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by centenarian100
Thu Apr 18, 2013 1:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Wheelchair Kamikaze
Replies: 14
Views: 2669

Re: Wheelchair Kamikaze

euphoniaa wrote:Nope. It's marcstck.
He's quite the writer
by centenarian100
Thu Apr 18, 2013 1:35 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Wheelchair Kamikaze
Replies: 14
Views: 2669

Re: Wheelchair Kamikaze

Out of curiosity, what is the screen name of Wheelchair Kamikaze on this forum?

Is it CeCe?
by centenarian100
Thu Apr 18, 2013 1:22 am
Forum: Stem Cells
Topic: mylien regrown
Replies: 5
Views: 2836

Re: mylien regrown

Pesho wrote:do they stop progression?
These are just basic science studies. There is nothing to "release to the public" yet. This is not a clinical treatment [yet]
by centenarian100
Thu Apr 18, 2013 12:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Embry: Actual data from PREMiSe suggests CCSVI is of value
Replies: 92
Views: 13855

Re: Embry: Actual data from PREMiSe suggests CCSVI is of val

MrSuccess wrote:lfor what it's worth ...... I think the results are produced with more than you know ...in mind.
Care to elaborate on this remark?

:twisted:
by centenarian100
Thu Apr 18, 2013 12:24 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Embry: Actual data from PREMiSe suggests CCSVI is of value
Replies: 92
Views: 13855

Re: Embry: Actual data from PREMiSe suggests CCSVI is of val

Interesting. So, had the results been positive, I assume we'd have to accuse the researchers of blatant pro-CCSVI bias due to all that cash from "big-CCSVI". :lol: I jest, of course! I guarantee that people would make this accusation. :lol: Funding bias is important to consider, but it ca...
by centenarian100
Thu Apr 18, 2013 12:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Embry: Actual data from PREMiSe suggests CCSVI is of value
Replies: 92
Views: 13855

Re: Embry: Actual data from PREMiSe suggests CCSVI is of val

cheerleader wrote: I think Dr. Embry's anger may come from the fact his charity gave $125,000 to PREMiSe
Whoah!
by centenarian100
Wed Apr 17, 2013 2:49 pm
Forum: General Discussion
Topic: Most badass thing you have done despite MS?
Replies: 21
Views: 3829

Re: Most badass thing you have done despite MS?

Lets see...in the one month that I've had ms :wink: I've homeschooled two kids while looking after the younger two while also doing my own solumedrol IV which I hung from a wire hanger on the window. Only once did I bleed into my line because I had to chase a toddler and took the bag down. DIY IV w...
by centenarian100
Wed Apr 17, 2013 10:52 am
Forum: General Discussion
Topic: FDA Let Drugs Approved on Fraudulent Research Stay on Market
Replies: 1
Views: 1285

Re: FDA Let Drugs Approved on Fraudulent Research Stay on Ma

Propublica has come out with a recent report that states that the FDA has let generic drugs approved on false research stay on the market. FDA Let Drugs Approved on Fraudulent Research Stay on the Market http://www.propublica.org/article/fda-let-drugs-approved-on-fraudulent-research-stay-on-the-mar...
by centenarian100
Wed Apr 17, 2013 10:41 am
Forum: General Discussion
Topic: Problematic Symptons getting in the way of life
Replies: 16
Views: 3199

Re: Problematic Symptons getting in the way of life

CaliReader wrote: My first dose is next week so I may still be told I can't take it.
Best of luck :smile:
by centenarian100
Wed Apr 17, 2013 10:24 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Embry: Actual data from PREMiSe suggests CCSVI is of value
Replies: 92
Views: 13855

Re: Embry: Actual data from PREMiSe suggests CCSVI is of val

Further, I wonder what throwing out the one outlier who had 8 new lesions would do to Dr. Zivadinov's statement? I can roughly estimate this by taking out the worst data point in the treatment group... For cumulative # of T2 lesions: Sham arm (10 pts): mean new T2 lesions: 0.3; SD 0.7 Treatment arm...
by centenarian100
Wed Apr 17, 2013 10:04 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Embry: Actual data from PREMiSe suggests CCSVI is of value
Replies: 92
Views: 13855

Re: Embry: Actual data from PREMiSe suggests CCSVI is of val

The five VH criteria evaluated are: Criterion 1) reflux in the IJVs and/or in the VVs assessed in both sitting and supine postures, Criterion 2) reflux in the deep cerebral veins (DCVs), Criterion 3) B-mode detection of stenoses in the IJVs in the form of annuli, webs, septa, or malformed valves, C...
by centenarian100
Wed Apr 17, 2013 10:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Embry: Actual data from PREMiSe suggests CCSVI is of value
Replies: 92
Views: 13855

Re: Embry: Actual data from PREMiSe suggests CCSVI is of val

The graph of VHISS ( scroll to page 6 ; http://www.direct-ms.org/sites/default/files/Embry%20Premise%20Evaluation%20April%202013.pdf) is very unusual I wonder what the explanation is for the discrepancy between phase I and phase II. The baseline data look very similar, and I presume that the criteri...
by centenarian100
Wed Apr 17, 2013 8:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Embry: Actual data from PREMiSe suggests CCSVI is of value
Replies: 92
Views: 13855

Re: Embry: Actual data from PREMiSe suggests CCSVI is of val

cheerleader wrote:VHISS--Venous Henodynamic Insufficiency Severity Score, is a measurement BNAC created, to show how badly CCSVI was affecting blood flow.
Does anyone know the criteria for VHISS?
by centenarian100
Tue Apr 16, 2013 11:21 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Embry: Actual data from PREMiSe suggests CCSVI is of value
Replies: 92
Views: 13855

Re: Embry: Actual data from PREMiSe suggests CCSVI is of val

Interesting thread. special kudos to scut for several good points. You can't just disregard a study because you don't like the results. Everyone has bias. Maybe Dr. Zamboni wants to be famous for a paradigm-shifting discovery. Maybe some interventionalists want to cash in on a lucrative procedure. M...
by centenarian100
Tue Apr 16, 2013 2:02 pm
Forum: General Discussion
Topic: MS AND COGNITION
Replies: 13
Views: 3892

Re: MS AND COGNITION

As an addendum, does anyone have experience with nootropics, be they natural or pharmaceuticals?

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