Search found 596 matches

by Jamie
Thu Oct 08, 2009 12:25 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Akaheather's Turn
Replies: 45
Views: 9779

Good stuff Heather!
by Jamie
Thu Oct 08, 2009 12:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI tracking project-POST PER P.1 FORMAT ONLY
Replies: 163
Views: 346788

MS HISTORY Melissa F 33 RRMS diagnosed 8/07 (age 31) after first serious exacerbation 8 lesions, 2x black holes, including lesion on brain stem. Program: Rebif, High Dose Chemotherapy (HiCy/Revimmune), Copaxone. MS symptoms: Fatigue, depression, emotional lability, heat intolerance, left side weakne...
by Jamie
Wed Oct 07, 2009 3:49 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Thank you Jamie and Mel!
Replies: 6
Views: 2360

Thanks guys! Marie, not yet and I know you are itching for that day to come. I'd say Mel had all her symptoms return by 12 months out. Fatigue and heat intolerance came back way before that but left sided weakness went. At the outset of HiCy, I can go back to the posts if need be (!), we said 'we wa...
by Jamie
Wed Oct 07, 2009 3:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Blood flow and remission in MS: a new interpretation
Replies: 30
Views: 8127

Make it so Leanne!

Cheers Fernando!
by Jamie
Wed Oct 07, 2009 3:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 363
Views: 107134

Trip two was such an anticlimax!

MRI then 10 mins with Dake and we were off!

Good obviously, but we'd built it up a lot.

Good luck, hope no further surgery!
by Jamie
Wed Oct 07, 2009 8:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A CCSVI Patient Log: All About Steve
Replies: 145
Views: 37380

For you guys more than most I hope wonderful things.
by Jamie
Tue Oct 06, 2009 6:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 123
Replies: 14
Views: 2683

Chris, Mel went through the same thing. In the end she abdicated all responsibility to me and said 'I'm trusting you here'. Even then, the deal was only she would go and have the scans only then decide. She'd almost decided to come back a month later. Then when Dake showed her the blockages, the mal...
by Jamie
Tue Oct 06, 2009 6:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Rokkit goes to Stanford
Replies: 38
Views: 6980

Good luck Rokkit!

It's not going to be pleasant but hopefully you'll get some good relief.
by Jamie
Tue Oct 06, 2009 5:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: What a wonderful trip!
Replies: 66
Views: 13698

Hey guitarguy, I apologised! Or I meant to. I got a bit heated the other day, for that I really am sorry. This whole thing can be emotive for all those involved. I got flashbacks to when my family was struggling to understand Mel's MS and I overhead them deriding her as 'lazy' etc when I knew what a...
by Jamie
Tue Oct 06, 2009 5:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Thank you Jamie and Mel!
Replies: 6
Views: 2360

Thanks!

I will, don't worry.

I'm glad I took a few days away.

it's like that old cartoon 'I can't come to bed honey, someone is WRONG on the internet!'

Onwards and upwards!!
by Jamie
Sat Oct 03, 2009 9:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: What a wonderful trip!
Replies: 66
Views: 13698

I think you are probably right!

Have a good weekend all.
by Jamie
Sat Oct 03, 2009 9:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: What a wonderful trip!
Replies: 66
Views: 13698

Lighten up Bob. Are you disputing those as facts? Mel wasn't working now is. Mel wasn't running now is. If those facts change I'll let you know. Just as I did with the ups and downs of HiCy. I stand by number 3 though. I nearly came to blows with my father when he called her 'lazy' in the midst of a...
by Jamie
Sat Oct 03, 2009 7:07 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: What a wonderful trip!
Replies: 66
Views: 13698

I would also like to say that Mel has a bachelors in neuroscience, a masters in genetics, is a phd and researcher and is also a teaching professor at Baylor College of Medicine. Additionally she counsels women with high risk of genetic illnesses or general high risk pregnancies. To suggest that she ...
by Jamie
Sat Oct 03, 2009 6:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: What a wonderful trip!
Replies: 66
Views: 13698

Also, Mr.Success, can I ask aliitle about you? You've made 17 posts on TIMS, all about CCSVI. Is it you with MS or someone close to you? What treatments have you/your friend/relative with MS looked at? Can you share some of your experiences with the disease? It would sure help us know where you are ...
by Jamie
Sat Oct 03, 2009 6:00 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: What a wonderful trip!
Replies: 66
Views: 13698

Hey dudes, do me a favour and take this elsewhere?

Thanks.

The FACTS ARE:

1) Mel now works full time
2) Mel is now back exercising when she chooses to. (She used to run 10ks and half marathons pre-MS.)
3) Anyone who says the fatigue was in her head to my face will get punched in theirs.

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