Search found 102 matches

by nellie
Mon May 16, 2011 6:47 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Medicare
Replies: 37
Views: 7821

Thanks Cece.
by nellie
Mon May 16, 2011 6:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Medicare
Replies: 37
Views: 7821

Anyone know the vein compression code?
by nellie
Thu May 12, 2011 5:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 160469

Vece--Great news! Glad it all went well. I can relate to the driving & parking issues. Been along time since I worked downrown & drove it.
by nellie
Thu May 05, 2011 5:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: For Anybody who has Blue Cross, Blue Shield
Replies: 73
Views: 16969

If this BC/BS policy change wasn't effective until 4-12-11 why was newlywed4ever who had the procedure on 1-28-11 & a check to AAC cut on 4-5-11 denied? I don't understand.
by nellie
Fri Apr 01, 2011 8:31 am
Forum: General Discussion
Topic: Need some support
Replies: 25
Views: 4878

You sound just like me. I forced them to do the spinal tap because I was sure it was MS. My sister has it & I knew the symptoms. They just kept saying it was anxiety but years later it was confirmed. In fact, I even saw a chiropractor looking for help when they couldn't find it. The first thing ...
by nellie
Fri Apr 01, 2011 6:26 am
Forum: General Discussion
Topic: Need some support
Replies: 25
Views: 4878

jml- I had exactly your symtpoms at age 32. Went thru every test possible. Mri, spinal tap etc. I, too, was told it was anxiety & it did go away for quite sometime. As time went on the legs got a little worse and 15 years down the road I fell & broke the shoulder. Then they found it on the m...
by nellie
Fri Apr 01, 2011 6:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: "quilting community helps woman with MS"
Replies: 19
Views: 3365

Trish, Dr. Cumming is very good & so willing to help. I have been treated by him & he is so on board with ccsvi. He is so willing to follow up even when not being treated by him. I hope yor DM will consider seeing him but realize how it is when you must know your boundaries. MS can be such a...
by nellie
Mon Mar 14, 2011 6:23 am
Forum: Low Dose Naltrexone
Topic: How long before you feel effects
Replies: 10
Views: 15332

I've been on 3mg. for 18 mos. now. Even though I didn't show any positive effects I have no negative & am hoping for help to slow progression. It is such a inexpensive drug to take. For me 4.5mg. incresed my spacisity so I went back to 3 mg.
by nellie
Sun Mar 13, 2011 10:26 am
Forum: Low Dose Naltrexone
Topic: How long before you feel effects
Replies: 10
Views: 15332

I never did feel any effects either good or bad.
by nellie
Thu Mar 03, 2011 3:36 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Mr Vein-man
Replies: 13
Views: 2854

Thanks. It made me smile!
by nellie
Wed Mar 02, 2011 9:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 160469

Cece---- Thanks for the update. It is truly inspiring to hear of the wonderful outcome. I can't be happier for you & your family. Never thought I'd see this in my lifetime and even though I saw no positive changes I'm so happy for you & all the others with such positive results.
by nellie
Tue Feb 15, 2011 5:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 160469

Cece--Welcome back. Glad you're doing well & experiencing positive improvements. Miss your views & expertiese on the forum but know you need to rest for now.
by nellie
Sat Feb 12, 2011 8:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 160469

Cece- So glad it's over & that was impressive blockages. I did have neck sensitivity. Never bad but 2+ months later I feel the sensitivity at times. I'm sure stretching the veins is the culprit but think it is natural to feel some sensitivity. Take care!
by nellie
Fri Feb 11, 2011 10:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 160469

Cece, thinking of you. I'm so glad you're having this done now, avoiding progression . Praying for you for the best possible results.
by nellie
Sat Feb 05, 2011 11:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Woman receives life altering procedure
Replies: 3
Views: 1682

Cece-Thanks for posting all these wonderful outcomes. It gives some of us hope & inspiration to keep the faith.

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