This Is MS Multiple Sclerosis Knowledge & Support Community

concerned, you will have to check with the italian health authorities to be 100% sure, but i doubt it has happened. Yes it was the drugs, but if the person broke their leg and was put on blood thinners the same thing could very well have happened.... i am pretty sure that would not have made the med...

concerned, Don't you think with all the news media(most negative) if there had been any deaths it would be plastered all over the world, they are still going on about the 1 death in the US which was totally unrelated to the procedure, the family even stated that. Here is the link from a Neurologist ...

Very disturbing that a so called Professional who has published this has actually published hearsay from someone or something he has read about. What ever happened to verifying facts before you speak, guess that does not apply to these so called specialist determined to discredit all the good work t...

Swede, sloppy or desperate... who knows but from what i know it is not true.
there has only been 1 death in the US but was TOTALLY unrelated to the procedure.
Here is a good link
http://ccsvinews.blogspot.com/2010/06/i ... tment.html

Onthelake, Here is an idea, why don't you contact STEVEN SIMONYI-GINDELE of the Reform MS Society for a donation from all the proceeds he is getting from people. He alleges that he is a Non-Profit organization for the advancement of CCSVI. We all think this is a crock and people are just being rippe...

Thanks for that ales, that is fantastic news. So glad for you. It is very encouraging as Liva is going for a second treatment in October, we are hoping for some positive results that will last this time, she has PPMS so are fingers are crossed. May the improvements continue with you and everyone els...

Hi LR, Thanks for all the updates, going to be taking my wife Livabird in October for a second treatment as well, first was Poland. Although there are risks with any procedure, we will try anything as she has gotten worse and worse, maybe it needs to be a more aggresive approach, who knows... I have...

Liva had some improvements post liberation in Poland but has now lost them all.
She is going to Bulgaria in October for further tests and treatment.
Hopefully this time it will deal with the azygos vein which Poland does not do very much

Will let you know how it goes.

Hi Frodo,

I have not contacted any other Euromedic clinic but i have read that Euromedic in Poland (Dr Simka) is NOT affiliated with any other Euromedic clinics.

Hi BadCopy and All, This might be a little cheeky... :P :roll: 8O but does anyone have form type letters that they use to send to the likes of IR's, Neuros, politicians etc... I am not the greatest at writing these sort of letters and would be good if i could get my hands on something. I would like ...

Hi eyebrow, As you are going to Poland, just a word of advice... depending on your MS, if you are PPMS or SPMS, make sure they pay special attention to the azygos. We don't think this was done with us, although they said they were fine, we are not convinced, and because of this we are starting all o...

Hi eyebrow,
Yes my wife Livabird is from liverpool originally although they immigrated to canada when she was 7 years old, so canadian accent now
You should have no problems getting the drug as it is on the NHS.

Hope all goes well...

Hi eyebrow, I believe you only need the injections in the stomach if you have had stents put in, you only need 7 days worth which you get in poland. My wife had these and actually wasn't too bad. Only the people with stents were given this. You will also get prescription for 3 other drugs(one of the...

All,

Not sure if you have seen this yet... apologies if you have

http://www.thebarrieexaminer.com/Articl ... ?e=2668820

Hi All, I am a little reluctant to post here but as my wife has had the treatment in Poland and all benefits have now gone, figured we should share this. Liva has PPMS and has had it for over 30 years. After the procedure on April 22nd Liva experienced some great benefits.. The usual warm pink feet ...