Search found 118 matches

by NormB
Tue Sep 13, 2011 4:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Dake at CIRSE
Replies: 43
Views: 6254

Re: Dr. Dake at CIRSE

Quote: "yet Freedman is demonized for doing the hard thing" He was my neurologist and as soon a patient of his is in the progressive stage such as I, his interest in your case diminishes rapidly. He accepts gladly patients in the Relapsing Remitting stage since they are the less affected w...
by NormB
Tue Sep 13, 2011 3:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadians CAN claim for CCSVI expenses
Replies: 11
Views: 2115

Re: Canadians CAN claim for CCSVI expenses

Quote: If you have no tax liability then you are out of luck Yes indeed as our total family income is low, my 2010 espenses for a CCSVI intervention was $14000.00 and when claimed I received $750.00. I know better than nothing but this shows to a degree the gap from the rich and the poor. I have ano...
by NormB
Sun Sep 11, 2011 6:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: This is fascinating!!!!!
Replies: 103
Views: 17440

Re: This is facinating!!!!!

Hi everyone, Just a heads up in case anyone decides to order Daflon 500 from any online pharmacies in the US and Canada, there are many that offer this product at much inflated prices (I have seen $150.00 +), first of all the manufacturer Servier does'nt offer or have applied in both countries to Fd...
by NormB
Sun Jul 17, 2011 11:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Montel's announcement
Replies: 228
Views: 50311

Hi All, I'm very interested in hyperbaric tents but it is out of my financial means. The unit I'm refering to are the ones used for poeple with emphysema or the poor man's oxygen tent. In reality I just want to prove or replicate the feeling I had just after the procedure. If oxygen enhancement is g...
by NormB
Sun Jul 17, 2011 9:38 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Montel's announcement
Replies: 228
Views: 50311

Hi people, This may be off thread but I'd like to share my opinion with the procedures. I had 2 procedures and my first one last fall, I categorized it as a resounding success. I had instant relief and my gait had me standing straight with stamina to my legs so I could stand up for 30 minutes or so....
by NormB
Mon Jun 06, 2011 7:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Phlebotomy anyone?
Replies: 1161
Views: 218137

Greetings all, I had a blood lab test for ferritin level. Here in Canada they interpret the result in ug/L which the numbers are quite different from what I'm seeing here. The lab says the upper limit is 300 ug/L and mine was 317. How does it corrolate with your numbers? Take Care All Normb
by NormB
Wed May 25, 2011 12:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Brooklyn-bound
Replies: 44
Views: 8255

Hi people, Dr. S arranged for a US which I just returned from. Everything seem normal according to the tech. So I guess we'll just let time pass and see how it will transpire. Have to say again Dr Sclafani and his team are numero uno. We're leaving tomorrow back home. Going to miss the great food he...
by NormB
Wed May 25, 2011 2:02 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Brooklyn-bound
Replies: 44
Views: 8255

Hi CD
This is a good question concerning the US I'll check on that.
Back in Canada there is a US facility and it is 300 miles from my residence, my date is set for next July 13.

Normb
by NormB
Tue May 24, 2011 7:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Brooklyn-bound
Replies: 44
Views: 8255

Hi CD and everyone, This was my second procedure here in Broolyn, IVUS was used troughout and Dr. S performed 3 balloonings. The results soon afterwards were very good but the next morning was not encouraging. Feels the same as before the procedure with the exeption that my lower back pain is gone. ...
by NormB
Tue May 24, 2011 8:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Brooklyn-bound
Replies: 44
Views: 8255

Hi Jonhson, Today Monday, I was the patient just before you. I was set for 10:30 am but the previous and the first patient got out at 12:30 pm Sorry Johnson you were the first patient of the day and I came in second. Apparently It was a challenge for Dr Sclafini as it took over 4hrs. Hoping to hear...
by NormB
Mon May 23, 2011 4:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Brooklyn-bound
Replies: 44
Views: 8255

Hi Jonhson, Today Monday, I was the patient just before you. I was set for 10:30 am but the previous and the first patient got out at 12:30 pm. It's my second time with Dr Sclafani. So we had a very thorough consult then I was put on the table at 1:30 pm. This time there was the Ivus so it took 3 hr...
by NormB
Tue May 17, 2011 10:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: dr. mark eFer
Replies: 6
Views: 2844

Every Neuro Doc and including Dr. F who was my Neuro are taking the Zamboni findings out of context. They are looking at the CCSVI paradigm from a distance so not to immerse themselves to at least study CCSVI and report their findings either to discredit or to bring new views which may help the stud...
by NormB
Sat May 14, 2011 7:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Improvement reports
Replies: 332
Views: 84598

I wish being stuck with a cooperative Neuro. but mine (Dr F from Ottawa)
wants nothing to do with our pionnering way to get treated by an IR.

Regards,

Normb
by NormB
Mon Jan 31, 2011 8:08 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Brooklyn Experience
Replies: 11
Views: 3612

Congrats NewlyWed, I hope with time you will find improvements. Btw regarding Taxis in Brooklyn. There is a group called Family Car Service. They are good as our driver was part of a subgroup which they arrange within themselves to have a cab to go and then back. Just call Rafael at 347 998-8898 his...

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