Search found 278 matches

by mangio
Sun Feb 07, 2010 4:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Welcome to Canada Dr Zamboni and team
Replies: 1
Views: 1815

Welcome to Canada Dr Zamboni and team

Jamie got to meet Dr Zamboni. Hugs and tears.
by mangio
Sun Feb 07, 2010 12:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Colin
Replies: 18
Views: 5023

I think it was an excellent article. I want to hear and read many more scientists ideas and thoughts about the CCSVI theory. Really livens up the debate. What are we afraid of? - some part of the theory being challenged? Although probably many disagree with Dr Roses' critiques all science is open to...
by mangio
Sat Feb 06, 2010 5:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Contact details for patient co-ordinator
Replies: 6
Views: 2683

Steffi,

Alot of details have become better clarified since last month
about the issue you are referencing. Although not a business
approach that some would agree with, in fact no wrong doing was ever ascertained. Unless of course you have specific details?
by mangio
Thu Feb 04, 2010 6:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Buffalo Newsletter
Replies: 107
Views: 23596

I'm calling the surgeons office tomorrow.
by mangio
Thu Feb 04, 2010 4:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Celebrities?
Replies: 34
Views: 9392

Anna, I hope Avis gets the exclusive that she deserves...read BNAC exciting
announcement we don't need any others now.
by mangio
Thu Feb 04, 2010 3:47 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Negative False Creek MRV
Replies: 21
Views: 6930

Bill, Okay somegot wires crossed. New news from BNAC on CCSVI at UBC
might help with your decision.
by mangio
Thu Feb 04, 2010 1:47 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in Greece
Replies: 95
Views: 27554

Sotiris,
I have a really good paper I found last nite with great MRI's that somehow
I think relate to this story. It's a Neuroradiology publication so I think
it has some relevance. The pictures were really good.
by mangio
Wed Feb 03, 2010 9:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Negative False Creek MRV
Replies: 21
Views: 6930

It's being reported on Facebook tonite he is already in town. His group being trained in advanced neuroimaging/diagnostics by the UBC team and Dr S teaching his expertise. Sounds really constructive. By the way the staff told me some of the techs are travelling to Italy for the Escoate training in M...
by mangio
Wed Feb 03, 2010 9:31 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Negative False Creek MRV
Replies: 21
Views: 6930

Bill, False Creek's machine is doing MRV!! All of the scans I have looked at say MRV. Please look at Gingers at http://Iamsick ofms.blogspot.com - done at False Creek. If people do not get this info straight no professional people will want to come to this board. An MRI does both MRA and MRV. Also i...
by mangio
Tue Feb 02, 2010 10:21 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Findings at FCSC Vancouver/Canada
Replies: 125
Views: 27401

Interventional Radiologist. They were the first to have Dr. Zamboni
speak at their annual Vascular symposium well before anyone else.
bye
by mangio
Tue Feb 02, 2010 9:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Vascular Insufficiency as Differential Dx In RLS
Replies: 9
Views: 3090

yes you all guessed right. Your legs creep and crawl all nite. It's a horrible feeling really. 20pc of French Canadians have the condition as well as Greek people. Some researchers think there is some common gene from way back when. It's classified as a iron storage dysfunction disease - in some par...
by mangio
Tue Feb 02, 2010 8:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Findings at FCSC Vancouver/Canada
Replies: 125
Views: 27401

Heh Johnson, thanks for your post. I can't get the stents because I have so many complications from other autoimmune problems. But I have decided to try angioplasty and hope that will be okay. An ex-beau that is a surgeon in Victoria has talked to me at length about all this from his experience with...
by mangio
Tue Feb 02, 2010 9:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Vascular Insufficiency as Differential Dx In RLS
Replies: 9
Views: 3090

I have RLS also. Someone e-mailed me the other day stating the best part of Liberation was that his RLS is gone. He had the procedure in Cuba. I've read on some RLS organization sites of quite a number of really interesting new/old therapies and am planning on trying them first. Sclerotherapy was es...
by mangio
Sat Jan 30, 2010 10:56 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Findings at FCSC Vancouver/Canada
Replies: 125
Views: 27401

Johnson, I was just going to wish someone well on a journey to India, (as I travelled there long ago) and hopefully share some cheer with N.G. Didn't think anyone would want to read such things as we have been told often to stay on topic and have been trying to respect the guidelines. My apologies i...
by mangio
Sat Jan 30, 2010 10:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Findings at FCSC Vancouver/Canada
Replies: 125
Views: 27401

gammastang,
please accept the pause as we sort out all that is happening. Feb. 7th
is the big conference in Hamilton and many top surgeons are attending
for a reason. Please be patient and stay in touch.

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