?
- Replies: 21
- Views: 24150
Re: Anyone currently using the Cal EAP protocol? In the USA
I use the Cal EAP suppositories from College pharm. in Boulder CO. 400 mg. my veins are terrible This works well for me