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I'm told I have MS and APS: antiphospholipid antibody syndrome. There are many neurologists experienced in MS but only a few experience in APS and almost nobody who's an expert in both conditions. My neuro had to approach him then we had to fill out questionnaires before he'd agree to see me. We've ...

No responses here but I've got two pages of questions so that should be a start when seeing the specialist on Friday.

Studies have shown that heavy exercise stimulates testosterone. I wonder if a testosterone deficiency is why the problem is mainly in women. Regardless, I spent three hours in the weight room yesterday.

kevin

In four days I travel all day to be seen by a specialist in both MS and APS: antiphospholipid antibody syndrome. So what questions should I ask? Typically when I'm at the doctor for any reasons I get brain freeze but my wife will be with me. After three bouts of cancer she's an expert at talking. So...

I keep hearing this song since this thread started.

I think it should be a BIG clue that MS affects women much more than men. Years ago I took testosterone injections to improve libido and muscular strength. Then read The Testosterone Solution. He claimed cruciferous veggies helped to balance testosterone vs estrogen. I noted also that Hahn and other...

9 years no recurrences? I'm 7-months since the first attack and am hoping my case will be CIS. Can you say more about the weight-lifting and diet?

kevin

I believe the stratosphere is 20-50 miles above the earth. It's protective, not injurious. Ozone medical therapy was common in the 20's, 30's and early 40's. Once penicillin was discovered ozone generators were consigned to the waste bins. But these days there are infections that are resistant to al...

I had read that in your earlier note but putting pressure on the lower belly might help to empty it? Or is there no control and urine drips out on its own?

10 years ago I developed 'foot drop'. Basically my left foot went numb and I couldn't lift the toes. Eventually I found abstracts suggesting peroneal nerve entrapment. I took this to the orthopedist and he agreed on surgery. They found the peroneal nerve was 90% dead. By moving the tibialis muscle i...

I was dx'd with MS and APS six months ago. For me it was vertigo and pulmonary emboli. I still remember the neurologist saying I could be in a wheelchair by next year. I'm still working but my wife and I are planning on selling the business and going on medical retirement. I'm 61. What I've learned ...

I'm a veterinarian and have done a few stem cell treatments on animals. These were for musculoskeletal problems. As I understand it, traditionally bone marrow was used for stem cells. But then someone found that subq fat has 100 to 1000 times more stem cells than a similar volume of bone marrow. I c...

New drug:

"CNM-Au8 is an orally administered gold nanocrystal suspension" It's labeled as a remyelinating agent. The company is based in Salt Lake City, where my neurologist's practice is. I wonder if anything works when there's scar tissue that has replaced myelin.

I can share my two cents: MS is an autoimmune disorder. Antibodies are attacking the myelin sheath surrounding certain nerves. When damaged nerve function is poor. There are three or four different kinds of MS. There are a lot of books and online sources that can explain the differences. I was diagn...

Any difference between the two? Over a year ago I developed a tremor in my dominant hand. Handwriting went from poor to dismal. Then six months ago I had pain in my shoulder and chest. Then I had an attack of vertigo. In the end I was diagnosed with MS and APS. I was put on tysabri for the MS and Pr...