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Chronic cerebro-spinal venous insufficiency: report of transcranial magnetic stimulation follow-up study in a patient with multiple sclerosis Plasmati R. 1, Pastorelli F. 1, Fini N. 1, Salvi F. 1, Galeotti R. 2, Zamboni P. 2 1 Department of Neurology, Bellaria Hospital, Bologna, Italy 2 Vascular Dis...

I have written to my GP insisting on a 'dianosis for VENOUS BLOCKAGE which would be dangerous'so that if they deny me this right I will SUE the HEALTH BOARD. The doc listened to my jugular vein..??could she tell which DIRECTION it was floweing in :? I have written you a private message about the ki...

There are two reasons for me not posting: 1. I don't ask Ella too many questions, and as she does not live near me it is difficult for me to say anything. If it had been a miracle cure for her as it appears to be for some other people it would be easier to say something, but any improvements she has...

From my reading of material and papers so far on CCSVI it appears that constrictions have nothing to do with plaques, but more to do with congenital malformations, pressures on the veins by bones or tissue, sometimes caused by compressure due to injury.
Maybe medical people will know different...

No ideas are stupid. We are in the process of procuring T shirts, with our facebook logo on it ... so not suitable for you maybe.

Go for it Livabird... let us know how you get on. We need people like you lighting beacons all over the UK. If there were more of you we would get to where we want to be sooner.

Livabird, we have to think of how best we can use our resources bearing in mind that many of our members are either overseas or have MS, we at MS-CCSVI-UK have to increase our membership of people able to turn out in great numbers to make a big noise. We were at the bottom on the media interest as t...

Livabird, may the 5th is the day before the general election, we are unlikely to be noticed and all the MPs are going to be in their constituencies... bad timing for us but nothing we can do about it. We will be doing something on the internet on that day but not in physical terms as a group. May th...

As some of you may know I am actively involved in the UK pressure group http://www.ms-ccsvi-uk.org - http://www.facebook.com/ms.ccsvi.uk. We are always looking for ways in which to add pressure to the bodies that are standing in our way. But there are a number of points I wish to make in reply to so...

Whyarewehere, you are right Gordon did not write the answer... In fact I don't think any one wrote an answer to the petition at all, because it is the same answer, in some parts word for word, that people who have written to the Health Department through their MPs have received. So it is a cut and p...

Erika, Brilliant as usual, this is what we want to hear the good and the bad. And it warms my heart to hear that you have many good improvements. You deserve it and it give us hope that we will all see ourselves or loved ones who have been Liberated making progress. Thanks you, Thank you from the bo...

Hi Mags, you can come and check us out at http://www.facebook.com/ms.ccsvi.uk or http://ms-ccsvi-uk.org our website. If you like the look of us we would love to have you... We always need researchers, people to write documents, people with some computer skills, people who are good at problem solving...

HI Erika, nice young woman you are... I often feel like I am only 37, unfortunately when I look in the mirror I can see that I am much older than that. I often don't say how old I am people get the wrong idea about you if they think you are past 50. (And I'm a lot past 50) but then I don't have MS o...

Pleased you like it Nigel. I was trying to combat the mother image. I am a lot older than most people in our little pressure group and I was being seen as the mother figure... It made me feel old and mumsy... So this is my new image...

Good luck to those of you who are going to Poland you are indeed very lucky to be going to the most experienced centre for this treatment. There have been some wild allegations thrown at them in the past few weeks, implying incompetence and opportunism. Please believe me (and tell me when you get ba...