Search found 2198 matches

by Loobie
Fri Apr 29, 2011 4:23 am
Forum: General Discussion
Topic: Bed Wetting?
Replies: 18
Views: 13421

Filmmaker wrote:yeah, stress and cold or flus activate the immune systeme so the "auto immune" component of MS make ssx worse but it has nothing to do with disease progression itself....
Agree with that, although there are lots of people who feel that stress can bring about an exacerbation.
by Loobie
Thu Apr 28, 2011 5:25 am
Forum: General Discussion
Topic: Bed Wetting?
Replies: 18
Views: 13421

hum, interesting to read that sx get worse with stress, fatigue or infection... I cannot even imagine that those symptoms are related to an actaul lesion (wether it is in the brain or spine) as I do not see the lesion waking up or going to sleep depending on the amount of stress... Stress is SO tie...
by Loobie
Tue Apr 26, 2011 12:26 pm
Forum: General Discussion
Topic: Constipation
Replies: 21
Views: 6617

I thought mine was all caused by slow motility and the like so I started megadosing water. That sucked as my bladder is worse than my constipation! At any rate, once I started using condom catheters, I became regular as a baby. It was sphincter disynergy the whole time and within an hour of putting ...
by Loobie
Tue Apr 26, 2011 12:22 pm
Forum: General Discussion
Topic: muscle Cramps, groin area
Replies: 22
Views: 22536

Bubba,

Sounds like spasticity. Try to get a hold of some Baclofen and see if it helps!
by Loobie
Tue Apr 26, 2011 12:13 pm
Forum: General Discussion
Topic: Bed Wetting?
Replies: 18
Views: 13421

Well I have not yet been diagnosed, but since I just started getting another round of leg problems, balance issues, blurriness in my left eye, and now bedwetting.... I'm thinking it's pretty strong evidence that I do have MS. I cannot imagine having to cath every night for fear of bed wetting. Is t...
by Loobie
Fri Apr 22, 2011 8:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Steve M - 18 months have passed
Replies: 9
Views: 3897

Good to hear!
by Loobie
Wed Apr 20, 2011 5:20 am
Forum: General Discussion
Topic: Bed Wetting?
Replies: 18
Views: 13421

I will wet the bed every night if I don't cath before bedtime. Screwed up bladders and incontinence are very common symptoms.
by Loobie
Sun Apr 17, 2011 8:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: last CCSVI blog post for now
Replies: 3
Views: 2121

last CCSVI blog post for now

Well I updated my blog with my last CCSVI entry until something else shakes loose and if/when new ground is broken. It's my last since you all know who read my blog that I've had some progression in my left leg. Well going by everyone else's stories of progression post treatment, I could have re-ste...
by Loobie
Thu Apr 07, 2011 8:52 am
Forum: General Discussion
Topic: Need some support
Replies: 25
Views: 4909

I guess the only good part about my symptoms getting progressively worse is that at some point there will be some visible symptoms that doctors simply cannot ignore and dismiss as "anxiety". I will try to give as many updates in the coming months as possible. Man, I hate to see you thinki...
by Loobie
Sat Apr 02, 2011 4:27 am
Forum: General Discussion
Topic: Need some support
Replies: 25
Views: 4909

I would rather go the traditional route and get put on some MS meds that have been proven to stop the progression of the disease. If you find one of those, let us know! Seriously, there really aren't any medicines proven to be effective in stopping progression. If there were, we'd be all over them ...
by Loobie
Sat Apr 02, 2011 3:55 am
Forum: General Discussion
Topic: 54 lesions
Replies: 1
Views: 1583

No, I have a young friend that has been told she has over a hundred. It's just like real estate, it's location, location, location.
by Loobie
Sat Apr 02, 2011 3:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Completely Blocked RIJV
Replies: 48
Views: 10618

Mark has some 'structural' stuff impinging on his vein, a bone structure pushing on it if you will, on one side. He is a difficult case for that reason for sure, but there are other issues. He details his architecture very well in terms of this issue. I would search Mark's name. I know he's not alon...
by Loobie
Fri Apr 01, 2011 3:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Nerve Damage
Replies: 3
Views: 1885

If you have verifiable DAMAGE I can't imagine anything reversing it. However, if you have ON, there are many cases where people report lots of improvement in vision. Actual, verifiable damage is a different story though.
by Loobie
Fri Apr 01, 2011 3:30 pm
Forum: Natural Approach
Topic: herbals
Replies: 578
Views: 132519

YES! 8O
by Loobie
Fri Apr 01, 2011 4:34 am
Forum: Natural Approach
Topic: herbals
Replies: 578
Views: 132519

Man this freakin' sucks. I've also read articles that say it's neuroprotective. I think I"m going with those for now. After I get to smoke in the evening is the only time I feel actual relief from pain. The rest of the time I can keep it down with NSAIDS and what not, but the MJ makes it so you...

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