This Is MS Multiple Sclerosis Knowledge & Support Community

Nice to hear from you Rogan! It has been awhile ... Thanks so much for listening to the Rosa interview and for your kind comments. Rosa is an incredible, passionate gentleman. He will be a "player" in the future of therapies for neurological disease. Hope all is well in your world. Kindest...

Daniel - On a personal note -- my treatment strategy has been to do what I could to minimize the chronic damage to my central nervous system. This included being treated for CCSVI at Stanford in June 1, 2009 where I was one of Dr Dake's early patients and was in his pilot study; then I went to Dr Ro...

Daniel - Awesome news! So glad that you have had improvement in your MS symptoms. Remember this cannot be considered a cure for MS; but, I am sure that you were totally surprised to find out how and what your mis-aligned Atlas was affecting. Did you get to see your pre and post images? Did you see C...

CCSVI Alliance recently released an exclusive interview with Dr. Scott Rosa "How does craniocervical mis-alignment affect fluid flow in the CNS?" Here is link to our Facebook announcement. Please note the ultrasound image of blood flow through the jugular vein pre and post Atlas Orthogonal...

Daniel -

Good luck to you at Dr. Rosa's -- I am sure you will find your visit helpful and interesting

Sharon

Daniel and Frodo -- CCSVI Alliance recently released an exclusive interview with Dr. Scott Rosa who has been observing anomolies at the cranio cervical junction for many years. The video is full of information which might be of interest to you. Please go to www.ccsvi.org to view (you will find video...

Elliot - I would suggest you join the Biotin For Progressive MS Facebook -- people are updating their purchase information from all over the world Here is the link to the Facebook post on Skip's Pharmacy. I think he is in the "ball park" with the pricing which is around $300/month if you t...

A few updates on Biotin: Skip's Pharmacy - Florida is now shipping Biotin in 100 mg capsules http://www.skipspharmacy.com/ MedDay has shared the supplier they used in the trial (MD1003=Biotin). As noted you may contact the supplier directly. https://scontent-lax1-1.xx.fbcdn.net/hphotos-xtp1/v/t1.0-9...

Oh, and full study has not been published for the Phase all only for the small 23 patient pilot study

Hi Cure, The dosage in the Phase lll trial was a range of 100mg - 300 mg per day. Tablets were 100 mg. They were not time released. Biotin used was pharmaceutical grade which is not found in most OTC low dose Biotin. We should know a little more when MedDay reports in June at the European Academy of...

Cerebrospinal fluid levels of biotin in various neurological disorders

A study abstract from 1999 showing low levels of Biotin in the csf of people with MS.

http://www.ncbi.nlm.nih.gov/pubmed/10577274

1eye asked: But what makes him think it is "the same Biotin used in the trial"? The MedDay trial in France? What makes it different from any other biotin? That it is American? In answer to the question: Skip has identified the source supplier of the Biotin used in the trial. He is having a...

Skip Lenz (Skips Pharmacy -Florida) a reputable compounding pharmacy used by many MSErs to get their LDN, has just notified that he has located a source for the same Biotin used in the trial. Skip will be running assay tests on his shipment and then will report back. Stay tuned
Sharon

Skip Lenz (Skips Pharmacy in Florida) a reliable compounding pharmacy used by many MSers for their LDN has just posted that he has sourced a supplier for the same Biotin used in the trial. He is getting a shipment in which he will assay test. Skip will be reporting back once he finishes his testing ...

Yes, Jimpsull - but they are going for an FDA approval of a drug so it can be paid for by insurance. It is not going to take pharmaceutical grade Biotin off the supplement market An example is Klor-Con ( potassium chloride) is just a timed release tablet in a higher dosage than OTC supplement.It is ...