This Is MS Multiple Sclerosis Knowledge & Support Community

Hi, It's unclear from your post whether you have been diagnosed with MS or not. Have you been diagnosed or are you assuming you may have MS? If you only have a diagnosis of a chlamydia trachomatis infection and it is not responding to treatment, it might be better to ask your doctor. I don't believe...

Hi, Although it sounds counter intuitive, I found if I put a thick sheeps wool fleece as a topper on my mattress that I was more comfortable when I slept and had better temperature control. A proper fleece has lots of airpockets in it that make you feel like you're floating on rather than sinking in...

Hi, Let's assume this has something to do with sensory fibres. There are quite a few classes. The ones that respond to things like light touch, hair movement and vibration are called mechanoreceptors. They generally excite big, well myelinated neurons. They help us determine where we are. They work ...

Not having had it doesn't help me think it through. It does sound postural, which makes me think of some sort of nerve compression. Does it start/ feel most noticeable at a particular spot ?

Hi,

It's not a problem for me but I'd like to understand the issue better.
What sort of filling is in your chair and mattress? Is it rubber?
Does the bodyheat cause you to sweat or is it just a sensation of discomfort?

Regards,

Hi David, Unfortunately, there is no distinguishing feature to separate primary progressive from secondary progressive MS. The distinction is purely subjective. It just depends on the diagnosing neurologist to make the call. The same issues would arise separating any progressive form into a relapsin...

When I've had tightness like that I would get one of those little bags filled with wheat that you warm up in an oven or a microwave and drape it over the sore spots on my neck and shoulders. It's a very gentle, long lasting heat and it does loosen the muscles up. You can watch TV or just sit down an...

Sorry to hear that.

Is the shoulder and neck tight or just painful?

Regards,

Hi, While I can't say your experience is similar to mine, I do think getting an expert opinion from a neurologist is a good idea. You may need to see a urologist as well. September is still a few months away, so I would get an neurologists opinion and then consider the steps after that. Not every pr...

Hi, Yes, thank you. All good now. The interesting thing was after using Dantrium for 6 plus years (and finding it very useful) I discovered that I probably didn't need it any more. Usually, if you start on Dantrium or Baclofen it's something you continue to take for a very long time. Until I underst...

Hi NHE,

Is the edema still an issue, or did it subside when you stopped the medication? Have you tried a therapist who uses lymphatic drainage massage techniques?

Regards,

Hi,
What has your regime involved since the Rituxan concluded?

Regards,

Hi NHE, As I mentioned earlier, the clinic wanted to inject a muscle that I did not want them to touch. Instead I wanted them to inject part of my calf. We agreed to disagree and review in 5 weeks. To compensate for the stiffness in my leg, the suggestion was to increase the Dantrium dose and see ho...

Hi, Well, now I have the answer to what was going on. When my Dantrium dose was increased by 25mg (total became 75mg) I started to become constipated. This is, most likely, because the higher dose wasn't warranted and the matter that should have passed through me just sat there. The consequence of t...

Thanks NHE, There are plenty of references in that note about being wary with sugars. As a child, I was extremely dairy intolerant and dairy products had to be excluded. That was about the sugars, not the protein. I still have to be careful with fructose as well as it can leave me feeling bloated an...