This Is MS Multiple Sclerosis Knowledge & Support Community

Dr. Sclafani, 1. Do you find new problems in the veins of (your new) patients who've had the CCSVI procedure in the past, 2. And if so , what are they? 3. Do you check your patients previous procedures, such as stents and coils if they would decide to have the CCSVI procedure. 4. Since the last conf...

Oh CureIous, I'm so sorry, this must be a difficult time for you. Life sure does throw us curve balls.
But it's good to hear you're still going strong.
God bless!!

Hi melsywooh, Your symptoms along with your dx of ON (optic neuritis)are just like mine were 11 yrs. ago. But it was actually a "pins and needles" sensation I had when diagnosed 20yrs. ago. Was it your eye Dr. who ordered an MRI or a neuro.? There is so much new info. regarding MS now that...

hi mlkos, I was diagnosed with RRMS 20 years ago. I chose no drugs for the first 10 yrs., and my mild undetected symptoms always lasted two weeks and never interfered with my job, jogging, everyday life, etc. Then after a dx of ON, I let my Dr. talk me into an MS drug. My disease progressed anyway, ...

Dr. Sclafani,
Is stem cell therapy the only way to replace neurons, can the body naturally replace them in time?
What is spastic paralysis? Can Hydrocephalus resolve after CCSVI treatment or will there always be issues due to scarring?

thank you

Dr. Sclafani, How is "neuronal death" determined, or measured? And can it be replaced or restored ever in time? What is "spastic paralysis"? Do your CCSVI patients (have headaches) notice improvement in headaches, or migraine? Thank you for all your replies, time and effort. I ap...

Dr. Sclafani, on another thread, "Albany Researchers Cancel MS Clinical Trial", you mention "There are patients who have delayed onset of some improvements up to one year after treatment" Can this be the case also in treatment of NCS and PCS? Have any of your CCSVi or NCS (20 yrs...

Cece,
Did the Dr. use IVUS, from what I've seen posted, it is best at determining stent size.

I tried the link but it did not work for me

I just found my medical report.
"Based on intravascular ultrasound... Two 12mmx40mm Protégé stents were deployed, one within the other with an overlap allowing total length of 5cm."

I had LRV stents placed this past December, and X-rays this past Feb. showed they are still in place. I maintain improvements unrelated (I guess) to MS/CCSVI, so I'm guessing my stented vein is patent. I don't recall the size of the stents. And like you Cinna I have chest pain, shortness of breath a...

Very happy for you CureIous,

CureIous,
Thanks for keeping us posted. This all sounds very promising. Is this Dr. offering (CCSVI) patients this
procedure outside of the study, or is it strictly for his study? And if you don't mind me asking, how are you doing
since your procedure?

Thanks for the update, CureIous,
Please let us know how it turns out, if you are able. Having another angio. scares me a bit.
I would love to be able to try something less invasive.

To me it looks like in #s 1,2,3,4&6, blood flow is trying to exit by way of RIJV only. I might be completely wrong
but it looks like there is no flow in the LIJV. The other pics., I won't attempt.
My question earlier, would you consider treating a patient who had four CCSVI procedures?

Thanks NHE,
That's alot of Turmeric, I think I'll add a supplement too. And thanks for the links!