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Hello everyone I just wanted to come on here real quick to thank everyone for their responses to my post. I cant tell you all how much that means to me to read all these well-wishes. And to my English Sister and my Greek Brother thank you so much and I wish you both the very best. I can't believe ho...

I am obligated to share this. Fact: I am so much more disabled since this operation the difference is unreal and very miserable. I am extremeley depressed. Way less function in hands, feet, shoulders ache, everything aches...type even less now. I do not come on here any more, it is very very depress...

jerkbutt, I am so sad for you, I don't know what to say. I did not know what to think but then last time you posted that she was on two blood thinners? I don't know of any doctors who are putting people on two blood thinners for this, that doesn't seem right. :( Chris, if you post in Dr. Sclafani's...

I had the procedure done in Bulgaria on May 5th, some ten weeks later I have not experienced any improvements. To the contrary, my disability was 6.0, I would guess I am atleast a half point more progressed.

Cant type any more, sorry for the bad news

There is more to this story than a simple balloon. Like a stent. IF they would start doing procedures instead of just arguing we could all find out sooner than later. Its obvious while this turf war continues so does our progression. What does this mean? Yes, thats it! We'll be sarcastic, that helps.

L wrote:Ups, sorry, I misread your post! I saw the word 'decline' and not 'decline in disability' !

L you had it right, 10 weeks after ccsvi surgery in Sofia I am more disabled than ever, obvious to anyone.

That would be very interesting as I am curious to know if anyone has truly had significant, life changing benefit as a result of their treating a diagnosis of ccsvi. I was treated in Bulgaria and would love to have a place to chat about it. After my treatment I believe ccsvi is caused by other condi...

Hello Bill, I hope you and your wife are having a good weekend, I know how challenging life can be with this awful disease. I am PPMS and 6-6.5 EDSS, I went to Sofia May 5 for angioplasty, its been a month and half or so, Ive never felt worse, MS syptoms are all worse in every part of my body. I don...

to 72demon416 hope this will help answer some of your questions... this is what I was confirmed by geya tours The accommodation in hospital hotel area - 20 euro per person/per > >> night (without breakfast) > >> > >> Full board (breakfast, lunch, dinner) - 15 euro per person/per > night > >> > >> T...

I am in Sofia, Bulgaria, at Tokuda Hospital. I agreed to come and give Dr Grozdinski my business and trust and so I arrived on 4 May and was tested the following day via Doppler ultrasound. This was done in a room off of a hallway where there were obviously four or five technicians with the doctor w...

This would be good but aggrevating actually as I just dropped $6500 for business class tickets to Bulgaria for diagnosis and treatment if neccessary + $6850 = over $13000 that I may not have needed to spend.

SHIT

Hello jak7ham9. Thank you for your post and thank you in advance for your help. I have b.c. b.s. of Georigia, government employer/insurance. It's an HMO so I expect to need a referral. What codes do you have?

Appreciate you,
Chris

'CCSVI in Bulgaria' needs a NEW thread. This ones turned into a chat room long ago. Does anyone have any relavant information and/or experiences with specific regard to Bulgaria or Prof. Grozdinski? If anyone has had a diagnosis or treatment in Sofia I'd like to hear about it. Yahoos down the hall p...

Merlyn just want to thank you for this very interesting reading! Your hypothosis should be explored and I for one am very interested in learning more.

In the mean time............so frustrating..rrrrrrrrrrrr.cannot type,.....hand/arm/fingers being tortured

CCSVI if diagnosed will be treated in May

There is a sense of cult following on here and that is very sad. It was meant to help ALL people with MS; not just the ones who agree with your point of view! Before they start coming after you I just want to say thanks for having the guts to express your thoughts, despite the repercussions. I'm no...