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Hello Nicko, Stage one is getting tested. This means finding and paying for a Radiologist who is willing to do an MRV and/or Doppler on you. MRV is more expensive but needs less expertise on pwMS, according to received info. Give the Rad the background papers and tell them about the study in Buffalo...

Hello ozarkcanoer, You made my point 'Diagnosis and treatment of CCSVI are the key, not promoting a theory' with such clarity, I just want to repeat it. ozarkcanoer said: If the scans show that I have venous malformations in my extracranial truncular veins, and I can find a reputable interventional ...

I would be happy to join in any Diagnosis & Treatment in UK. It would need to be as a private patient with referral/support from your GP (fine for me). For me it is too early to campaign, lets do it first then campaign. Finding people to do the tests and angiolasty should not be impossible in Lo...

It is not Prof Zamboni who needs to think that CCSVI in MS should be treated but leading MS neuros. Discussions with neurologists will be counter productive until there is a collection (many hundreds) of documented cases.

Diagnosis and treatment of CCSVI are the key, not promoting a theory.

MarkW

CCSVI and multiple sclerosis: Conference January 23, 2010 Communicate to preview the Foundation Smuovilavita NPO is organizing a conference on chronic venous insufficiency in which cerebrospinal will intervene 'Prof. Paolo Zamboni. The conference will take place 'in Vicenza in the day of 23 January ...

“We’re two to four years away from being able to say whether this can be recommended as a treatment and understanding its value,” Zivadinov said. “This is the nature of science. We need data.” Above is a realistic time horizon to change the MS medical community. In the meantime I recommend that pwMS...

I hope that CCSVI converts do not promise too much from this procedure. At the current time it is logical to say that people with MS exhibit venous insufficiency when tested. For pw RRMS and SPMS it reasonable to treat this problem using angioplasty (or stents if angioplasty is not successful). Then...

I observe that North Americans always talk about stents being inserted to treat CCSVI. The European data I have seen indicates that angioplasty is the treatment used most often. Personally I intend to have angioplasty and only consider a stent if the vein closes in the future or will not dilate with...

To declare my background - I am registered Pharmacist and worked with the pharma industry (as a Pharmaceutical Consultant) until MS prevented this. Why wage a war on pharma ? What do patients with MS gain from it ? The battle to engage in is much more simple - Step 1, How do pwMS get the Ultrasound/...

The UK MS Society never had it so cannot lose it ! It is a multi million pound organisation and such organisations move very slowly. If CCSVI is proven to arrest MS progression then the changes for Neurology will be earth shattering. Keep in mind that thousands of people have their careers based on ...