Search found 57 matches
- Wed Feb 16, 2011 2:14 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CANADA/CCSVI/IGNATIEF
- Replies: 9
- Views: 2394
- Sun Feb 06, 2011 10:31 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Dr. Kirsty Duncan makes a call.
- Replies: 18
- Views: 5025
Kirsty Duncan
What concerns me here in Canada is this. We know that the Liberal party will now support testing and treatment for CCSVI - Michael Ignatieff has come out and said this. Kirsty Duncan will make sure that he keeps his word. There are also members of the NDP that are supportive too but here is our dile...
- Wed Jan 12, 2011 10:39 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: "whining about neurologists"
- Replies: 65
- Views: 13151
I see my neuro in April - the infamous Dr Freedman. I still am not sure about telling him about my treatment even knowing all my improvements which are not placebo - I am a nurse and I know that. I took in my MRI/MRV last April to ask the same question CeCe - had my lesions changed. I also got no an...
- Wed Jan 05, 2011 10:12 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Canada's MS patients are owed an explanation
- Replies: 11
- Views: 2568
- Tue Jan 04, 2011 3:38 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: SYMPTOMS WORSE AFTER LIBERATION
- Replies: 13
- Views: 3367
- Tue Jan 04, 2011 11:03 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani ASKS a question
- Replies: 109
- Views: 27178
Living with MS
For me the worst thing has been having my children grow up with a mother who was always tired and often grumpy because of this. They did not want to bring friends home because their mother was such an embarrassment. I regret all the fun things I could have done with them and the active sporting acti...
- Mon Oct 18, 2010 9:52 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani answers some questions
- Replies: 8342
- Views: 2365378
Comments from Dr Siskin
Lady Gazelle I was treated by Dr Siskin in September and was told they no longer go in through the left because they WERE NOT seeing enough May Thurners to justify it. I was also told that they were not looking directly at the valves. They don't use IVUS. Cece - I believe that you have a good point ...
- Wed Oct 13, 2010 9:58 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Would you do it again?
- Replies: 35
- Views: 9687
I think that we are all aware that this may not be a once off treatment but we also realise that the benefits from better bloodflow to and from the brain would be benefical to anyone. MS symptoms also improve - this treatment needs exceptance worldwide. Stop telling us how risky it is - there must b...
- Sun Oct 10, 2010 4:48 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Upper cervical spine chiropractic adjustments
- Replies: 97
- Views: 29847
Neck Chiropratic treatment and RA
I have MS/CCSVI and was diagnosed with RA about 7 years ago. I used to visit a chiropractor about once a month. After getting the RA he wouldn't touch my neck and so I haven't been back. What would be your feelings on this if I am not having flareups. I am quite stable at present with my RA. I had t...
- Fri Sep 24, 2010 2:49 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani answers some questions
- Replies: 8342
- Views: 2365378
Missing azygos?
I posted this yesterday but in the wrong place. My question is about my azygos vein. I was in Albany for the CCSVI procedure last week. Dr Siskin, who as we all know is very experienced, could not find my azygos vein meaning that I may not have one. I am 56 years old and wondered if I should be conc...
- Thu Sep 23, 2010 11:58 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Dr Scalfani
- Replies: 5
- Views: 1923
Dr Scalfani
I was in Albany last week for my CCSVI procedure. Dr Siskin, who as you know is very experienced, could not find my azygos vein. He said this was a first for him. Is it possible that I don't have one - I am 56 years old and if so what does this mean?
- Mon Sep 20, 2010 7:33 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI tracking project-POST PER P.1 FORMAT ONLY
- Replies: 163
- Views: 346288
Post angioplasty
I am a 56 year old female. I have been diagnosed with RRMS for 13 years. I started with Optic Neuritis, almost blind for a week in Left Eye. Other major symptom was numbness and tingling in Left Leg and Foot. EDSS 1 to 1.5. On Rebif 22mcg for 2 years. On rebif 44 mcg for 8 years. On Rebif 22 mcg for...