This Is MS Multiple Sclerosis Knowledge & Support Community

Oops! I made an error in Teresa Capriotti's e-mail address. It is TCapriotti@azhealth.com (I left off the i at the end of her name in my earlier post. Sorry about that!javascript:emoticon(':oops:')

Liberation Gateway is an organization (Canadian-based I think) that offers to connect people with medical professionals for CCSVI treatment and testing. They also offer to coach people in getting referrals. They say they have medical connections. The physician shown on their website (who is also the...

Thank you for your replies to Nunzio and me. In your response to Nunzio, you suggest an interventional neuroradiologist, rather than an IR, surgeon or cardiologist. Does the same apply to me? Does an earlier possible thrombosis mean Nunzio and I would or would not be candidates for normal treatment ...

Yes, last year (after 25 years with MS), I suddenly had really bad pain in my right ankle. With each step I took, it felt as if my ankle would break. I saw my family doc, thinking she would refer me to an orthopedic speciliast. Instead, she referred me to a physical therapist who found that I had a ...

I have been following this thread since it began, but this is my first post here. Thank you Dr. Sclafani for all I have learned from you and others. I had an MRV in January which showed poor filling of right transverse and sigmoid sinuses. It was stated "this may be a reflection of a previous s...

I'm stunned people are able to donate blood. I had donated for years, but after my diagnosis of MS (26 years ago), I was told I was on their "permanently deferred list" and would no longer be permitted to donate. Strange how something like that differs so dramatically in different places. M

Thanks Mark. I had lunch here in Canada on Saturday with a friend and her sister, who was visiting from Scotland. The Scottish sister, who is a retired nurse, was not aware of CCSVI and didn't think it had received much publicity in Britain. She wanted to know more because she has a friend in Scotla...

Ouch! I've just learned MS Ontario recently (June 30) sent an e-mail to Ontario MPPs advocating NOT funding CCSVI treatment through public health care. I suspect other provincial divisions may have done the same. Their message is lengthy, but in the beginning it states "I am sure I need not tel...

I agree with willtravel. I would love to hear about the experiences of those who have been to Costa Rica. As someone else said in a post about Poland--the good, the bad and the ugly, whatever it may be. So, please anyone, who has been to Costa Rica, please tell us how it was--and more importantly, h...

Fabulous! You Go Barb!

I spoke with Angie, Dr. McDonald's technologist and with Dr. McDonald when I had my Doppler at Barrie Vascular Imaging on Tuesday. They advised they do not yet have a definite timeline for beginning their study. They are continuing to work towards approval. Angie is amazing. She's dynamic, caring, p...

I understand because I've been there. For the first six years after my diagnosis in 1984, my mother simply could not deal with my M.S. We had our biggest mother-daughter crisis six years later when I was in the hospital and she chose to completely ignore that fact. Since then, she's gotten a lot bet...

I've had dizziness for at least 15 of the 26 years that I've had MS. I've been told by my neuro and family physician that it relates to low blood pressure. Now I wonder how much CCSVI plays a role. We've known for years that I have circulatory problems (i.e. alternate between cold, purple feet and f...

Does anyone have any information on Arizona Heart Institute in Phoenix? Through a lead, I contacted them. I understand there are over 200 ahead of me on their list. They are not yet able to confirm price. I prefer to have treatment in Ontario (preferably with Dr. McDonald) or elswhere in Canada, but...

That's fabulous news. I have an appointment with Dr. McDonald's technician for a Doppler ultrasound. I will see what I can find out then and post it here.