Search found 57 matches

by Hooch
Wed Feb 16, 2011 2:14 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CANADA/CCSVI/IGNATIEF
Replies: 9
Views: 2394

Michael Ignatieff has said that he would support testing and trials of CCSVI treatment in Canada if elected - it was in a Liberal Party document released in the summer.
by Hooch
Sun Feb 06, 2011 10:31 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Kirsty Duncan makes a call.
Replies: 18
Views: 5025

Kirsty Duncan

What concerns me here in Canada is this. We know that the Liberal party will now support testing and treatment for CCSVI - Michael Ignatieff has come out and said this. Kirsty Duncan will make sure that he keeps his word. There are also members of the NDP that are supportive too but here is our dile...
by Hooch
Wed Jan 12, 2011 10:39 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: "whining about neurologists"
Replies: 65
Views: 13151

I see my neuro in April - the infamous Dr Freedman. I still am not sure about telling him about my treatment even knowing all my improvements which are not placebo - I am a nurse and I know that. I took in my MRI/MRV last April to ask the same question CeCe - had my lesions changed. I also got no an...
by Hooch
Wed Jan 05, 2011 10:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canada's MS patients are owed an explanation
Replies: 11
Views: 2568

If Angioplasty for All gets enough money the challenge to the Charter may make this waiting period for treatment quicker. Anyone out there have friends with money who are passionate about this procedure?
by Hooch
Tue Jan 04, 2011 3:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: SYMPTOMS WORSE AFTER LIBERATION
Replies: 13
Views: 3367

It is possible that your body is reacting to the new blood supply. I had tingling in my left foot and then it kind of came back to life. I actually had not realised that it was a bit numb until this happened. It may not be a bad sign at all.
by Hooch
Tue Jan 04, 2011 11:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani ASKS a question
Replies: 109
Views: 27178

Living with MS

For me the worst thing has been having my children grow up with a mother who was always tired and often grumpy because of this. They did not want to bring friends home because their mother was such an embarrassment. I regret all the fun things I could have done with them and the active sporting acti...
by Hooch
Mon Oct 18, 2010 9:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2365378

Comments from Dr Siskin

Lady Gazelle I was treated by Dr Siskin in September and was told they no longer go in through the left because they WERE NOT seeing enough May Thurners to justify it. I was also told that they were not looking directly at the valves. They don't use IVUS. Cece - I believe that you have a good point ...
by Hooch
Wed Oct 13, 2010 9:58 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Would you do it again?
Replies: 35
Views: 9687

I think that we are all aware that this may not be a once off treatment but we also realise that the benefits from better bloodflow to and from the brain would be benefical to anyone. MS symptoms also improve - this treatment needs exceptance worldwide. Stop telling us how risky it is - there must b...
by Hooch
Sun Oct 10, 2010 4:48 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Upper cervical spine chiropractic adjustments
Replies: 97
Views: 29847

Neck Chiropratic treatment and RA

I have MS/CCSVI and was diagnosed with RA about 7 years ago. I used to visit a chiropractor about once a month. After getting the RA he wouldn't touch my neck and so I haven't been back. What would be your feelings on this if I am not having flareups. I am quite stable at present with my RA. I had t...
by Hooch
Fri Sep 24, 2010 2:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2365378

Missing azygos?

I posted this yesterday but in the wrong place. My question is about my azygos vein. I was in Albany for the CCSVI procedure last week. Dr Siskin, who as we all know is very experienced, could not find my azygos vein meaning that I may not have one. I am 56 years old and wondered if I should be conc...
by Hooch
Thu Sep 23, 2010 11:58 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr Scalfani
Replies: 5
Views: 1923

Dr Scalfani

I was in Albany last week for my CCSVI procedure. Dr Siskin, who as you know is very experienced, could not find my azygos vein. He said this was a first for him. Is it possible that I don't have one - I am 56 years old and if so what does this mean?
by Hooch
Mon Sep 20, 2010 7:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI tracking project-POST PER P.1 FORMAT ONLY
Replies: 163
Views: 346288

Post angioplasty

I am a 56 year old female. I have been diagnosed with RRMS for 13 years. I started with Optic Neuritis, almost blind for a week in Left Eye. Other major symptom was numbness and tingling in Left Leg and Foot. EDSS 1 to 1.5. On Rebif 22mcg for 2 years. On rebif 44 mcg for 8 years. On Rebif 22 mcg for...

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